Dear Don and Dr. Bernie,

I am the first to admit that my anger is not doing me any good.  Believe me,
I would rather be playing golf, bridge,the piano, decorating, gardening,
working, volunteering, bowling, dancing, but I can't do any of those things.
I can't even get to a fairly local ACLU meeting.

However my conclusions about Bush and his cronies and their policies would
be the same if I was well....having PD does give me added fire and
intensity.

Last Friday I drug my body out for my weekly trip to the local Red Lobster.
As I was muscling my walker back in my car another car pulled up and some
women got out.  One was  a woman with PD and  a younger one got her walker
out and it was like mine - 4 wheels, a seat, but it had brakes.

The woman with PD had the same passive expression that cancer victims had
when I went to a "party" for them at Good Samaritan in LA when I had ovarian
cancer in  1979  I fled the "party."

I talked to the younger woman who commented how good it was to see someone
with PD out and "enjoying life"  I didn't make some smart remark but
gratefully received her blessings.

What disturbed me was the expression on the woman with PD's face. I may have
the "mask" too by now, but the younger woman told me she was in the early
stages and I don't think it was the PD mask.

If anyone knows what I can do as a substitute for beating up on Bush, let me
know, please.
Otherwise I will go down fighting, Ray
PS - Dixieland music is my favorite, and I used to treadmill and dance to
it.  Am going to try to get back to it when pool is done.  Problem is it
excites me too much.
----- Original Message -----
From: "Bernard Barber Ph.D." <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, April 17, 2005 11:09 AM
Subject: Re: What has happened to this list?


> Hi Don,
>
> It is not my indented to alter your decisions one way or another, but I
> wonder if you might question why such open anger occurs.
>
> As PD increases there is an increase in Frustration and Aggression.
> I do not believe in the suppression of that which is felt. Denial of that
> pain only adds to the complexity of the disease. So what's wrong with
> being
> angry? Better than bombing and killing the liberals, hey?
>
> Have you a better object in mind other than god, Bush and the Radical
> Right
> that wants everyone to believe as they do?
>
> Have you tried listening to some good old Dixieland music?
>
>
> Bernie
>
>
>
> -----Original Message-----
> From: Parkinson's Information Exchange Network
> [mailto:[log in to unmask]] On Behalf Of Don Adams
> Sent: Saturday, April 16, 2005 5:23 PM
> To: [log in to unmask]
> Subject: Re: What has happened to this list?
>
>        I happen to be a not very religious person but I am a social
> conservative,
> and I HAVE HAD PD OVER 7 YEARS (to answer that question quickly). I have
> very troublesome and  limiting symptoms on which I will not elaborate. I
> am
> NOT helped by reading the constant religious and political sniping and I
> have just about reached the point of leaving PIEN because of that. I'm
> sure
> that the parties who insist on engaging in the activity to which I refer
> will wish me their synonym for "God speed".  I can only respond by saying
> that no doubt I am not the only PWP who has had just about enough, or who
> will reluctantly say goodbye. This PIEN List has gone from one which
> provided useful and helpful input by PD sufferers down to what we see
> today. There are undoubtedly other venues for those who wish to vent their
> anger over problems with stem cell research, (as if that will provide an
> instant cure!) and other political complaints. And why vent bitterness
> here
> over the bad hand that fate or life has dealt most of us on this list?
> There are always those who see themselves as martyrs for whom nothing will
> help, and as victims of  George Bush and Republicans, if not God.
>
> Don Adams
>
>
>
>
>
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