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PARKINSN  March 2006, Week 3

PARKINSN March 2006, Week 3

Subject:

Re: Nick/source of turner's 2004 senate testimony

From:

rayilynlee <[log in to unmask]>

Reply-To:

Parkinson's Information Exchange Network <[log in to unmask]>

Date:

Thu, 16 Mar 2006 09:49:03 -0700

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (244 lines)

Nick, I thought the office visit was around $500!  Whew! Ray
----- Original Message -----
From: "Nick & Oanh" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, March 16, 2006 1:40 AM
Subject: Re: Nick/source of turner's 2004 senate testimony


> Ray,
> I called Dr L's office and his company. Did not get any real info.  His
> wife/secretary suggested I go for a consultation with Dr. L  Only costs
> $550!!!  Just to get info his wife won't give on the phone.
> Nick
>
> rayilynlee wrote:
>
>> Nick,
>> Any brain surgery is always serious and risky, but not being  a  brain
>> surgeon I don't know how difficult this is as  brain surgeries go.
>> Over 3
>> years ago his grant paid for the surgery but not the very expensive
>> office
>> visit.
>>
>> DBS takes hours of navigating the brain with electrodes, but it is not a
>> cure either and I don't see anything that involves brain surgery as a
>> "cure"
>> candidate. The real problem is the cause of PD is unknown, whatever
>> disease
>> process killed Turner's brain cells to give him PD killed the implants
>> which
>> after all came from his diseased brain.  This is why we need ALL kinds of
>> SCR.
>>
>> I think you need to call Dr. L's office like I did OVER THREE YEARS AGO.
>> Maybe your interest and questions re this procedure would be satisfied.
>> Ray
>> ----- sOriginal Message -----
>> From: "Nick & Oanh" <[log in to unmask]>
>> To: <[log in to unmask]>
>> Sent: Tuesday, March 14, 2006 4:58 PM
>> Subject: Re: source of turner's 2004 senate testimony
>>
>>
>>> I believe the reason that ASCs are not being used to treat PD, a la Dr.
>>> Levesque, is that the procedure is to darn difficult (read Costly).  Dr.
>>> L took a biopsy from Turner's brain, filtered out the few neural stem
>>> cells, and cultured them for 9 months in order to have enough to
>>> transplant into Turner's brain.
>>>
>>> Dr. L said in 04, and I believe earlier, like 02, that he was preparing
>>> a phase 2 study.  Well, 4 years later, his web page states that the
>>> study is on hold by the FDA until he has a processing system that meets
>>> GMP (good manufacturing procedures).  His company is either low on cash,
>>> or he is finding it very difficult to meet GMP, or he figures that not
>>> many will pay the big bucks to have the procedure done on them,
>>> considering it may only last 4 years more or less.
>>>
>>> Dr. L's company is at:  http://www.neurogeneration.com/
>>>
>>> Nick
>>>
>>> rayilynlee wrote:
>>>
>>>> Thanks Mackenzie for providing the testimony.  It should be noted that
>>>> Turner is/was in his 40's.  I was 67 when I had DBSs.  The aging
>>>> process is
>>>> not a factor on our side when fighting PD progression.
>>>> Ray
>>>> ----- Original Message -----
>>>> From: "mackenzie" <[log in to unmask]>
>>>> To: <[log in to unmask]>
>>>> Sent: Monday, February 27, 2006 2:29 PM
>>>> Subject: turner's 2004 senate testimony
>>>>
>>>>
>>>>> On July 14, 2003, Turner was trotted out before the Senate again as
>>>>> evidence that adult stem cells are better than embryonic and that
>>>>> PD is
>>>>> being treated with them (see link below). Looks like Brownbeck
>>>>> facilitated
>>>>> the trotting - maybe this is what Ray saw?
>>>>>
>>>>>  it would be hilarious if it weren't so disturbing - Brownbeck is out
>>>>> there spreading the word that ASCs are treating PD, but.... where are
>>>>> they
>>>>> being used to do that? no one can find them! why aren't PWP the world
>>>>> over
>>>>> flocking to have this procedure? what does he expect people to
>>>>> believe -
>>>>> that those wicked old scientists and supporters of ESCR have found a
>>>>> miraculous new treatment but they are hiding it from the world,
>>>>> because...
>>>>> they would rather kill embryos?
>>>>>
>>>>>  it boggles the mind.
>>>>>
>>>>>  http://commerce.senate.gov/hearings/testimony.cfm?id=1268&wit_id=3676
>>>>>
>>>>> Nick & Oanh <[log in to unmask]> wrote:
>>>>>  Ray,
>>>>>
>>>>> What is your source for Turner's PD returning?
>>>>>
>>>>> How many years of good living has Turner had?
>>>>>
>>>>> Nick
>>>>>
>>>>> rayilynlee wrote:
>>>>>
>>>>>> Mary Ann,
>>>>>>
>>>>>> the "neurologist" of whom you speak was a neurosurgeon, not an MDS
>>>>>> movement
>>>>>> disorder specialist.
>>>>>>
>>>>>> As for embryonic stem cell implants for PD I didn't think there were
>>>>>> any
>>>>>> yet, only animal studies. A fetal cell experiment had disastrous
>>>>>> results.
>>>>>> Dennis Turner's PD has returned after Dr. Levesque used his own adult
>>>>>> brain
>>>>>> cells, so I agree, cell replacement may not necessarily be the
>>>>>> answer. But
>>>>>> hESCR is needed according to most scientists to learn the
>>>>>> etiology(causes)
>>>>>> of disease, surely a precursor to treatment. of PD and other
>>>>>> diseases. All
>>>>>> kinds of SCR, knowledge and honesty are needed in this fight. Ray
>>>>>> ----- Original Message -----
>>>>>> From: "Mary Ann Ryan"
>>>>>> To:
>>>>>
>>>>>
>>>>>
>>>>>> Sent: Thursday, February 23, 2006 6:33 AM
>>>>>> Subject: Re: Why? Mary Ann
>>>>>>
>>>>>>
>>>>>>> If
>>>>>>>
>>>>>>>> whole swaths of scientific research are now decreed "out of
