thanks DS401, good advice, Ray
----- Original Message -----
From: "ds401" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, April 20, 2005 2:13 AM
Subject: Re: What has /RESPONSE TO UR QUESTION


> SEE BELOW PLEASE. TAKE THIS WITH A GRAIN OF SALT.  CAPS IT WILL BE SO IT
> WILL BE NOTICED EASILY.
> rayilynlee wrote:
>
>> Dear Don and Dr. Bernie,
>>
>> I am the first to admit that my anger is not doing me any good.
>> Believe me,
>> I would rather be playing golf, bridge,the piano, decorating, gardening,
>> working, volunteering, bowling, dancing, but I can't do any of those
>> things.
>> I can't even get to a fairly local ACLU meeting.
>>
>> However my conclusions about Bush and his cronies and their policies
>> would
>> be the same if I was well....having PD does give me added fire and
>> intensity.
>>
>> Last Friday I drug my body out for my weekly trip to the local Red
>> Lobster.
>> As I was muscling my walker back in my car another car pulled up and some
>> women got out.  One was  a woman with PD and  a younger one got her
>> walker
>> out and it was like mine - 4 wheels, a seat, but it had brakes.
>>
>> The woman with PD had the same passive expression that cancer victims had
>> when I went to a "party" for them at Good Samaritan in LA when I had
>> ovarian
>> cancer in  1979  I fled the "party."
>>
>> I talked to the younger woman who commented how good it was to see
>> someone
>> with PD out and "enjoying life"  I didn't make some smart remark but
>> gratefully received her blessings.
>>
>> What disturbed me was the expression on the woman with PD's face. I
>> may have
>> the "mask" too by now, but the younger woman told me she was in the early
>> stages and I don't think it was the PD mask.
>>
>> If anyone knows what I can do as a substitute for beating up on Bush,
>> let me
>> know, please.
>
> SOMEONE GAVE ME THIS ADVICE WHEN I ASKED.
> FOCUS ON SOLUTIONS, AS OPPOSE TO DWELLING ON THE PROBLEM.  ACCEPT , BUT
> DON'T GIVE UP.  BE URSELF, BUT BE OPEN TO CHANGE.
>
>>
>> Otherwise I will go down fighting, Ray
>> PS - Dixieland music is my favorite, and I used to treadmill and dance to
>> it.  Am going to try to get back to it when pool is done.  Problem is it
>> excites me too much.
>> ----- Original Message -----
>> From: "Bernard Barber Ph.D." <[log in to unmask]>
>> To: <[log in to unmask]>
>> Sent: Sunday, April 17, 2005 11:09 AM
>> Subject: Re: What has happened to this list?
>>
>>
>>> Hi Don,
>>>
>>> It is not my indented to alter your decisions one way or another, but I
>>> wonder if you might question why such open anger occurs.
>>>
>>> As PD increases there is an increase in Frustration and Aggression.
>>> I do not believe in the suppression of that which is felt. Denial of
>>> that
>>> pain only adds to the complexity of the disease. So what's wrong with
>>> being
>>> angry? Better than bombing and killing the liberals, hey?
>>>
>>> Have you a better object in mind other than god, Bush and the Radical
>>> Right
>>> that wants everyone to believe as they do?
>>>
>>> Have you tried listening to some good old Dixieland music?
>>>
>>>
>>> Bernie
>>>
>>>
>>>
>>> -----Original Message-----
>>> From: Parkinson's Information Exchange Network
>>> [mailto:[log in to unmask]] On Behalf Of Don Adams
>>> Sent: Saturday, April 16, 2005 5:23 PM
>>> To: [log in to unmask]
>>> Subject: Re: What has happened to this list?
>>>
>>>        I happen to be a not very religious person but I am a social
>>> conservative,
>>> and I HAVE HAD PD OVER 7 YEARS (to answer that question quickly). I have
>>> very troublesome and  limiting symptoms on which I will not elaborate. I
>>> am
>>> NOT helped by reading the constant religious and political sniping and I
>>> have just about reached the point of leaving PIEN because of that. I'm
>>> sure
>>> that the parties who insist on engaging in the activity to which I refer
>>> will wish me their synonym for "God speed".  I can only respond by
>>> saying
>>> that no doubt I am not the only PWP who has had just about enough, or
>>> who
>>> will reluctantly say goodbye. This PIEN List has gone from one which
>>> provided useful and helpful input by PD sufferers down to what we see
>>> today. There are undoubtedly other venues for those who wish to vent
>>> their
>>> anger over problems with stem cell research, (as if that will provide an
>>> instant cure!) and other political complaints. And why vent bitterness
>>> here
>>> over the bad hand that fate or life has dealt most of us on this list?
>>> There are always those who see themselves as martyrs for whom nothing
>>> will
>>> help, and as victims of  George Bush and Republicans, if not God.
>>>
>>> Don Adams
>>>
>>>
>>>
>>>
>>>
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>>
>>
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