janet, i've had the same experience as you for 15 yrs taking only

eldepryl and sinemet only lately, but the sinemet 1/2 or whole pill

just kills me, (sleepy, woozy)) so i only taake it at night.
\bk 65/15


>From: janet paterson <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: NEWS: Selegiline drug does not increase PD death rate
>Date: Tue, 26 Dec 2000 08:38:32 -0500
>
>hi all
>
>At 19:03 2000/12/25 -0800, murray wrote, in part:
> >American Academy of Neurology...
> >Selegiline drug does not increase Parkinson's death rate...
> >ST. PAUL, MN – Researchers have debated for years whether the drug
> >selegiline increases the risk of death for Parkinson's patients even
> >though others have suggested that the drug may slow the progression
> >of the disease. A new study shows that there is no increased death rate
> >for patients who use the drug in combination with levodopa, the most
> >common drug for Parkinson's. The study is published in the December
> >26 issue of Neurology, the scientific journal of the American Academy
> >of Neurology....
> >"This is exciting news because this drug is the first that showed even
> >the possibility of slowing the course of this disease, not just treating
> >its symptoms," said neurologist William Langston, MD, of The Parkinson's
> >Institute in Sunnyvale, Calif., who co-authored an accompanying
> >editorial on the study. "But when a study came out several years ago
> >reporting that it raised the death rate, near-panic ensued. Even though
> >there were criticisms of that study and other studies failed to confirm
> >the original results, there was a chilling effect on the use of
>selegiline.
> >This study should dispel any remaining doubts." ...
>
>
>i well remember the 'increased death rate' study and the ensuing arguments
>
>the methodology of the study seemed to be so flawed
>that i made my own decision not to worry about it
>then and whenever the subject has come up since
>
>i started on both selegiline and sinemet
>in october 1988 at diagnosis
>and haven't stopped or regretted either since
>
>twelve years since diagnosis
>and fifteen or sixteen years since first symptoms appeared
>i can still manage to function almost symptom free
>for a majority of my time
>[hormone hell days excluded!]
>
>i know we are all different etc etc
>and
>i have no way of 'proving' selegiline has helped me etc. etc.
>but
>Happy Boxing Day, Dr. Langston !!!
>
>janet
>
>janet paterson, an akinetic rigid subtype parkie
>53 now /44 dx cd / 43 onset cd /41 dx pd / 37 onset pd
>TEL: 613 256 8340 SMAIL: POBox 171 Almonte Ontario K0A 1A0 Canada
>EMAIL: [log in to unmask] URL: http://www.geocities.com/janet313/

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