>>>>>>>> bounds" as
>>>>>>>> discussion items, what will this group have left to talk about?
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>> Scientific research is *not* out of bounds. Discussions about
>>>>>>> people's
>>>>>>> right to disagree about stem cell research based on moral or ethical
>>>>>>> issues
>>>>>>> has, in the past, only proven divisive. A neurologist left this list
>>>>>>> (even
>>>>>>> though he provided wonderful insights into the treatment and
>>>>>>> mechanism of
>>>>>>> PD) specifically because of this kind of discussion. We all need
>>>>>>> to be
>>>>>>> united in this fight - not divided.
>>>>>>>
>>>>>>>>
>>>>>>>> It's now widely accepted that stem cells hold the key to cures for
>>>>>>>> Parkinson's and many other diseases and conditions.
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>> Stem cell implants in PWP were discontinued because of the resulting
>>>>>>> violent
>>>>>>> dyskinesia that occurred. It is altogether possible that stem cells
>>>>>>> are
>>>>>>> not
>>>>>>> the answer to PD.
>>>>>>> ---------
>>>>>>> God bless
>>>>>>> Mary Ann (CG Jamie 66/26 with PD)
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>> --
>>>>>>> No virus found in this outgoing message.
>>>>>>> Checked by AVG Free Edition.
>>>>>>> Version: 7.1.375 / Virus Database: 268.0.0/266 - Release Date:
>>>>>>> 2/21/2006
>>>>>>>
>>>>>>> ----------------------------------------------------------------------
>>>>>>>
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>>>>>>> mailto:[log in to unmask]
>>>>>>> In the body of the message put: signoff parkinsn
>>>>>>>
>>>>>>
>>>>>> ----------------------------------------------------------------------
>>>>>>
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>>>>>> mailto:[log in to unmask]
>>>>>> In the body of the message put: signoff parkinsn
>>>>>>
>>>>>
>>>>> ----------------------------------------------------------------------
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>>>>> mailto:[log in to unmask]
>>>>> In the body of the message put: signoff parkinsn
>>>>>
>>>>>
>>>>>
>>>>> __________________________________________________
>>>>> Do You Yahoo!?
>>>>> Tired of spam?  Yahoo! Mail has the best spam protection around
>>>>>
>>>>> ----------------------------------------------------------------------
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>>>>> http://mail.yahoo.com
>>>>
>>>>
>>>>
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>>>>
>>>
>>> ----------------------------------------------------------------------
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>>
>>
>> ----------------------------------------------------------------------
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>
> ----------------------------------------------------------------------
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December 2005, Week 2
December 2005, Week 1
November 2005, Week 5
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November 2005, Week 3
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November 2005, Week 1
October 2005, Week 5
October 2005, Week 4
October 2005, Week 3
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October 2005, Week 1
September 2005, Week 5
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August 2005, Week 5
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April 2005, Week 1
March 2005, Week 5
March 2005, Week 4
March 2005, Week 3
March 2005, Week 2
March 2005, Week 1
February 2005, Week 4
February 2005, Week 3
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February 2005, Week 1
January 2005, Week 5
January 2005, Week 4
January 2005, Week 3
January 2005, Week 2
January 2005, Week 1
December 2004, Week 5
December 2004, Week 4
December 2004, Week 3
December 2004, Week 2
December 2004, Week 1
November 2004, Week 5
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November 2004, Week 3
November 2004, Week 2
November 2004, Week 1
October 2004, Week 5
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October 2004, Week 2
October 2004, Week 1
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August 2004, Week 5
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July 2004, Week 5
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June 2004, Week 5
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May 2004, Week 3
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April 2004, Week 5
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April 2004, Week 3
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March 2004, Week 1
February 2004, Week 5
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February 2004, Week 1
January 2004, Week 5
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December 2003, Week 5
December 2003, Week 4
December 2003, Week 3
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December 2003, Week 1
November 2003, Week 5
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November 2003, Week 3
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October 2003, Week 3
October 2003, Week 2
October 2003, Week 1
September 2003, Week 5
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September 2003, Week 3
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September 2003, Week 1
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June 2003, Week 5
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April 2003, Week 5
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April 2003, Week 3
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March 2003, Week 5
