Ray,
I called Dr L's office and his company. Did not get any real info.  His
wife/secretary suggested I go for a consultation with Dr. L  Only costs
$550!!!  Just to get info his wife won't give on the phone.
Nick

rayilynlee wrote:

> Nick,
> Any brain surgery is always serious and risky, but not being  a  brain
> surgeon I don't know how difficult this is as  brain surgeries go.
> Over 3
> years ago his grant paid for the surgery but not the very expensive
> office
> visit.
>
> DBS takes hours of navigating the brain with electrodes, but it is not a
> cure either and I don't see anything that involves brain surgery as a
> "cure"
> candidate. The real problem is the cause of PD is unknown, whatever
> disease
> process killed Turner's brain cells to give him PD killed the implants
> which
> after all came from his diseased brain.  This is why we need ALL kinds of
> SCR.
>
> I think you need to call Dr. L's office like I did OVER THREE YEARS AGO.
> Maybe your interest and questions re this procedure would be satisfied.
> Ray
> ----- sOriginal Message -----
> From: "Nick & Oanh" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, March 14, 2006 4:58 PM
> Subject: Re: source of turner's 2004 senate testimony
>
>
>> I believe the reason that ASCs are not being used to treat PD, a la Dr.
>> Levesque, is that the procedure is to darn difficult (read Costly).  Dr.
>> L took a biopsy from Turner's brain, filtered out the few neural stem
>> cells, and cultured them for 9 months in order to have enough to
>> transplant into Turner's brain.
>>
>> Dr. L said in 04, and I believe earlier, like 02, that he was preparing
>> a phase 2 study.  Well, 4 years later, his web page states that the
>> study is on hold by the FDA until he has a processing system that meets
>> GMP (good manufacturing procedures).  His company is either low on cash,
>> or he is finding it very difficult to meet GMP, or he figures that not
>> many will pay the big bucks to have the procedure done on them,
>> considering it may only last 4 years more or less.
>>
>> Dr. L's company is at:  http://www.neurogeneration.com/
>>
>> Nick
>>
>> rayilynlee wrote:
>>
>>> Thanks Mackenzie for providing the testimony.  It should be noted that
>>> Turner is/was in his 40's.  I was 67 when I had DBSs.  The aging
>>> process is
>>> not a factor on our side when fighting PD progression.
>>> Ray
>>> ----- Original Message -----
>>> From: "mackenzie" <[log in to unmask]>
>>> To: <[log in to unmask]>
>>> Sent: Monday, February 27, 2006 2:29 PM
>>> Subject: turner's 2004 senate testimony
>>>
>>>
>>>> On July 14, 2003, Turner was trotted out before the Senate again as
>>>> evidence that adult stem cells are better than embryonic and that
>>>> PD is
>>>> being treated with them (see link below). Looks like Brownbeck
>>>> facilitated
>>>> the trotting - maybe this is what Ray saw?
>>>>
>>>>  it would be hilarious if it weren't so disturbing - Brownbeck is out
>>>> there spreading the word that ASCs are treating PD, but.... where are
>>>> they
>>>> being used to do that? no one can find them! why aren't PWP the world
>>>> over
>>>> flocking to have this procedure? what does he expect people to
>>>> believe -
>>>> that those wicked old scientists and supporters of ESCR have found a
>>>> miraculous new treatment but they are hiding it from the world,
>>>> because...
>>>> they would rather kill embryos?
>>>>
>>>>  it boggles the mind.
>>>>
>>>>  http://commerce.senate.gov/hearings/testimony.cfm?id=1268&wit_id=3676
>>>>
>>>> Nick & Oanh <[log in to unmask]> wrote:
>>>>  Ray,
>>>>
>>>> What is your source for Turner's PD returning?
>>>>
>>>> How many years of good living has Turner had?
>>>>
>>>> Nick
>>>>
>>>> rayilynlee wrote:
>>>>
>>>>> Mary Ann,
>>>>>
>>>>> the "neurologist" of whom you speak was a neurosurgeon, not an MDS
>>>>> movement
>>>>> disorder specialist.
>>>>>
>>>>> As for embryonic stem cell implants for PD I didn't think there were
>>>>> any
>>>>> yet, only animal studies. A fetal cell experiment had disastrous
>>>>> results.
>>>>> Dennis Turner's PD has returned after Dr. Levesque used his own adult
>>>>> brain
>>>>> cells, so I agree, cell replacement may not necessarily be the
>>>>> answer. But
>>>>> hESCR is needed according to most scientists to learn the
>>>>> etiology(causes)
>>>>> of disease, surely a precursor to treatment. of PD and other
>>>>> diseases. All
>>>>> kinds of SCR, knowledge and honesty are needed in this fight. Ray
>>>>> ----- Original Message -----
>>>>> From: "Mary Ann Ryan"
>>>>> To:
>>>>
>>>>
>>>>
>>>>> Sent: Thursday, February 23, 2006 6:33 AM
>>>>> Subject: Re: Why? Mary Ann
>>>>>
>>>>>
>>>>>> If
>>>>>>
>>>>>>> whole swaths of scientific research are now decreed "out of
>>>>>>> bounds" as
>>>>>>> discussion items, what will this group have left to talk about?
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> Scientific research is *not* out of bounds. Discussions about
>>>>>> people's
>>>>>> right to disagree about stem cell research based on moral or ethical
>>>>>> issues
>>>>>> has, in the past, only proven divisive. A neurologist left this list
>>>>>> (even
>>>>>> though he provided wonderful insights into the treatment and
>>>>>> mechanism of
>>>>>> PD) specifically because of this kind of discussion. We all need
>>>>>> to be
>>>>>> united in this fight - not divided.
>>>>>>
>>>>>>>
>>>>>>> It's now widely accepted that stem cells hold the key to cures for
>>>>>>> Parkinson's and many other diseases and conditions.
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> Stem cell implants in PWP were discontinued because of the resulting
>>>>>> violent
>>>>>> dyskinesia that occurred. It is altogether possible that stem cells
>>>>>> are
>>>>>> not
>>>>>> the answer to PD.
>>>>>> ---------
>>>>>> God bless
>>>>>> Mary Ann (CG Jamie 66/26 with PD)
>>>>>>
>>>>>>
>>>>>>
>>>>>> --
>>>>>> No virus found in this outgoing message.
>>>>>> Checked by AVG Free Edition.
>>>>>> Version: 7.1.375 / Virus Database: 268.0.0/266 - Release Date:
>>>>>> 2/21/2006
>>>>>>
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