from the newly renovated website
http://www.parkinson.ca/  .

Parkinson ADVISOR
Spring 2001


2001 IS A WATERSHED YEAR in the Canadian Parkinson’s community.

This is the year that groups from across the country will place a priority
on working together to improve the lives of all Canadians with Parkinson’s.

Parkinson’s organizations Canada-wide (see the list below) recently signed
an Agreement that will help these organizations optimize national and local
research initiatives and improve the delivery of quality services to all
people with Parkinson’s disease and their loved ones.

It is not news to anyone that in the past the Parkinson’s community in
Canada has not worked as an efficient collective.

The Agreement addresses this need for greater cohesion and efficiency.

By collaborating, our organizations hope to achieve a number of goals,
namely:

- To move The Parkinson Foundation of Canada (soon to be renamed Parkinson
Society Canada) to the forefront of national health charities;
- To attract more public support for national peer-reviewed research;
- To be taken seriously in our advocacy efforts by federal and provincial
governments and organizations, such as the Canadian Institutes of Health
Research;
- To ensure that all Canadians with Parkinson’s receive a minimum standard
of service;
- To enhance the profile, identity, and awareness of Parkinson’s disease
across Canada;
- To encourage collaborative initiatives among Canadian Parkinson’s
organizations; and
- To assist The Foundation’s regions and divisions to move towards the
desired goal of self-sufficiency.

The future of The Parkinson Foundation of Canada and all the regional
representative organizations has never looked more promising.
In a recent tour of 11 cities across the nation, David Simmonds, our Board
Chair, and I were buoyed by the collective sense of enthusiasm and goodwill
that met us at each stop.

There is a genuine desire to work together to ensure that the needs of
every Canadian with Parkinson’s will be addressed.

The close to 100,000 Canadians with Parkinson’s and all of their loved ones
deserve nothing less.

Mary Jardine
Executive Director
The Parkinson Foundation of Canada


New Name, Renewed Commitment

FOR MORE THAN 35 YEARS, The Parkinson Foundation has served Canadians
living with Parkinson’s.

But at last year’s national strategic planning meeting, delegates came to
the agreement that our organization’s name does not truly reflect what we do.

Traditionally, the primary purpose of a "foundation" is to raise and
administer funds.

In fact, The Parkinson Foundation does far more.

We are committed to providing a variety of services to people who have
Parkinson’s and to their care-givers.

While raising funds for research into the cause and treatment of
Parkinson’s is certainly an important part of our mandate, we also strive
to educate all Canadians about this condition and to advocate on behalf of
our community.

On May 3, 2001, we will officially become Parkinson Society Canada/Société
Parkinson Canada.

On the same day, a new logo will be unveiled at an official ceremony in
Ottawa.

The new name, chosen by consensus from across the country, reflects both
our national identity and our fundamental purpose - that is, a society of
Canadians joined together in the common goal of finding a cure and easing
the burden of people living with Parkinson’s disease.

With Parkinson’s Awareness Month in April, the launch of our new name comes
at an ideal time. New public education materials - including a revised,
state-of-the-art Web site (www.parkinson.ca) - are now in development under
the banner of Parkinson Society Canada/Société Parkinson Canada.

As well, a recently produced video and public service announcement will
help us increase the profile of our organization, recruit volunteers and
encourage financial contributions.

In recent years, Parkinson’s disease has been given a new face, thanks to
public figures such as Michael J. Fox, Muhammad Ali and Pierre Elliot
Trudeau.

Now is our opportunity to take advantage of that enhanced recognition.

Changing our name to Parkinson Society Canada/Société Parkinson Canada is a
small but significant step in that direction.



The latest in News and Information from The Parkinson Foundation of Canada

Working together

Who’s involved - The Parkinson Foundation of Canada (PFC)

- Victoria Epilepsy and Parkinson’s Centre Society
- The B.C. Parkinson’s Disease Association
- The Parkinson’s Society of Alberta
- The Parkinson’s Society of Southern Alberta
- Saskatchewan Parkinson’s Disease Foundation
- All chapters and support groups of PFC in Manitoba
- Parkinson’s Society of Ottawa-Carleton
- Ontario Division of PFC
- Quebec Division of PFC
- Maritime Region of PFC
- Newfoundland and Labrador Region of PFC



Funding the Future

AN IMPORTANT PART of The Parkinson Foundation of Canada’s mandate is to
fund research into the cause of Parkinson’s disease, its cure and treatment.

