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PARKINSN  January 2006, Week 1

PARKINSN January 2006, Week 1

Subject:

Re: Intro

From:

Beverly Bashe <[log in to unmask]>

Reply-To:

Parkinson's Information Exchange Network <[log in to unmask]>

Date:

Tue, 3 Jan 2006 09:25:21 -0500

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (118 lines)

Hi, Susan.

Thanks for the info.

Re: Dr. Lieberman.  He's giving a talk on Friday that I've registered for.  I'm looking forward to meeting him, especially because of your comments.

I have an opinion question about Dr. Singer.  As you said, it's possible that because of the NY dr's intro, I might possibly be able to get an appointment with him.  Given that possibility, if you were me, would you try for Dr. Singer or go to Dr. Lieberman?  I won't hold you to your ideas...just want to test the waters, so to speak.

A person on this list gave me the CARE website, and I've just joined.  Thanks for the other site...that's next.  I really need the help, because this situation is extraordinarily draining, as many of you can attest to.

I'd love Allison's website, when you have a chance to access the address.

Thanks again.

Bev
---- Susan Fine <[log in to unmask]> wrote:
> Bev:  Welcome aboard.  My husband (PWP) and  I are also "emigres" from NYC -
> now living in Key Biscayne, FL (immediately south of Miami).  Have been here
> for 5 years. My husband, who is 76, was diagnosed about 15 years ago.  His
> movement disorder specialist here is Dr. Abraham Lieberman, a well-known,
> wonderfully rersourceful and seasoned specialist who practices in North Bay
> Village, FL (a bit north of Miami and Miami Beach).  He has a web-site
> (www.liebermanparkinsonclinic.com) that is a great source of constantly
> updated information.  He also answers questions from caregivers and PWPs -
> with quick turnaround.  We are very happy with his management of Jerry's
> condition - which, of course, is a constant challenge.  Dr. Carlos Singer is
> also a very highly regarded specialist.  You cannot go wrong with him -
> altho it is not easy to get appointments, but perhaps with a referral from
> your NY docs that may be easier.  If you are not already aware of them, you
> may also be interested in 2 caregiver listservs that are very helpful and
> create an extraordinary cyberspace support system that many of us are
> devoted to.  One is CARE(Caregivers Are Really Essential)
> [log in to unmask]  and the NPF Caregivers Forum (www.parkinson.org).
> This will take you into their main web-site from which you can access the
> caregivers forum. There is also a very active group of caregivers and PWPs
> in the Boca Raton-Delray Beach area led by Allison Landes who runs a
> foundation that, among other things, sponsors educationsl programs and
> provides info on support groups, etc. Will post the web-site- don't have
> access to it at the moment.  Best of luck on your move.  Hope you are able
> to hook up with good resources - and there are many in this area.
> Sue
>
>
> ----- Original Message -----
> From: "Beverly Bashe" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Sunday, January 01, 2006 10:49 PM
> Subject: Intro
>
>
> > Hi, all.  My name is Beverly Bashe, and I'm new to the list.  I do not
> > have Parkinson's Disease, but my husband, David, does.
> >
> > David has been ill at least 38 years...and we've been married for 40
> > years.  He was not diagnosed until about 10 years ago, but has been on
> > leva dopa for about 33 years.  At this time, he's on Stalevo and Permax.
> >
> > Three years ago, David had brain stimulator surgery at New York
> > Presbyterian Hospital after his ability to balance himself went down to
> > near zero.  Michael Kapplitt was his surgeon.  Michael has been a special
> > and treasured person in our lives.  He's a fantastic surgeon, brilliant
> > and passionate about his work, and is a compassionate physician and human
> > being.  In retrospect, I think that he worked with a neurologist in
> > Toronto, perfecting the brain stimulator surgery before moving to NY.
> >
> > Although the surgery was successful, the disease continues its inexorable
> > downward slide.  David's mental profile prior to the surgery sent up some
> > red flags as to the appropriateness of the operation, but, frankly, he had
> > nowhere to go.  Michael and I discussed the situation a couple of weeks
> > prior to the operation.  He stated that he didn't want to hurt David, but
> > if he didn't have it, he'd be spending the rest of his life strapped in
> > chairs.  Yet...I'm not sure that the operation did him a favor: he was
> > definitely damaged by the surgery, having lots of residual problems.  His
> > balance was restored, but that, too, is getting worse again due to the
> > progression of the disease.
> >
> > David's neurologist, David Eidelberg, is in Manhasset, NY, and runs the
> > Movement Disorders Clinic at North Shore Hospital.  He works pretty
> > closely with Michael Kaplitt, and was instrumental in David's recovery
> > post surgery.  Dr. Eidelberg believes that David has early-onset
> > Parkinsons, brought on by the environmental toxins in the gas station he
> > owned with his brother, Jerry.  Jerry, btw, developed symptoms about 11
> > years ago, and died within 5 years.  No one in this long-lived family has
> > ever shown symptoms of movement disorders before David and Jerry.  Now,
> > however, a cousin has also been diagnosed, but he was a chemist, handling
> > and breathing chemicals for 40 years.  Hmmmmmm.
> >
> > We're looking for a new neurologist who might be located in Florida.  We
> > just moved from Long Island, NY, to Delray Beach, Florida.  Dr. Eidelberg
> > has recommended a colleague of his by the name of Carlos Singer at the
> > University of Miami, but we haven't gotten in touch with him, yet.  Does
> > anyone know of him?  Is there anyone else whom some of you might
> > recommend, someone who's really involved exclusively with Parkinsons?
> >
> > Both David and I are looking forward to corresponding with this group.  I
> > do most of the communicating, because David doesn't have the coordination
> > to type or use a mouse.  However, he is directly involved with what I
> > write.  We'd both like to know if anyone on this list has developed
> > Parkinsons Disease after working with or having been in an atmosphere of
> > chemicals.
> >
> > It will be a pleasure getting to know you.
> >
> > Bev Bashe
> >
> > ----------------------------------------------------------------------
> > To sign-off Parkinsn send a message to:
> > mailto:[log in to unmask]
> > In the body of the message put: signoff parkinsn
> >
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

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