At 01:25 2001/05/18 -0700, mary yost wrote:
>Message from PAN:
>
>The Parkinson's Action Network announces that the Eighth Public Policy
>Forum will be postponed until March 2002
>
>The Parkinson's Action Network (PAN) has decided to postpone the Eighth
>Public Policy Forum until March of 2002.  We appreciate the interest that
>advocates have shown in this year's Forum and we apologize for any
>inconvenience that this date change may cause.  PAN made this decision  in
>our effort to improve our quality of services that we provide to the
>Parkinson's community.
>
>This is a very exciting time for PAN.  As a result, however, it is also a
>time of enormous change and activity.  Here are some of the big changes
>that are occurring:
>
>-- We are in the process of establishing our new headquarters in the
>Washington DC area.
>
>-- We have hired a new Executive Director to manage PAN's day-to-day
>operations.
>
>-- We are changing and strengthening the staff in order to better
>communicate PAN's message to the Hill, the Executive Branch, the advocacy
>community and the public.
>
>-- We are about to undertake a regular electronic newsletter and are
>gearing up for that.
>
>-- We are working to build a truly effective grassroots advocacy operations
>so that PAN can communicate with you faster and smarter for your voice to
>be heard in Washington with more regularity.
>
>Under the new configuration, Joan Samuelson continues to serve as
>President, and as our chief policy architect.  In addition to our new
>Executive Director, Elisabeth Bresee, we have hired a terrific new staff.
>They are all dedicated to our cause and bring a great deal of energy and
>commitment to our mission.  On the advocacy front, John Rogers is our
>Advocacy Director and Laura Lytle Eckart is our new Advocacy Associate,
>replacing Mike Claeys.  Both John and Laura have excellent prior experience
>working on Capitol Hill.
>
>In addition to establishing our new headquarters, we have been extremely
>busy working on the 2002 Appropriations Bill -- in particular to ensure
>that the NIH budget is in fact doubled within five years, for a total of
>$3.4 billion in FY 2002.  And that the NIH's increase for FY 2002 includes
>an increase of $143.5 million for PD research, as called for in the NIH's
>five-year plan.  We are also taking the lead on the stem cell battle.  Our
>Advocacy Director serves on the Board of the newly created entity, the
>Coalition for the Advancement of Medical Research (CAMR).  This Coalition
>has over fifty members, made up of advocacy groups, universities, and
>scientists all fighting to ensure that embryonic stem cells are available
>for scientific research.  To learn more about CAMR, go to their web site
>at:  www.stemcellfunding.org.
>
>Moving the Forum to next March will allow us to continue to push the PD
>policy agenda while fully establishing our new headquarters.  With a little
>additional time, we believe we can put on a truly informative and
>worthwhile Forum.  In addition, the March time frame works very well with
>the appropriations schedule on Capitol Hill.  We would, however, like to
>invite any interested advocates to come to Washington and we will
>facilitate meetings with your representative to put a face on Parkinson's
>disease.  We invite you to visit our new headquarters and we look forward
>to seeing you in March.  In addition, we are exploring options for uniting
>the Parkinson's community in the early Fall.

janet paterson: an akinetic rigid subtype, albeit perky, parky .
pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] .
a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ .
a new voice: the bbbook: http://www.geocities.com/janet313/wordbook/ .
a new voice: the wwweb site: http://www.geocities.com/janet313/ .

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