The other night before going to bed, I sent 3 messages,
in their entirety ,to my dear friend in the NL. I asked his opinion,
and asked him to read the German site, since he is fluent in
Dutch, German, and English, and I believe, is passable in a couple
of other languages too!
He is a fellow "Parkie", with whom I have been friends with
for over 5 years now. The only problem we have ,is he is 7 hours
ahead of me in time, and several light years ahead of me in
research skills.
Please read what Hein Ten Bosch has to say about housing
for Parkies.

>Hein ten Bosch (NL) adds to this discussion:
>The question about need for Parkinson communities worldwide can be answered
>with:" sure, if you look worldwide there are various activities to house
>PD's in
>pleasant surroundings and care giving. In Germany there is at least one,
>the Schneckenhouse
>and in Holland a small group of people try to start a clinic (Stichting
>TULP) with
>amenities for temporary lodging.
>
>I wonder if the people initiating the movie have seem the CD-Rom, issued to
>all Parkies in the UK for free. It might help to see what is done till now
>on movie or picture disk. I copied the details from EPDA Magazine's summer
>edition:
>CD-Rom and a self-care manual for people with Parkinson's disease
>Introduction
>In the UK a self care manual and a CD-Rom are being developed for people
>with PD, their relatives and for professional carers. The manual and the
>CD-Rom are based on a successful self-care manual that is developed in
>co-operation with the Dutch Parkinson's patients Organization, and has been
>used
>Dutch patients and professional carers since 1993.
>
>Contents
>
>Both the manual and the version on CD-Rom give integral information on all
>aspects of' living with PD        - -medical information (causes,
>medicine, operations etc.)
>-alternative therapies
>-psychosocial information (relationships, sexuality, hearing the diagnosis,
>etc.)
>-help with movement
>-exercises
>-tips on daily life
>-diet
>-an outline of professional help
>-work
>-welfare benefits
>-spirituality, etc.
>The information is practical, the information is state of the art and is
>written in a style that is easy to understand. A large number of experts
>have contributed to the contents.
>
>Manual and CD-Rom
>The manual is a book of 225 pages, illustrated, it is meant for people who
>are not familiar with the computer. The CD-Rom contains the same
>information, but also video, animations, sound, music etc. Both the CD-Rom
>and the manual will be for free for patients in the UK.
>
>Co-operation
>The project is conducted by Foundation September, a non-profit organization
>that specializes in international patient information projects. The project
>was funded by the UK government: the NHS Executive West Midlands. Both the
>PDS and the EPDA collaborated intensively.
>
>Future
>The aim is to start a project in which the EPDA and Foundation September
>will develop similar manuals and CD-Roms for other countries in close
>collaboration with national patient organizations.
>
>More information:
>Foundation September Attn. E.H. Coene, MD
>Nieuwspoortkade 2A
>NL-1055 RX Amsterdam, The Netherlands
>tel.: ++31.20,60.60.745
>fax: ++31.20.60.60.798
>e-mail: [log in to unmask]
>
>
>By the way: I have nothing to do with this initiative, I am just
>interested. It's the first time so many millions of Dollars have been given
>away to a so large a PD community!!
>
>Regards
>Hein ten Bosch
*********************************************************************************************Date:
Sat, 22 Jul 2000 15:49:27 -0400

>To: "[log in to unmask]" <[log in to unmask]>,
>        "Marjorie L. Moorefield" <[log in to unmask]>
>
> >Comments: To: [log in to unmask]
>
> >I have been contacting several HMO's in Florida to try to
> >get them to set up something as a respite center for people
> >who really don't need it all the time, but would need it some
> >of the time, maybe a month or two at a time. The HMO
> >would pay for care for a certain length of time, instead of
> >the Nursing Home alternative.
>
> >At 07:32 PM 07/20/2000 +1000, you wrote:
> >>Here in Melbourne.Australia our group of Y.P are suffering a crisis
> >>regarding our future needs regarding accommodation and care in the
> >>foreseeable future.,and I am seeking comments whether this is a common
> >>problem throughout the world,and what steps have been taken to solve
> >>this problem.
>
> >Hello,
> >i am gisela from germany. i also have PD since 1994, the diagnose since
> >1997.
> >the name of the website from the snailhaus is :
> ><http://www.parkinsonweb.com>hermann terweiden has build this house with
> his own hands hand and other
> >helpful hands and there live 5 peoples inside who had PD. it is a
>beautiful
> >house and i often there and help them. our site is
> ><http://www.selbsthilfetreff.net  and we also have a
> mailinglist ><http://www.deupark.de   the owner is dietmar wessel.>
> >gisela