In a message dated 4/16/03 9:09:27 AM Eastern Daylight Time, Cureparkinsons
writes:


> Subj:Re: Parkinson Awareness Pin / pd orgs AND MORE
> Date:4/16/03 9:09:27 AM Eastern Daylight Time
> From:<A HREF="mailto:Cureparkinsons">Cureparkinsons</A>
> To:<A HREF="mailto:[log in to unmask]">[log in to unmask]</A>
> CC:<A HREF="mailto:[log in to unmask]">[log in to unmask]</A>, <A HREF="mailto:Frenchy30">Frenchy30</A>
>
>
>
> Good morning everyone,
>
> Thank you Janet, for reinforcing the messages below!  And thank you, Fran
> Landes, my sister, diagnosed with Parkinson's, 5 years ago, in her
> mid-forties, for calling me this morning, and holding my feet to the fire,
> to fine-tune what we'll cover on the radio show today at 10:30 a.m.  Fran
> keeps me focused. I love you, Fran.
>
> I have half an hour until I leave for the studio.  Hope you can all tune in
> to listen. This show is for you.  In South Florida, 1470 AM radio. Anywhere
> else in the world, www.WNNHealthTalkRadio.com. Click on LISTEN-LIVE.
>
> Alison Landes
> Take Charge! Cure Parkinson's, Inc.
>
> In a message dated 4/15/03 10:38:00 PM Eastern Daylight Time,
> [log in to unmask] writes:
>
>
> >> Subj:Re: Parkinson Awareness Pin / pd orgs AND MORE
>> Date:4/15/03 10:38:00 PM Eastern Daylight Time
>> From:<A HREF="mailto:[log in to unmask]">[log in to unmask]</A>
>> Reply-to:<A HREF="mailto:[log in to unmask]">[log in to unmask]</A>
>> To:<A HREF="mailto:[log in to unmask]">[log in to unmask]</A>
>> Sent from the Internet
>>
>>
>>
>> hi all
>>
>> alison wrote, in whole:
>> >Hi Janet,
>> >Glad to see that on-line communications is working and supportive of
>> efforts
>> >to have grassroots voices heard.  Several people from Take Charge! Cure
>> >Parkinson's (TCCP) had the opportunity this past month to meet meet with
>> Tom
>> >Berdine, president of Young Onset Parkinson's Association at a meeting we
>> >hosted in Boca Raton.
>> >
>> >Paula Wittekind, also invited, joined us for a 3-day marathon session,
>> the
>> >end of which resulted in our inviting YOPA to partner with us on our
>> project,
>> >"With Parkinson's, Don't Order the Soup," several years in the making.
>> The
>> >details of what will be a traveling art-poetry exhibit, co-created by two
>> >people with Parkinson's, Bill Harrington, poet, 46, diagnosed at 29, and
>> >Lillian Dyck, artist, 68, diagnosed at 49, can be found on our site at
>> >www.cureparkinsons.org.
>> >
>> >We're delighted to be working with Tom Berdine and YOPA.  He will be
>> joining
>> >us as a special guest via telephone interview tomorrow on a radio program
>> >airing live from South Florida on 1470 AM radio and accessible world-wide
>> via
>> >the Internet, Wednesday April 16, 10:30 a.m. to 11:00 a.m. EST (Florida,
>> USA)
>> >time, at www.WNNHealthTalkRadio.com.  The show is called Good Work and
>> we've
>> >arranged for a special part 2 of the program on Wednesday as the show
>> usually
>> > airs on Fridays.
>> >
>> >Mayor Steve Abrams of Boca Raton will be with us, live, in the studio,
>> along
>> >with Joel Wilson, age 55, diagnosed at 49.  Joel, a successful business
>> man,
>> >had to scale back his businesses and basically retire from the stressful
>> and
>> >demanding schedule due to his Parkinson's symptoms.
>> >
>> >Other guests interviewed via telephone include former Attorney General
>> Janet
>> >Reno, Dr. Diane Murphy, the director of Neurodegenerative Cluster at
>> NINDS,
>> >Bill Harrington, the talented poet, whom many of you know as
>> >[log in to unmask] (bill harrington), myself, and of course the
>> hosts,
>> >Joy Siegel, Cliff Weidberg and Ron Hersey.
>> >
>> >I hope many of you will join us tomorrow morning to hear about the launch
>> of
>> >two national and international events each of which welcomes your
>> >participation. First, is the exciting national touring art-poetry
>> exhibit,
>> >"With Parkinson's, Don't Order the Soup," and second, is Take Charge with
>> >Tulips ~ Plant a Garden of Hope.   Details for both are on our site.  We
>> will
>> >be launching this event with Mayor Steve Abrams, in the studio, tomorrow.
>> >Tune in for details about how your city can participate.
>> >
>> >Sincerely,
>> >Alison Landes
>> >Founder/ Chair
>> >Take Charge! Cure Parkinson's, Inc.
>> >1489 W. Palmetto Park Road  Suite 442
>> >Boca Raton, Florida  33486
>> >Tel: 561.620.1970  Fax: 561.395.8424
>> >E-Mail: [log in to unmask]
>> >Web site: www.cureparkinsons.org
>>
>> alison
>>
>> it's great to hear about your efforts on behalf of all of us!
>>
>> soup and tulips sound like a grand combination to me.
>>
>> and it's good to hear that a former pienet listmember,
>> bill harrington, is managing to stay out of trouble!
>>
>> i wish you all the best with your broadcasts;
>> unfortunately my antique 486 pc won't co-operate
>> so i may have to rely on reports by others
>> ( ... and maybe transcripts? ...)
>>
>> yrs in parkiness
>>
>> janet
>>
>> janet paterson: an akinetic rigid subtype, albeit primarily perky, parky
>> pd: 56-41-37 cd: 56-44-43 tel: 613-256-8340 email: [log in to unmask]
>> my newsletter: http://groups.yahoo.com/group/newvoicenews/
>> my website: http://www.geocities.com/janet313/
>>
>


Alison Landes
Founder/ Chair
Take Charge! Cure Parkinson's, Inc.
1489 W. Palmetto Park Road  Suite 442
Boca Raton, Florida  33486
Tel: 561.620.1970  Fax: 561.395.8424
E-Mail: [log in to unmask]
Web site: www.cureparkinsons.org

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