Chuck
I think this sounds like a great idea.  I'd like to see it happen as part of
the "list" so that everyone (even the lurkers) have accsess!?!  Just a
thought.
Kelly in Calgary
----- Original Message -----
From: Charles E Murray <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, June 08, 2000 10:39 AM
Subject: Question about subjects


> I have read the occasional posts of the List purpose, etc., and have no
> quarrel with exchange of information regarding symptoms and treatment
> options, drug side effects, etc., nor with the jokes and casual banter.
> This is family and lightening our mood is always welcome.  That
> said--------------
>
> Sifting through upwards of 50 posts per day,  it seems the focus is so
> heavily oriented to the mechanics of our disease (i.e., how to make our
> bodies function better or what drug will elevate our mood or libido),
> that I feel myself being pulled back to the unrelenting obsession with my
> body that characterized my first six months of mental life after
> diagnosis.  That was not a happy time.
>
> To keep from going back there I need to interact with PWP and CG's who
> want to discuss how they are coping and learning.  In other words,
> feelings, spirituality, how PD is affecting us emotionally.
>
> If someone knows of an online group where such topics are common, please
> pass this information on to me, [log in to unmask]
>
> My last "vulnerable feelings" post received one response (thank's JoAnn),
> leading me to believe that my PD focus is out of step with the majority
> of the group, so if any of you would like to discuss these issues
> (perhaps reluctant to do so on the "big" list), as part of small list of
> PWP and CG's, please post me.  I will create a group list and hopefully
> we can form a small discussion group, utilizing our E Mail program's
> internal list device so that everyone gets copied with shares.  If it
> proves helpful to enough people I understand a list server could be
> acquired at a modest cost.
>
> I would propose that we take turns in choosing a weekly topic to exchange
> views about.  This could be as simple as "Depression," or "Anger" or a
> little more elaborate, such as "What are the positive things PD has
> brought into your life."  An always OK topic would be "How is your NOW,"
> a catch all to allow discussion of today's experience with PD, its
> challenges, absurdities, teaching ability, etc.
>
> If anyone is interested, please advise, and you are welcome to post me
> privately.
>
> Chuck Murray
> [log in to unmask]
>