Bravo!  I'm glad someone else said it.  I'm glad for your "mistake."  David

>From: ariela <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: liquid Sinemet/BRIAN COLLINS/DBS
>Date: Fri, 17 Jun 2005 05:20:46 -0400
>
>sorry, folks.   my mistake -- this was a thread that started on CARE which
>i erroneously continued instead on PIEN....  :(
>
>ariela
>
>====
>
> > considering DBS works best for tremor, i find this indiscriminate
>pushing on PWPs who present with mostly freezing and rigidity, really
>devious and disingenuous.    and then there's the fact this procedure is
>good -- when it is -- for about 5 years (as you then have to deal with
>disease progression).    not to mention the fact that DBS has been touted
>as "reversible" brain surgery (compared with pallidotomy).     well, thank
>you very much -- like plugging electrodes into your brain and then removing
>them years later (that is, if you lucked out and didn't catch a nasty
>infection in the process), will not leave any scar tissue!    yeah,
>completely reversible.
> >
> > i don't remember if that was you who quoted the article re. a starting
>neurologist with a NEW thriving practice -- servicing DBSers who are in
>search of regular follow-up maintenance.   small wonder the MDSs are
>actively recruiting for DBS surgery.    i wouldn't mind so much if at least
>they've made a gesture of perhaps first looking to exhaust other drugs,
>different dosages, other delivery systems!
> >
> > it's a shame!   one must become one's own 'disease manager,' as if it's
>not enough just being its victim....  :(
> >
> > ariela
> >
> > ====
> > >
> > > > do you, or anyone else, know whatever became of brian collins?   is
>he
> > > > still alive?   did he ever go thru the transplant?   how did he
>fare?
> > >
> > > No, Brian seems to have disappeared from the net. No news at all
>unfortunately
> > > but he had certainly thought about optimizing PD treatment.
> > > As for DBS, I also find it frightening.
> > > When first ´invented´ here in France some 10-12 years ago, few were
>performed
> > > because there were not so many units equipped for it. The waiting list
>was
> > > very long, 2-4 years in some places. It was thought to be ´the
>solution´ of
> > > the time that could benefit most PWPs. Later, they started talking
>about it
> > > benefitting about 25% of PWps. That figure ( at least here) has
>dropped down
> > > to 10-15%.
> > > At first, they operated on PWPs with many years of PD, regardless of
>age. Now,
> > > they won´t operate on patients older than 70 and not before careful
> > > psychological/psychiatric screening.
> > > True, the technique has helped a lot of people but obviously is not
>for all.
> > > Brian had the right attitude I think. There comes a time when all
>medical
> > > treatment has been exhausted and one must think of something else.
>That is
> > > why he volunteered for the cell implant.
> > > I can see why Medtronic is pushing for it, and some neurosurgeons
>too....
> > > Here, medical publicity is not allowed and you could never see adverts
>for DBS
> > > as you do in the US.
> > > Maryse cg JOhn 76,16
> > >
>
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