Lorraine,

Thanks for the reply and for the info - very helpful i will definately
contact them .   Diane
----- Original Message -----
From: Lorraine Jeffe <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, February 25, 2001 6:01 PM
Subject: Re: New Parkinsons Patient


> Diane,
> I gather you live in Michigan.You might contact the Michigan Parkinson's
> Foundation.There are support groups all over Michigan. They also will send
you
> some basic information.You might also ask to be put on their mailing list.
Tel.
> 800-852-9781 or 248-433-1011.
>
> Best
>
> Lorraine
>
> DIANE/GREG NICOLAOU wrote:
>
> > Sharon;
> >
> > Very Good info.  Thanks.  I did not have either of the organizations or
> > numbers but have copied this for reference.  I'm still real new at this
so
> > thanks for all the info.
> >
> > DIANE
> > ----- Original Message -----
> > From: Sharon YR Habing <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Sunday, February 25, 2001 5:09 PM
> > Subject: Re: New Parkinsons Patient
> >
> > > Hi Diane,
> > > Welcome to the club!  You've come to the right place to have your
> > > questions answered.  I don't have either of those problems so i can't
> > > help you with that, but I'm sure you'll get lots of response from
others
> > > who know just what your talking about.  If you don't already know
about
> > > the APDA and the NPF, I can tell you how to get info from them.  The
APDA
> > > has a Young Parkinson's Information & Referral Center in Glenview, IL
> > > 800-223-9776 / APDA [log in to unmask] / http://members.aol.com/apdaypd.  Ask
> > > for a copy of the "Young Parkinson's Handbook" and to be put on their
> > > mailing list to receive the"Young Parkinson's Newsletter".  Dr. Rezak,
> > > the medical director, just had a great article in the newsletter about
> > > pain in Parkinson's.  The NPF (800-327-4545) has a lot of literature
> > > including a quarterly booklet - "Parkinson Report", which contains
many
> > > informative  articles. Ask to be put on their mailing list for that.
> > > I  am the facilitator for a Young Parkinson support group so I can
offer
> > > a few suggestions concerning a support group.  First  I would call
both
> > > of those 800 numbers listed above and they can tell you if there is a
> > > support group in your area (affiliated with them).  Our group
splintered
> > > off of a larger group of all ages and stages.   It would be nice if
you
> > > could find a young on-set group, though they tend to be few and far
> > > between.  We have 2 members who drive 1 1/2 to 2 hours to come to our
> > > monthly meetings.    Make up "flyers" and  post  them where ever you
find
> > > a place.  Be sure to put something in your neurologists office.  April
is
> > > Parkinson Awareness Month.  If your not shy perhaps you could have
> > > something put in your local newspaper or on the radio/TV. And here is
> > > something interesting - our mailing list has 26 names on it , but of
> > > those 26, less then half come with any regularity to the meetings. A
few
> > > of them have never been to a meeting, but they all want their names
left
> > > on the mailing list!
> > >
> > > Sharon H