Dear Jim,

I am a relatively new member of this list and I am not sure of the rules or etiquette of this club. Your letter inspired me to write to you because I felt you have experience which I would like to hear about a bit more. I am 53 year old male married. I have a great wife Christine whom I met 5 years ago just a few months before I was diagnosed almost 4 years ago. We live in Manchester England. Since being diagnosed I have gone from 3 Sinemet tablets per day to 5 doses of 25/100 plus 5 doses of Pergolide (1mg each ie 5mg per day) I am finding this is not enough my on off periods become more frequent and I feel that already I am beginning to want a 6th dose. Where will this end?  

I am beginning to experience intense anxiety and poor sleep at night due to the medication. Could we exchange emails privately is that allowed? I am interested in your DBS experience , does it preclude the stem cell transplant "cure" I mean does this in any way damage your chance of benefiting from future developments. What kind of PD were/ are you suffering? Mine is the rigidity kind Is DBS suitable for this kind of PD? Following DBS how has it changed your life? I would love to question you in more detail. If anyone else has any experiences which might be of help please respond.

I think this list is excellent, it is really nice to hear from fellow travellers - makes me feel I am not alone. My wife is also beginning to find the letters of interest.

Shekhar
----- Original Message -----
From: Jim Stinson
Sent: 03 February 2002 17:49
To: [log in to unmask]
Subject:  

janice, hello again. sounds like your lifestyle is neat and you sound as if
you are handling the problem well.
i live on the chatttahooche river in salem al. i have water on 3 sides of me
and i love it here. i am also 54 yrs old and have a wife who is grreat. she
stuck by me through some rough times. the dbs surgery i received absolutely
changed my life. i went from taking 1 1/4 sinemet tabletsevery hour to none.
at the present i am off of all meds and have been since the "deep brain
stimulator " surgery.i now go out and ride the waverunners and boats without
any problems(a little cold right now).speaking of the weather ,it was great
up until last week- 75 and 78 degrees but it dropped to a high of 60 and
upper 50's a couple of days ago.
what kind offv vegetables do you grow?
well,  i 'd best go and get ready ---- we're going to my brothers' house to
watch the super bowl.
hope to hear from you soon              jim

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