Hi  Joan,

I have had experiences with PAXIL. Have been taking it for about
2 months and I can say that it has done me a world of good.
I am also taking domperidone - wonder why your MDS took it away - . Had no
luck with the agonists, strictly on Sinemet.

Mario


----- Original Message -----
From: "joan carol urquhart" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, July 14, 2001 8:19 AM
Subject: Our first MDS visit


> Goodmorning,
>
> Last week I asked the list for advice
> regarding a first time visit to a Movement Disorder Specialist.
> Last Wed. during our visit, we found discernable differences
> between the MDS neurologist and the other neurologists we've seen.
> One of the MDS's FIRST insights about my mother
> (who is 80/  pd for 10 years)
> was that she was visibly depressed, "more depressed than you realize".
> She also told us that most pd patients who come to her
> are over-medicated.
> Happily for us, she took my mother off of her agonist (miripex),
> off domperidone and coalesce,
> increased her daily simemet slightly
> and prescribed paxil, an anti-depressant.
> (Does anyone have experience with paxil?)
> She recommended tai chi
> (why has no other neurologist recommended exercise?).
> and her nurse gave us a computer printout of the doctor's suggestions
> at the end of the visit.  We never felt rushed nor ignored.
>
> I am writing to highly recommend seeing an MDS
> for medical suppport with pd, for those who haven't  yet.
> But check with your regular neurologist and family doctor
> a few days in advance of the visit
> to insure that your paper records are forwarded.
> In our case, they hadn't been sent.
>
> To the one person who took the time to answer my question on-list
> out of a membership list of 2000, amidst the flurry of postings about list
> content,
> thanks again Murray for your advice.
> To others who post everything from hard core pd info,
> to computer nurd info, to poetry and info about depression,
> I say thank you all: all of it adds to a portrait of pd that may trigger
> insight.
> For those who object, lets attend to the message headers,
> posting accurate message titles with pd/non-pd designations
> rather than censuring the human side of pd.
>
> Joan
> (in sunny Ontario
> where 2.5 minutes of delete time per day
> is a small price to pay for membership in a worldwide pd community)
>
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