thanks barb
a timely reminder for all and sundry
this is such a peculiar medium
i find those little faces and *joke* added to the text help the
understandings too
perhaps william a parrette may have a tongue in cheek design in his
repertoire tee hee
judy


>From: Barbara Patterson <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Welcome to our new members & reminder the rest of us
>Date: Tue, 6 Jun 2000 07:25:24 -0400
>
>I am including the 'welcome' message to our new members & a reminder to
>all members to post messages in plain text only...no attachments.  I
>suggest that members not open attachments due to the number of viruses
>being spread on the internet.  Barb
>
>Welcome!
>
>You have joined the PARKINSN mailing list, also
>known as the Parkinson's Information Exchange
>Network (PIEnet).
>
>Please send a message to the list members (if you
>want to) introducing yourself and any
>Parkinson's-related topics you would like.
>
>Let me introduce myself. I am a secretary for four
>faculty members in the School of Nursing, McMaster
>University.  In September, 1992, I was diagnosed
>as having Parkinson's ... hence my interest in
>this list.
>
>My purpose in starting the list was the exchange
>of information about Parkinson's. The list rapidly
>changed into the largest support group I know.
>Besides its original purpose, the list has become
>'a means of feeling connected' to others... a way
>of feeling we're not alone... of making the road
>of living with pd easier to bear.
>
>I have always felt that we hear each other better
>on the list because we can't  see each other.
>Symptoms, age, colour, race, don't interfere.  The
>list knows no countries, has nothing to do with
>money... there's no "what's in it for me?"
>
>But these same qualities mean our words are open
>to misinterpretation. Since others can't see our
>wry smile or wink or hear our tone of voice, a
>goal of  keeping it "short & sweet" can result in
>appearing abrupt.
>
>Also, the same word can have different meanings
>and different shades of meaning to different
>people in different areas of the world so care
>must be taken in both your writing and your
>reading of the messages.
>
>Flaming and selling are not allowed.  Please send
>messages in plain text only.  Do not make any
>changes in medication or any treatments without
>consulting your physician.  Be kind.  Be honest.
>Share the time fairly.... if you think you have
>taken more than your share of the list resources,
>you just might have.
>
>Keep it generally related to Parkinson's. Don't
>abuse the generosity of the University of
>Toronto's free gift of the list. Don't include all
>of the message to which you are replying. Use
>plain text with no attachments. Wash your hands
>with soap before you eat. :) In other words, use
>the same common courtesy that you would elsewhere.
>
>We need everyone's voices if we are going to make
>a difference in the care and treatment of pd and
>the motivation and funding of research. Speak up.
>Tell your story. Ask your questions. Answer
>questions. Debate/argue about the answers.
>Debate/argue about the goals, administration,
>day-to-day functioning of the list. Tell a joke...
>but please don't attempt to silence anyone else's
>voice.
>
>The messages on the Parkinsn list may be personal
>but they are NOT private... never have been. The
>illusion of privacy when using e-mail is just
>that:  an illusion.
>
>Never, in the history of this planet, has this
>kind of relationship existed. We meet in a place
>that has no walls. We talk to our friends whom we
>have never seen. We care deeply for other members
>whom we will never physically hug. Folks, we're
>making it up as we go along, so any rules have to
>be flexible.
>
>  I hope you enjoy your involvement with the
>Parkinsn Information Exchange Network.
>
>  Barb
>==================================================
>Barbara Patterson   [log in to unmask]
>HSC 2J22                 905-525-9140, ext. 22403
>Secretary                     School of Nursing
>McMaster University      Hamilton, Ontario, Canada
>==================================================
>
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>
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>
>
>============================================================================
>Barbara Patterson
>[log in to unmask]
>HSC 2J22                                        905-525-9140, ext. 22403
>                         School of Nursing
>============================================================================

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