This year, the Foundation allocated $480,000 in grants and fellowships to
Canadian researchers.

"I’m delighted to announce that The Foundation is able to fund this
important research," says Executive Director Mary Jardine.

"Not only were we able to allocate research funds for the first time in
several years, but we contributed $30,000 more than was originally budgeted."

Researchers from across Canada are invited to submit applications for
grants from The Foundation.

A scientific advisory board comprised of 13 prominent Canadian neurologists
then reviews the research proposals and ranks them according to merit.

The Foundation disperses grants according to this ranking.

The projects funded by these grants represent both basic research into the
cause and cure of Parkinson’s disease as well as clinical research, which
focuses on treatment and improved quality of life for patients.

While the subject matter of these research projects is well beyond the
understanding of the average layperson, it is important to know that
quality work is being done in this country to improve the future for all
people with Parkinson’s.

These grants finance more than research; they fund hope.

The following is a list of the recipients of The Parkinson Foundation of
Canada 2001-2002 grants and fellowships:
- Dr. Paul Albert, University of Ottawa:
Desensitization of dopamine D1 receptors
- Dr. Pierre Blanchet, University of Montreal:
Clinical impact of orphenadrine on the response profile to levodopa in
Parkinson patients
- Dr. Laurie Doering, McMaster University:
Stem cell therapy for Parkinson’s
- Dr. Edward Fon, McGill University:
Role of Parkin-mediated ubiquitination in Parkinson’s disease
- Dr. Theodoor Hagg, Dalhousie University:
Nigrostriatal recovery using PTP inhibitors and neurotrophic factors
- Dr. Wayne Martin and Dr. Marguerite Weiler, University of Alberta:
Freezing of gait in Parkinson’s disease: potential benefit from Botox
injection
- Dr. André Parent, Centre de recherche, Laval University:
Dopamine neurons and fibre path-ways in human basal ganglia
- Dr. Claude Rouillard and Dr. Daniel Levesque, Laval University:
Role of dopamine D1, D3 and serotonin receptors in levodopa-induced
sensitization in an animal model of Parkinson’s disease
- Dr. Jean Saint-Cyr, Dr. Jonathan Dostrovsky and Dr. William Hutchison,
University of Toronto:
Radiological and clinical evaluation of STN DBS
- Dr. Lara Fallon, McGill University:
Neuroscience, cell biology
- Dr. Shigeki Ohta, University of Calgary:
Neural stem cells and brain repair, neural gene discovery
- Dr. Taresa L. Stefurak, University of Toronto,
Neuropsychiatry of Parkinson’s disease, functional neuroimaging


Parkinson Post hiatus

PARKINSON POST, the national magazine of The Parkinson Foundation of
Canada, has temporarily suspended publication.

While the Foundation is committed to publishing Parkinson Post in the
future, the Parkinson Advisor newsletter will fill the breach for at least
the next six months.

If you wish to receive this newsletter, please contact the Society office
at 416-227-9700 or 1-800-565-3000 or e-mail us at [log in to unmask]

Rogers Media, publishers of Parkinson Post, will refund all outstanding
subscriptions.


APRIL IS PARKINSON’S AWARENESS MONTH.

April 22 to 28 is National Volunteer Week.

Easter and Passover are celebrations of renewed hope, as is Spring itself.

What better time to make and keep a promise to do something for others -
and for yourself.

Sometimes the idea of volunteering can be daunting. What can I do?  Where
do I start? Who do I call?

The following list suggests a wide variety of opportunities - big and small
- for you to make a difference in the fight against Parkinson’s disease.

- Call the national office of The Parkinson Foundation of Canada or your
local chapter (see telephone numbers on page 4) and volunteer to sell
tulips for the Society’s annual fundraising campaign.

- Visit your local National Bank and buy a bunch of tulips in support of
The Parkinson Foundation of Canada. Buy two bunches, and give one to
someone you love.

