Maggie Mauney wrote:
> Thanks to all of you who replied to my recent email to the list. I'm still
> trying to come to terms with my diagnosis, and was only diagnosed last week,
> so I have many questions on what my future holds.
>
> I'm 52 years old, and am in terrible health--I'm diabetic, have had 3 heart
> attacks, have severe osteoporosis, and now PD; I guess I'm expecting to die
> suddenly any minute now.
>
> I still have to try to work, since I've been told I don't qualify for
> disability until I'm unable to work for 12 months. I'm a cashier at a
> grocery chain, and the tremors and difficulty walking are definitely
> interfering with my work. I live alone in the country--driving is difficult
> now--I have problems getting into and out of the car, and if I drive for a
> good while, I get dizzy and disoriented. My family is not nearby, and it's
> difficult for any of them to understand my limitations and my fears.
>
> I do, however, live just a few minutes from Duke University Medical Center,
> and from University of North Carolina Hospitals, so I have a good referral
> network close by. I want to learn more about what to expect, and will be
> following the posts on the list to get some suggestions about how to manage
> better. I will probably buy a cane to use for walking--with my severe
> osteoporosis, I worry about breaking bones when I fall. I will try to
> discuss my concerns with my neurologist--though he has a very hectic
> practice and is always quite rushed.
>
> Thanks for the links for more information. I will definitely check them
> out.
>
> Maggie Mauney
Dear Maggie,
With diabetes, heart disease, osteoporosis, and PD, you have very real
concerns, and if your doctor hasn't already done so, s/he should refer
you to a registered dietitian for medical nutrition therapy.
You may qualify for disability -- a gentleman with PD has generously
compiled information regarding SSDI for people with PD on his website:
Parkinson's, SSDI, and you: Social Security Links with the Person with
Parkinson's in Mind
http://users.adelphia.net/~firingpin/ssdi.html
For faster loading, click on the little white "building icon." On the
next screen, some browsers may show a vertical row of "red lights" with
text next to them; other browsers may show the text farther down the
screen; be sure to scroll to the bottom of the screen.
I would certainly consider this, and would also ask other listmembers
about their experiences -- some have been very successful!
If you are near Raleigh, here is the name of a dietitian who will work
with people who have PD, and I have promised to help her at need:
Barbara Ann Hughes, PhD,RD,LDN,FADA
4208 Galax Dr.
Raleigh, NC 27612-3714
919 787-2949
Best regards,
Kathrynne
--
Kathrynne Holden, MS, RD
"Ask the Parkinson Dietitian" http://www.parkinson.org/
"Eat well, stay well with Parkinson's disease"
"Parkinson's disease: Guidelines for Medical Nutrition Therapy"
http://www.nutritionucanlivewith.com/
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