hi all

there were some questions as to why i posted the following message
on the 4th of september

i re-subscribed to parkinsn after a one month sabbatical
and received this confirmation message as the only info for a new subscriber
from barb patterson the list-owner

i assume therefore that the direction of the list
has resumed its normal sane and accepting self and
congratulate barb on her sensitive choice of words

here's to tolerance and sharing!
and
here's to support and awareness for PD and PARKIES everywhere!

please note that my website (url in my signature below)
was dedicated to barb patterson and this listserv in may 1999
and will remain so


janet


>Date: Tue, 4 Sep 2001 10:27:02 -0400
>From: [log in to unmask]
>Subj: You are now subscribed to the PARKINSN list
>To:   Janet Paterson <[log in to unmask]>
>
>Your subscription to the  PARKINSN list (Parkinson's Information Exchange
>Network) has been accepted.
>
>Welcome! You  have joined the  PARKINSN mailing  list, also known  as the
>Parkinson's Information Exchange Network (PIEnet).
>
>Please send  a message to the  list members (if you  want to) introducing
>yourself,   perhaps   telling   us   how    you   found   us,   and   any
>Parkinson's-related topics you would like.
>
>The     address    for     posting    messages     to    Parkinsn     is:
>[log in to unmask]
>
>Let me introduce myself. I am a secretary for four faculty members in the
>School  of  Nursing,  McMaster  University. In  September,  1992,  I  was
>diagnosed as having Parkinson's ... hence my interest in this list.
>
>My purpose  in starting the  list was  the exchange of  information about
>Parkinson's. The  list rapidly changed  into the largest support  group I
>know.  Besides its  original purpose,  the list  has become  'a means  of
>feeling connected'  to others... a way  of feeling we're not  alone... of
>making the road of living with pd easier to bear.
>
>I have always felt that we hear  each other better on the list because we
>can't see each  other. Symptoms, age, colour, race,  don't interfere. The
>list  knows no  countries, has  nothing to  do with  money... there's  no
>"what's in it for me?"
>
>But these  same qualities mean  our words are open  to misinterpretation.
>Since others can't see our wry smile or wink or hear our tone of voice, a
>goal of keeping it "short & sweet" can result in appearing abrupt.
>
>Also, the same  word can have different meanings and  different shades of
>meaning to different people in different  areas of the world so care must
>be taken in both your writing and your reading of the messages.
>
>Flaming and selling  are not allowed. Please send messages  in plain text
>only. Do  not make any  changes in  medication or any  treatments without
>consulting your physician. Be kind.  Be honest. Share the time fairly....
>if you think you  have taken more than your share  of the list resources,
>you just might have.
>
>Keep it generally  related to Parkinson's. Don't abuse  the generosity of
>the University of  Toronto's free gift of the list.  Don't include all of
>the  message  to  which  you  are   replying.  Use  plain  text  with  no
>attachments. Wash your hands with soap before you eat. :) In other words,
>use the same common courtesy that you would elsewhere.
>
>We need  everyone's voices if  we are going to  make a difference  in the
>care and  treatment of  pd and  the motivation  and funding  of research.
>Speak  up.  Tell  your  story.  Ask  your  questions.  Answer  questions.
>Debate/argue   about  the   answers.   Debate/argue   about  the   goals,
>administration, day-to-day  functioning of the  list. Tell a  joke... but
>please don't attempt to silence anyone else's voice.
>
>The  messages on  the Parkinsn  list  may be  personal but  they are  NOT
>private... never have been. The illusion  of privacy when using e-mail is
>just that: an illusion.
>
>Never,  in the  history of  this planet,  has this  kind of  relationship
>existed. We  meet in a place  that has no  walls. We talk to  our friends
>whom we have  never seen. We care  deeply for other members  whom we will
>never physically hug.  Folks, we're making it  up as we go  along, so any
>rules have  to be  flexible. Our  Parkinsn Guidelines  can be  viewed at:
>http://parkinsons-information-exchange-network-online.com/parkinsn.html
>
>If  you  wish  to  view  Parkinsn  messages online  you  may  do  so  at:
>http://parkinsons-information-exchange-network-online.com/maillist.html
>
>I hope you enjoy your  involvement with the Parkinsn Information Exchange
>Network.
>
>Barbara Patterson Owner Parkinsn John Cottingham co-owner Parkinsn
>
>Please save this message for future  reference, especially if this is the
>first time you are subscribing to an electronic mailing list. If you ever
>need to leave  the list, you will find the  necessary instructions below.
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>
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>([log in to unmask]) is  also called  the "list  address." You
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>voice line to  allow the FAX to  go through and make the  calls stop does
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>People would just get mad at you.  It works pretty much the same way with
>mailing  lists, with  the difference  that  you are  calling hundreds  or
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>After a while  you may find that this is  getting annoying, especially if
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>informs you that new  mail has arrived from PARKINSN. If  you send a "SET
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>acknowledgement  instead,  which  will  look different  in  your  mailbox
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>acknowledgements completely with "SET PARKINSN NOACK NOREPRO".
>
>Following  instructions from  the list  owner, your  subscription options
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>
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>
>This  list is  available  in digest  form.  If you  wish  to receive  the
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>
>More  information on  LISTSERV  commands  can be  found  in the  LISTSERV
>reference  card, which  you can  retrieve  by sending  an "INFO  REFCARD"
>command to [log in to unmask]

janet paterson: an akinetic rigid subtype, albeit perky, parky .
pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email: [log in to unmask] .
smail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A 1A0 .
a new voice: the nnnewsletter: http://groups.yahoo.com/group/janet313/ .
a new voice: the wwweb site: http://www.geocities.com/janet313/ .

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