Thank you for your kindness Hilary!  :)  I don't think you should disappear from the
list!!!  Your comments are always useful to us!!!

Hilary Blue wrote:

> now i'm hurting everybody's feelings again. i'm sorry. i still think it is a
> good catch  phrase. and i think you are doing estimable work, kristi, and joan
> i have long admired  you. Time for me to disappear off the list for a
> while,again, i think.
> hilary
>
> Kristi Fleming wrote:
> >
> > Hello all,
> > I'm sorry to have caused such a commotion!   I do not take PD lightly.  I had an
> > uncle who was very dear to me become afflicted in his early forties.  If you would
> > like to see the full extent of my research go to:
> > http://webpages.marshall.edu/~fleming11/
> > you can find my homepage and at the bottom are the links to my research paper's
> > very rough draft.  My assignment was to make a presentation to my class based on
> > interesting facts, statistics, and such to prompt my peers who see the
> > presentation to want to go and read my paper.  I'm sorry to have asked.  I didn't
> > think I would have been taken the wrong way.  THAT WAS NOT MY INTENTION in joining
> > this list or asking quesitons.  I wanted to further my knowlege.
> > Kristi.
> >
> > Hilary Blue wrote:
> >
> > > Jon
> > > you shane me and trivialize me. i am so sorry i have inadvertently given this
> > > young  lady the impression that it is fun not to be heard; cute to  have your
> > > children disrespect you, and fulfilling to be denied the right to parent your
> > > own  children.
> > > my intentions were totally the opposite. in my struggle against the social
> > > work community,,, i used the phrase 'mask of Parkinsonism' many times as a
> > > defence against the accusation of nnon participation or lack of interest. And
> > > i hve begin to use ''muffled voice's in a similar fashion. vut your words
> > > struck  home, and i freely apologies for  giving tes wrong impression. ''and i
> > > hand over to you the accolade i so recently was given --
> > > aGIVING JOAN A MICROPHONE IS LIKES ARMING A GUIDED MISSILE
> > >
> > > Stan or Joan Snyder wrote:
> > > >
> > > > Dear Kristi: Hi sweetie and thanks for taking the time to research your
> > > > topic-you've certainly found the right place; but i think it's best to
> > > > point out right at the start that there is nothing "cute" at all about
> > > > our disease. i'm not trying to be a jerk hen you're obviously so well
> > > > -intentioned and young and learning about awareness, but I'd like for
> > > > you to think about ha being a mom w/ pd is really like...i have had "a
> > > > muffled voice" for a long time now. My darling daughter who is 12 really
> > > > need me to talk to, but she gets so discouraged by how long it takes me
> > > > to say what is in my heart, that she will stomp away in frustration-not
> > > > at me but at this disease that she hates so much. I don't know which is
> > > > worse, that kind of treatment or my 10 yr. old son crying because I
> > > > never smile anymore although i am smiling inside!! They both don't
> > > > understand the ramifications of this disase-they only know that mom
> > > > can't drive for field trips anymore, can't make all of their games &
> > > > concerts anymore and why we're always the first to leave any function.
> > > > So please, while I know you heart is in the right place-try to put
> > > > yourself in a situation where you have something so very important to
> > > > say but have neither the energy nor the wherewithal to get it out...and
> > > > how hard it is to have people patronizingly smile and say yes, isn't
> > > > that the truth (when you weren't even talking about anything like that)
> > > > and go merrily on their way...as if you we're even there.
> > > > --
> > > > Joan E. Snyder    48/10
> > > > [log in to unmask]
> > > > <http://members.tripod.lycos.nl/genugten/snyder.htm>
> > > > "Hang tough.....no way through it but to do it."
> > > >            Chris-in-the-Morning (Northern Exposure)