Yes,, it stiill is in the directions, but when the professional couldn't
make the radio work on the right side, I figured there wasn't much hope for
me and didn't try it.  Joan
----- Original Message -----
From: "P&B Fahr" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, July 01, 2002 2:54 PM
Subject: Re: Bilateral DBS


> Joan,
>
> Have you tried the AM radio test that is in the instructions (at
> least used to be) for the generator to tell if the units are on
> or off?  It is by no means perfect but much better than nothing
> at all.
>
> Paul
>
> ----- Original Message -----
> From: "Joan Holliday" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Monday, July 01, 2002 7:55 AM
> Subject: Re: Bilateral DBS
>
>
> I'm probably jumping the gun here as I just had my DBS (both
> sides at once)
> in May and June of this year and have only had one session since
> trying to
> get adjusted.   I don't see the doctor/adjuster until the middle
> of July.  I
> haven't noticed any hand improvement (still can't write, cut
> food, or sew}
> but am walking without freezing and getting out of chairs w/o a
> tug. At the
> visit where they first turned me on they chose not to reduce the
> drugs so
> I'm struggling with the jerks which I hate.  I decided to
> gradually reduce
> my dosage of sinemet and permax but haven't found the magic
> combination yet.
> I haven't experimented with turning either generator on and
> off--in fact I'm
> not sure when they are on except I can walk better with them on
> and they
> told me to leave them on so I assume they are still working.   I
> don't have
> the instrument which  tells you whether you are on or off because
> I didn't
> want to spend the $2,000.  I have been struggling with this crazy
> disease
> since 1977 and have spent a substantial sum of money attempting
> to control
> it.  DBS was my last hurrah.
>
> Good luck to all of you.   Joan
>
>
> ----- Original Message -----
> From: "RON HEIMBACK" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Sunday, June 30, 2002 10:49 PM
> Subject: Bilateral DBS
>
>
> > My wife had DBS in April and March, 2002.  The first operation
> provided
> > wonderful relief, however the second did not.  We recently
> tried turning
> > off her second stimulator with great success.  She is able to
> live a
> > normal life now.  We only turn on the second stimulator when
> the tremor
> > in her leg bothers her.  This is only turned on for a short
> time [15
> > minutes or so] occasionally as this stimulation disturbs her
> balance and
> > ability to walk.  Has anyone else had a similar experience?
> > Ron
> >
> > ---------------------------------------------------------------
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