I have been waiting for six weeks to hear from Dr. Lang.  If I do not
hear within a week or so, I may hve to contact Dr. Jog at Western in London.
    Thanks for the suggestion.
Raj
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*************
----- Original Message -----
From: "Emily and Julian Brinac" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, May 18, 2002 9:35 AM
Subject: Re: Introducing myself


> Hi "Brightline"
> I hope you will find more answers with dr Lang. If you do not like the
> clinic, you may want to go to Western University hospital clinic in
> London. Their movement specialist is dr. Jog.
> Emily
> ----- Original Message -----
> From: "Brightline" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Friday, May 17, 2002 7:44 PM
> Subject: Introducing myself
>
>
> > Dear Friends:
> >     I am not new, but I have not been very actively involved so far,
> except
> > sending a couple of comments once in a while. I am 68, running on 69.
> I am
> > an officially  retired, but very much active,  profesor and my area of
> > research was and is cancer.  I have been having what everybody thought
> was
> > ET (action tremor) since my teen age days.  But, come to think of it,
> I had
> > a slight facial mask from my twenties or thirties.  I recollect in
> 1972-73,
> > some of my close friends use to tell me:  "You have a nice smile and a
> good
> > heart.  Why don't you use them to your advantage, instead of putting
> up a
> > sorrow face all the time?"  I am not sure if I had an early onset PD
> with
> > very little true PD symptoms (no resting tremor, posturl instability,
> > drooling etc.)  As a hind sight,  I am sure it might be true.
> >     In 1998 (at my 65th year), when I was lecturing in my class, I
> noticed a
> > slight, occasional slurring of my speech.  I did not even dream of PD
> in
> > thse days.  Then, I started noticing my right arm did not swing as
> good as
> > my left.  My action tremor in my right hand became very highly visible
> and I
> > began to notice by 2000 my right leg was doing the same in synch with
> my
> > right leg, when I did smething with my right hand fingers.  Buttoning
> my
> > shirts takes a lot more time.  By the end of 2001, I could not
> reproduce my
> > signature;  however my handwriting did not become tinies andtiniesas
> it
> > should be for PD; simplyh I cannot right one word without my hand
> running
> > crazy all over the place.  I was lucky I knew typing.  Even that
> becomes
> > very difficult now days, since a couple of my fingers would not want
> to bend
> > when I type some letters!
> >     By the year 2000, I was convinced some thing strange was going on
> There
> > fore I saw a neurologist.  She told me I ws having ET and not PD.
> Then I
> > went and saw the only local Movement Disorder Specialist who thought
> tht I
> > was developing PD on top of my ET.  I went through the initial phase
> of
> > denial and sought a second opinion from another MDS at Bethesda
> Univesity
> > Hospital.  She assured me that I did not have PD and prescribed
> Propranalol.
> > When my lo al MDS heard this, he refused to see me!  Propranalol had
> only
> > transient effect on my tremor; soon I started developing high blood
> pressure
> > (this is a beta blocker and is not supposed to do this!), increase in
> weight
> > and blood sugar, and lethargy and low pulse rate.  I stopped taking
> > Propranalol; I lost my gained weight, blood sugar became normal,
> normal
> > pulse rate, and my action tremor was getting worse.  I have developed
> mild
> > postural instability and occasinal drooling, along with sightly
> progressed
> > speech slurring.
> >     I saw another neurologist who prescribed sinemet CR, which I have
> not
> > yet started taking.  In the meanwhile, the news about mirapex and
> requip
> > delaying the progression of PD.  I am wondering if I should see
> another MDS.
> > I am waiting to get an appointment with Dr. Tony Lang in Toronto.
> >     More about me later.
> >     Raj
> >     [log in to unmask]
> >
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> >
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