- Keep tulips on your desk at work throughout the month of April. Use them
as an opportunity to edu-cate your co-workers about Parkinson’s disease.

- Read an article about Parkinson’s (check out the Society’s Web site at
www.parkinson.ca) and pass it on to a friend.

- Call your local chapter of The Parkinson Foundation of Canada and
volunteer whatever time you can afford, whether it’s one afternoon to take
registrations at SuperWalk or an hour each week doing office chores.

- Make a donation to The Parkinson Foundation of Canada.

- Consider including a bequest to The Parkinson Foundation of Canada in
your will.

- Call your community newspaper and offer to write a column about
Parkinson’s disease.

- Donate a book about Parkinson’s to a local school, library or long-term
care facility.

- Make a commitment to educate one person about Parkinson’s disease this
month.

- Offer concrete help to someone with Parkinson’s or to a caregiver: cook a
meal, drive them to a support group meeting, mow their lawn.

- Ask a friend to go for a walk. Use your outing as a springboard to plan
your participation in SuperWalk in September.

- Thank a volunteer for making a positive difference in your life.


April - Your month to take action

A NEW AWARD HAS RECENTLY BEEN created to celebrate individuals who make
life better for Canadians with Parkinson’s disease.

The Dr. Morton Shulman Award is a memorial for the renowned Toronto
physician who served his community as both a member of the Ontario
Legislature and as the city’s Chief Coroner.

Dr. Shulman, who had Parkinson’s disease, was a significant benefactor to
The Parkinson Foundation of Canada and was instrumental in bringing the
Parkinson’s medication Deprenyl to Canada.

Dr. Shulman died last year at the age of 75.

An award committee, consisting of Dr. Shulman’s daughter Dianne Saxe,
Toronto neurologist Dr. Tony Lang, and Foundation Chair David Sim-monds,
Vice Chair Meredith Saunderson and Executive Director Mary Jardine, will
review nominations of candidates to receive the award.

Specifically, the award will be conferred on "a person who, through
fearless advocacy and an ability to make change, has clearly made life
better for Canadians with Parkinson’s and their families".

For more details about the Dr. Morton Shulman Award, contact Maryann
Istiloglu at The Parkin-sonFoundation of Canada, 1-800-565-3000.


Celebrating Parkinson Heroes



The Parkinson Foundation of Canada
Toll-free: 1-800-565-3000
Tel: (416) 227-9700
British Columbia
Victoria Epilepsy and Parkinson’s Centre
Tel: (250) 475-6677
B.C. Parkinson’s Disease Association
Toll-free (B.C. only): 1-800-668-3330
Tel: (604) 662-3240
Alberta
Parkinson’s Society of Alberta
Toll-free: 1-888-873-8901
Tel: (780) 482-8993
Parkinson Society of Southern Alberta
Toll-free (AB only): 1-800-561-1911
Tel: (403) 243-9901
Saskatchewan
Saskatchewan Parkinson’s Disease
Foundation
Tel: (306) 966-8160
Manitoba
Parkinson Foundation of Canada
Toll-free: 1-800-565-3000
Ontario
Central and Northern Ontario
Toll-free: 1-800-565-3000
Tel: (416) 227-9700
Ottawa Region:
Parkinson’s Society of Ottawa-Carleton
Tel: (613) 722-9238
Southwestern Ontario
Toll-free (ON only): 1-888-851-7376
Tel: (519) 680-0430
Quebec
Quebec Division
Toll-free: 1-800-720-1307
Tel: (514) 861-4422
Maritimes
Maritime Division
Toll-free (NB, NS, PEI only): 1-800-663-2468
Tel: (902) 422-3656
Newfoundland and Labrador
Newfoundland and Labrador Division
Toll-free (NFLD only):
1-800-567-7020
Tel: (709) 754-4428

Be sure to visit our newly updated Web site at:
www.parkinson.ca

janet paterson, an akinetic rigid subtype, albeit perky, parky
PD: 54/41/37 CD: 54/44/43 TEL: 613 256 8340 EMAIL: [log in to unmask]
"a new voice" home page: http://www.geocities.com/janet313/     .
"new voice news" latest posts: http://groups.yahoo.com/group/nvnNET/     .

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn