Dear John,
   I don't think we are putting the cart before the horse.   This research does have the potential
to be more than "cocktails of old drugs that just treat the symptom rather than cure the condition."
   With regard to your comments about the Summit: we heard no promises for cures at the conference.
The main thrust of the weekend was what advocates can do to make sure that scientists have the
freedom to find out if the potential they believe embryonic stem cells to have is actually there.
But it's impossible to find answers to questions if the research isn't done.
   My thoughts with regard to your comments about using SCNT for people with Parkinson's...
   Even if those cells have the genetic make-up that would cause those cells to ultimately die, they
would give years of relief.  Additionally, one fact that very few people realize is that the
embryonic research goes hand in hand with the genetic research and the genetic factors could
potentially be eliminated.
    With regard to your comments about the Udall Bill...
   There is a reason they call it research.   No one ever said $100 million was enough to find a
cure.  The Udall bill was to set up centers for general, basic research.  That included the search
for determining the cause of Parkinson's so a cure could be found.  Scientists have been successful
in finding Parkinson related genes as well as DBS.
   And, as someone who worked to get the Udall Bill passed and funded, I take issue that the
conference was put on as a "Jobs Program" for the scientists.  Dr. Woo Suk Hwang from Korea has been
working night and day, 7 days a week because he wants to help people as fast as he can.   If we
can't depend upon the scientists to find the answers, who can we?  Would you rather not have anyone
working on it?
   I understand your frustration...but do you have an alternative?  Thomas Edison said "I have not
failed.  I have only found 10,000 ways that don't work."  If he hadn't continued to try, we wouldn't
have light bulbs.  Let's not give up hope.
   Nina

   -----Original Message-----
From: Parkinson's Information Exchange Network [mailto:[log in to unmask]] On Behalf Of
John Cottingham
Sent: Saturday, June 11, 2005 7:53 PM
To: [log in to unmask]
Subject: Embryonic Stem Cells; Are we putting the cart before the horse?

   Embryonic Stem Cells; Are we putting the cart before the horse?

   In listening to the pro-con embryonic stem cell arguments all that I have
   heard so far is those that are opposed to abortion, even though it is legal
   and those who that are convinced we are close to cures using this new
   science, if only we would permit it.

   We have heard from Michael J. Fox that Parkinson's is the easiest to cure,
   and others that it is just a matter of money. We are post-Udall several
   years and where has all of that money appropriated to find a cure gone? The
   only things we have seen are a few more drugs that are just cocktails of
   old drugs that just treat the symptom rather than cure the condition.

   One thing is sure, voters around the world are being convinced that stem
   cell research if approved will only be a matter of a short time that every
   condition known to man will be cured.

   I consider myself just slightly more informed about embryonic stem cells
   than my neighbors who know nothing at all and attend church whenever it meets.

   I understand that ideopathic Parkinson's is a brain condition involving
   certain cells that become dysfunctional and die or commit suicide.
   Parkinson's is a designer condition that varies from person to person and
   only after an examination of your brain after death can it be determined
   you have the disease.

   I don't know much about DNA. Please correct me if my assumptions are wrong
   because like you I am learning.

   Each person has a unique DNA, a blueprint. If I understand correctly, the
   DNA that a child has is a product of his or her father and mother. During
   life, the DNA changes due to environment and diseases and conditions occur
   when this blueprint is altered or have been genetically passed on.

   We have been told that the cause of Parkinson's is partly genetic and
   partly environment.

   Dr. Michael Levesque, a pioneer in stem cell research used Patient #1s
   cells to create new cells that were implanted into Patient #1s brain. The
   result was Patient #1 experienced some improvement but when it was several
   years past, still has Parkinson's. This is the argument that some are
   making for adult stem cells. It seems clear to me that if you create cells
   from a Parkinson's patient, they are programmed for death and any benefit
   will just be to the surgeon's college fund.

   Please see the graphic so you can understand what the process of creating
   embryonic stem cells is all about.
   http://www.theage.com.au/media/2005/06/10/1118347600436.html

   Dr. Woo Suk Hwang in Korea is proposing using the DNA from the patient to
   eliminate the rejection of the stem cells. Perhaps you could have the DNA
   from Pope John Paul, Yassar Arrafat, Billy Graham but you see they all had
   Parkinson's.

   It makes it hard for a farm boy from Oklahoma to see where all the cures
   will come from if they use our DNA.

   Until more is known about the common markers in the DNA of ideopathic
   Parkinson's suffers a means to correct the DNA will just be a "false hope".
   We all have our hearts on our sleeves, we are hoping so hard.

   The meeting in Houston was just a meeting to organize to stir us up to
   fight for their cause which is a "Jobs Program" for scientists. The drug
   companies have their lobby and the scientists have the Texas organization.

   In all of the states where voters and legislatures have enabled stem cell
   research, the real effort is creating the cells for the heart, liver and
   lungs. Parkinson's and other conditions are way down on their list. It will
   be big money for the companies who do it first.

   We have to be vigilant and demand a place at the table. We are small but
   mighty!

   John Cottingham

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