Paula,
Sorry for my erroneous description of your previous posts!

Rick
----- Original Message -----
From: "Paula Nixon" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, October 09, 2005 5:38 PM
Subject: Re: Newly diagnosed PWP


> Dear Glen,
> I'm not into Chinese medicine, but I did read the books from
> pdrecovery, which uses Asian medicine, and it did sound plausible
> after reading it all.  Also I carefully read the sheets (after years
> of trusting the doctors) that come with the PD meds.  They sound
> scary.  This Asian medicine doesn't.  No dangerous med, in fact no
> meds at all.  The writer isn't making any money off this, so you
> can't really call her a charlatan.  I think it deserves a chance.
> There are those that are getting results.  Placebo?  I don't know,
> but it isn't going to kill you whereas the Western medicine can.
> Our first neuro put my husband on 1-250 Sinemet 3 times a day right
> off the bat for a little tremor!  It was a mistake.  I think he
> intended to use the 100, but still.  And these meds only work for a
> while.  Now that my husband has taken them for 10 years, they are
> not working as well.  We'd ask the doctor about symptoms, he didn't
> have a clue, but he was sure a nice guy and liked to talk abou!
> t his
> grape vines.  When we moved we went to a new neurologist.  He isn't
> much better.  Told John to go to his general doctor for treatment of
> his PD pain.  Good luck to you as you try to sort this all out.
> It's up to you to research it.  Don't leave yourself purely in the
> hands of the doctors.  A lot of them just use their old methods
> because they work for them.  "You can't cure PD anyway."
>
> God bless
> Paula
> Rick McGirr <[log in to unmask]> wrote:
> Hi, Glenn, and welcome. My doctors did a couple of things which I
> question. First, they put me on Sinemet, or carbidopa/levidopa,
> right
> off the bat. I didn't find out about the bad side effects which come
> on after 5 or 10 years, until I did some research. (Always a good
> idea to do lots of research on your own.) I decided to try to handle
> my symptoms without Sinemet (did I spell that correctly?), and have
> been ok over the last 6 or 7 months.
>
> On Mirapex: they also put me on Mirapex in the beginning, and I
> tried
> to handle it, but the sleepiness and dizziness took me out of action
> just about every afternoon, so I switched to another neuro-receptor
> stimulator, Requip (ropinerole). I still get drowzy from time to
> time, but not nearly as bad as with Mirapex. I also take selegiline
> for the neuro-protective factor, and I take CoQ10, an enzyme which
> helps produce energy on a cellular level.
>
> FYI, my symptoms started 5 years ago, and now I am dealing with
> several typical symptoms, including tremor in right hand, arm
> shoulder
> and neck, curling toes on the right foot, loss of dexterity in the
> fingers, generally stiff as a board, slow gait, shuffling, and I
> really have to crack the whip on myself to get my feet moving.
>
> My first doctor was a guy who's very near retirement, and I didn't
> feel that he was keeping up on the latest research, so I switched.
> My
> current neurologist is a mainstream guy; basically his focus is on
> medication and surgery. I believe it is possible to help yourself
> greatly by exercise and proper nutrition, and there are lots of
> takes
> on alternatives to western medical treatments. Now's the time to see
> what really works for you, and to rededicate yourself to staying as
> fit as possible. Consult with your doctor about benefits of
> alternative therapies. If there's something you shouldn't be doing,
> he'll tell you, and if he raises no objection, then do it to the
> hilt.
> I believe people on the list here can help provide a lot of info on
> all kinds of treatments they have tried. Paula Nixon is into Chinese
> things, and Raj is into Ayurvedic medicine, from India, and
> somebody,
> can't remember the name, wrote a book on the benefits of exercise
> for
> PWP. Also, read Linda J. Herman's book, "When Parkinson's Strikes
> Early." Even if you are older, there are lots of things to learn
> about what to expect as a PWP.
>
> There are some people on the list who cover the political aspects of
> PD. You'll see lots of differing viewpoints. It's been a lively
> discussion, which has helped me develop my own thoughts and
> positions.
>
> Good luck, Glenn.
>
> Enjoy Fall!
> Rick McGirr
> Email: [log in to unmask]
>
> ----- Original Message -----
> From: "Glenn Brown"
> To:
>
> Sent: Friday, October 07, 2005 10:50 AM
> Subject: Re: Newly diagnosed PWP
>
>
>> hello listers,
>>
>> i am new to this list and elated to have discovered it's existence.
>> i was
>> diagnosed 2&1/2 yrs. ago. my neurologist prescribed mirapex for my
>> symptoms
>> which are hand tremors, slowness
>> and slight imbalance. i started with 0.125 mil. 3x's a day and
>> increased to
>> 0.5 3x's a day. unfortunately, i experienced an episode that caused
>> sweating
>> and a very sick feeling. needless to say, i ceased taking the
>> prescription
>> immediately. my dr.wou ld not respond to my phone call and had an
>> assistant to
>> telephone me instead. i was not at home and my wife took the
>> message. she
>> informed me that it was suggested that i see the psychiatrist that
>> works with
>> their medical group. i felt that my concerns were worth
>> professional medical
>> intervention. i am now looking for another neurologist and i hope
>> this is the
>> right course of action. nevertheless, is there anyone else on this
>> list having
>> difficulty or success with mirapex? if so' i'd like to hear what
>> you have
>> to say.
>>
>> glenn brown
>>
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