Dear Barbara,

Fatigue is part the disease. All though I found that mine was worse when I
was on meds. (Sinemet and Artane) there maybe some evidence that the
fatigue is also worse for some DBS patients. I have found that Provigil
works well to reduce sleepiness, and increase   my attention span. I have
also found I'm more socially engaged when on Provigil also. It's hard to
get a proscription plan to pay for it as it is an off label proscription
for Parkinson's. If you decide to ask your Doctor be sure and get a note
from him as to why he is proscribing this med.

Sincerely
Chris





At 06:11 AM 9/18/2004 -0500, you wrote:
>My husband was dxed in May with PD.  He had symptoms for about 2 years
>before we got it diagnosed even though he say several drs and had numbers
>of tests. He is on sinemet and requip.  He is still in the adjusting
>process on the requip.   He has very little energy and thinks the requip
>is making it worse. Is this possible?  We are starting CoQ10 this
>week.  Will this help with energy?
>
>His symptoms are drop foot, a slight occasional tremor in his hand and
>extreme loss of energy. Some days he can barely walk to the kitchen.
>
>I have heard that protein is bad for him. Is this true and is there a
>special diet for PWP.
>
>Barbara L.
>   ----- Original Message -----
>   From: Mary Ann Ryan<mailto:[log in to unmask]>
>   To: [log in to unmask]<mailto:[log in to unmask]>
>   Sent: Friday, September 17, 2004 8:37 AM
>   Subject: Re: Theresa Rehtom
>
>
>   > mary ann, it is not the content of bob and other's  views with which i
>   > object, it is the tone.
>   > maxine
>
>   Maxine, when reading anything on-line, tone is something that occurs in
>   one's head - it is certainly not something that can be expressed in type.
>
>   Dr. Bob disagrees with your position, as do others who read this list.
>   Nothing you say will convince him to change his mind anymore than anything
>   he writes will change yours.   There is a stand-off on this list in regard
>   to stem cell research.
>
>   Frankly, I'm very tired of the discussion.  I find it contentious and
>   disturbing.  People that should be working together have been drawn apart
>   because of this issue.  Dr. Bob, who is (in my mind) an extremely important
>   contributor to this list has been maligned and his credential questioned.
>   I've said it before.....enough already.
>
>   Let all the key players go to their respective legislative bodies and work
>   toward the stem-cell result they seek.  That's how things should work in a
>   Democracy.
>   ----------
>   God bless
>   Mary Ann
>
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