Paul--Thank you for the advice about the radio. I haven't  been to Wal-Mart
yet.  It's been too hot to budge and I was very slow in getting your message
as I had a sick computer  (it wasn't a virus).  I hope to get to the store
next weekend and will certainly try out your suggestions.  Thanks again.
Joan
          [log in to unmask]

 ---- Original Message -----
From: "P&B Fahr" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, July 02, 2002 11:28 AM
Subject: Re: Bilateral DBS


> Joan,
> Remember this --- it has to be a REALLY CHEAP radio --- the ones
> that cost $5 or less as Wal-Mart.  A good radio will cut out the
> static.
>
> Also --- some settings create more static than others.  Some will
> create a virtual roar on the radio and others may be quite faint.
> Hold the radio to the wire behind your ear or on top of your head
> and tune it until you get static.  Also move the radio around if
> you have difficulty until you find where the internal antenna is
> located.
>
> Paul
>
>
> ----- Original Message -----
> From: "Joan Holliday" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Monday, July 01, 2002 6:07 PM
> Subject: Re: Bilateral DBS
>
>
> Yes,, it stiill is in the directions, but when the professional
> couldn't
> make the radio work on the right side, I figured there wasn't
> much hope for
> me and didn't try it.  Joan
> ----- Original Message -----
> From: "P&B Fahr" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Monday, July 01, 2002 2:54 PM
> Subject: Re: Bilateral DBS
>
>
> > Joan,
> >
> > Have you tried the AM radio test that is in the instructions
> (at
> > least used to be) for the generator to tell if the units are on
> > or off?  It is by no means perfect but much better than nothing
> > at all.
> >
> > Paul
> >
> > ----- Original Message -----
> > From: "Joan Holliday" <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Monday, July 01, 2002 7:55 AM
> > Subject: Re: Bilateral DBS
> >
> >
> > I'm probably jumping the gun here as I just had my DBS (both
> > sides at once)
> > in May and June of this year and have only had one session
> since
> > trying to
> > get adjusted.   I don't see the doctor/adjuster until the
> middle
> > of July.  I
> > haven't noticed any hand improvement (still can't write, cut
> > food, or sew}
> > but am walking without freezing and getting out of chairs w/o a
> > tug. At the
> > visit where they first turned me on they chose not to reduce
> the
> > drugs so
> > I'm struggling with the jerks which I hate.  I decided to
> > gradually reduce
> > my dosage of sinemet and permax but haven't found the magic
> > combination yet.
> > I haven't experimented with turning either generator on and
> > off--in fact I'm
> > not sure when they are on except I can walk better with them on
> > and they
> > told me to leave them on so I assume they are still working.
> I
> > don't have
> > the instrument which  tells you whether you are on or off
> because
> > I didn't
> > want to spend the $2,000.  I have been struggling with this
> crazy
> > disease
> > since 1977 and have spent a substantial sum of money attempting
> > to control
> > it.  DBS was my last hurrah.
> >
> > Good luck to all of you.   Joan
> >
> >
> > ----- Original Message -----
> > From: "RON HEIMBACK" <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Sunday, June 30, 2002 10:49 PM
> > Subject: Bilateral DBS
> >
> >
> > > My wife had DBS in April and March, 2002.  The first
> operation
> > provided
> > > wonderful relief, however the second did not.  We recently
> > tried turning
> > > off her second stimulator with great success.  She is able to
> > live a
> > > normal life now.  We only turn on the second stimulator when
> > the tremor
> > > in her leg bothers her.  This is only turned on for a short
> > time [15
> > > minutes or so] occasionally as this stimulation disturbs her
> > balance and
> > > ability to walk.  Has anyone else had a similar experience?
> > > Ron
> > >
> >
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> > >
> > >
> >
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