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PARKINSN  August 2005, Week 3

PARKINSN August 2005, Week 3

Subject:

follow on poll - caregivers & PWP

From:

mackenzie <[log in to unmask]>

Reply-To:

Parkinson's Information Exchange Network <[log in to unmask]>

Date:

Sat, 20 Aug 2005 14:02:36 -0700

Content-Type:

text/plain

Parts/Attachments:

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text/plain (36 lines)

this one is going to be even less scientific than the
first - my apologies.

i am wondering what caregivers would say in answer to
the original poll - if you had $10 million that you
could only allocate toward research into alleviating
either non-motor symptoms (sleep disturbances, pain,
fatigue, cognitive changes, dementia, etc.) or
dyskinesias or some combination of the two, how would
you allocate that money?

and further, would you be making that choice based on
what is most challenging for you as a caregiver, or
what you see as most challenging to the person for
whom you care?

finally, and this is a tough one to phrase and it is
directed at both PWP and caregivers. let's say a
particular caregiver's assessment of what is most
challenging (by which i mean that symptom or side
effect that the PWP would be most helped by
alleviating) for the person they care for differs from
that person's own assessment - whose assessment should
carry more weight?

thanks for playing, again,
mackenzie

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