Kathie, unfortunately I don't have any answers for you, but
you summarizied beautifully the predictament many PWPs/CGs
find themselves in.     Carole

--- Kathie J Creveling <[log in to unmask]> wrote:
> I agree wtih you that we should try to do for ourselves
> as much as we can.
> That is why I am still trying to work in a physically
> demanding career. I
> wake up every morning almost as tired as when I went to
> bed. I care for my
> husband as well as myself. I do not really have the
> security of a caregiver.
>
> Over the past 20 years I have cared (in-home) for my
> in-laws (both
> physically unable to care in any way for self), raised my
> three children,
> two nephews and have been there for so many others
> (fixing, baking, sharing
> holidays etc) My husband put in 36 years of giving to
> Uncle Sam. I have been
> working in home with the care of others' children for
> about 30 years. I am
> not asking for money to be handed to us. I am not asking
> for others to come
> and do the work for us. I simply want to know if there
> are already grants
> available for those who have no other way of getting the
> money to have one.
> Giving of one self for so many years to others is not
> very profitable. I
> have family who could do this for us and may well have to
> some day.
>
> As for taking gov. money or having gov. again in our
> life.... I am not too
> worried. The gov. gives money away like it was theirs to
> give and that there
> was a tree out behind the capitol that bloomed year
> round. They give it to
> artist to paint pictures that will cost the people even
> more to challenge.
> They give it to those to make deals. they give and give
> and give and give.
> Do you really think to have a program that would allow
> grants to those who
> need home-modifications for various disabilities would be
> using up our gov.
> money. Besides... we have paid into that pot as well. My
> husband put in over
> 36 years of paying taxes and donating money etc. to
> various needs. I have
> put in over 30 years. I am asking about a
> home-modification grant for ramps,
> railing on steps and in showers etc. Nothing more... I am
> not even asking
> that we create one... just is there one out there already
> where the money is
> already allocated.
>
> I can appreciate the comments on not being dependent on
> the gov. More so
> then you know and for reasons deeper then you know. It
> was the gov.
> protection over large corporations that allowed me to be
> implanted with a
> known defective pulse generator unit that caused the
> seizures, falls and
> neurological damage. I also appreciate the information on
> local state
> agencies and organizations. I will look into that. Yes, I
> want to keep gov.
> out of my life... but they already are totally in it with
> the insurance,
> medical, taxes and life choices / perhaps much more then
> you have had to
> experience.
>
> Thanks to all who have responded to this... it is a
> difficult subject. When
> to draw the line and when to ask for assistance. It is
> different for
> everyone and we must stay open to the reality that not
> all have the blessing
> of having a choice. Where would we be if we the PWP did
> not learn to swallow
> pride some and accept assistance from home and family? I
> would rather accept
> a $500 grant from the gov. (for which I paid in for a
> life time) then to
> accept it from a son-in-law (to whom I would have to feel
> beholdent to). I
> suppose it really is individual.
>
> May we all be in a situaiton where we have the
> opportunity of choice. Until
> then... thanks to all for the information.
> That is what makes this list serve valuable. Direct head
> on voices being
> heard and respected.
> Kathie Creveling   [log in to unmask]
>

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