March 2003, Week 4
March 2003, Week 3
March 2003, Week 2
March 2003, Week 1
February 2003, Week 4
February 2003, Week 3
February 2003, Week 2
February 2003, Week 1
January 2003, Week 5
January 2003, Week 4
January 2003, Week 3
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January 2003, Week 1
December 2002, Week 5
December 2002, Week 4
December 2002, Week 3
December 2002, Week 2
December 2002, Week 1
November 2002, Week 5
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November 2002, Week 3
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November 2002, Week 1
October 2002, Week 5
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October 2002, Week 3
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August 2002, Week 5
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July 2002, Week 5
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July 2002, Week 2
July 2002, Week 1
June 2002, Week 5
June 2002, Week 4
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June 2002, Week 1
May 2002, Week 5
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April 2002, Week 5
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April 2002, Week 3
April 2002, Week 2
April 2002, Week 1
March 2002, Week 5
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March 2002, Week 3
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January 2002, Week 5
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January 2002, Week 3
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December 2001, Week 4
December 2001, Week 3
December 2001, Week 2
December 2001, Week 1
November 2001, Week 5
November 2001, Week 4
November 2001, Week 3
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November 2001, Week 1
October 2001, Week 5
October 2001, Week 4
October 2001, Week 3
October 2001, Week 2
October 2001, Week 1
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August 2001, Week 3
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July 2001, Week 1
June 2001, Week 5
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May 2001, Week 5
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April 2001, Week 5
April 2001, Week 4
April 2001, Week 3
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April 2001, Week 1
March 2001, Week 5
March 2001, Week 4
March 2001, Week 3
March 2001, Week 2
March 2001, Week 1
February 2001, Week 4
February 2001, Week 3
February 2001, Week 2
February 2001, Week 1
January 2001, Week 5
January 2001, Week 4
January 2001, Week 3
January 2001, Week 2
January 2001, Week 1
December 2000, Week 5
December 2000, Week 4
December 2000, Week 3
December 2000, Week 2
December 2000, Week 1
November 2000, Week 5
November 2000, Week 4
November 2000, Week 3
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November 2000, Week 1
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October 2000, Week 3
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October 2000, Week 1
September 2000, Week 5
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September 2000, Week 1
August 2000, Week 5
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August 2000, Week 3
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July 2000, Week 1
June 2000, Week 5
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February 2000, Week 3
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February 2000, Week 1
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January 2000, Week 3
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January 2000, Week 1
December 1999, Week 5
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December 1999, Week 3
December 1999, Week 2
December 1999, Week 1
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November 1999, Week 4
November 1999, Week 3
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November 1999, Week 1
October 1999, Week 5
October 1999, Week 4
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October 1999, Week 1
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April 1999, Week 1
March 1999, Week 5
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November 1998, Week 1
October 1998, Week 5
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September 1998, Week 5
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January 1998, Week 3
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December 1997, Week 4
December 1997, Week 3
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February 1997, Week 1
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December 1996, Week 5
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October 1996, Week 3
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June 1996, Week 5
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April 1996, Week 4
April 1996, Week 3
April 1996, Week 2
April 1996, Week 1
March 1996, Week 5
March 1996, Week 4
March 1996, Week 3
March 1996, Week 2
March 1996, Week 1
February 1996, Week 5
February 1996, Week 4
February 1996, Week 3
February 1996, Week 2
February 1996, Week 1
January 1996, Week 5
January 1996, Week 4
January 1996, Week 3
January 1996, Week 2
January 1996, Week 1
December 1995, Week 5
December 1995, Week 4
December 1995, Week 3
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December 1995, Week 1
November 1995, Week 5
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May 1995, Week 1
April 1995, Week 5
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April 1995, Week 1
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