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Subject: PARKINSN Digest - 28 Nov 2006 to 29 Nov 2006 (#2006-379)


> There are 9 messages totalling 390 lines in this issue.
>
> Topics of the day:
>
>  1. No Adult Stem Cell Treatment for Parkinson's
>  2. Bush's bizarre appointment
>  3. StemCells Top Senate Agenda
>  4. DBS SURGERY (2)
>  5. Sweden in First Place in SCR
>  6. Stem Cell Debate in Florida
>  7. No fetal cells need apply
>  8. adult stem cells
>
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> Date:    Tue, 28 Nov 2006 07:26:36 -0800
> From:    archier <[log in to unmask]>
> Subject: Re: No Adult Stem Cell Treatment for Parkinson's
>
> You are talking about a nurse, not a researcher.  She probably doesn't
> know
> anything more about stem cell research than the people that have followed
> this list.  10-15 years is just a way of saying something appears to have
> potential, but doesn't currently have any clear development path.
>
>
>
> On 11/26/06, M.Schild <[log in to unmask]> wrote:
>>
>> > I was talking to one of my area's PD-specialist nurses - she reckons
>> there
>> > might be in 10-15 years.
>>
>> for adult stem cells or embryonic?
>> Maryse
>>
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> ------------------------------
>
> Date:    Tue, 28 Nov 2006 15:12:30 -0700
> From:    rayilynlee <[log in to unmask]>
> Subject: Bush's bizarre appointment
>
> From the LA Times.  Check out this dude's promotion of the idea that a
> woman's brain chemistry is altered by having multiple sex partners.  Now
> where do you think he stands on ESCR?  Ray
>
> "Bush's bizarre appointment
> Erick Keroack is too extreme to head the federal office for family
> planning.
> November 27, 2006
>
> PRESIDENT BUsh made some winningly conciliatory remarks the day after
> his party's Nov. 7 electoral drubbing, saying he looked forward to
> governing in a more bipartisan fashion. Then he turned around and
> started naming kooky ideologues to key posts.
>
> The latest recess appointment, Eric Keroack as head of the federal
> government's family planning office, is an extremist so out of line
> with scientific thought that it is difficult to describe his views
> without laughing.
>
> As medical director of A Woman's Concern, a small chain of nonprofit
> pregnancy counseling clinics that offer no information on birth
> control, Keroack has agitated against abortion and even contraception -
> including for married women. The organization continues to push the
> discredited nonsense that abortion increases a woman's chances of
> breast cancer and is more dangerous during the first eight weeks of
> pregnancy (when, in fact, the risk of complication is actually at its
> lowest). Birth control, according to A Woman's Concern's tortured
> logic, is somehow "demeaning to women." And Keroack has argued that
> women who have sex with multiple partners alter their brain chemistry
> in the process, making it harder for them to form close relationships.
>
> This is the man who will oversee $283 million in annual Department of
> Health and Human Services grants for providing access to family
> planning education and contraceptives "to all who want and need them."
>
> The administration is still wasting $158 million a year on
> abstinence-only education programs that the Government Accountability
> Office concluded this month have not been shown to work and at times
> put forth misleading information about condoms and AIDS.
>
> Keroack does not need Senate confirmation, so there is little Congress
> can do about a president who continues to select anti-scientific
> ideology over basic competence, aside from making it clear that funding
> for these programs depends on HHS using the money as intended.
>
> But the real check on Bush's silliness comes from voters. On Nov. 7,
> efforts to limit women's reproductive rights were routed not only in
> California and Oregon but in South Dakota and Kansas. Appeasing social
> conservatives is not just bad policy, it's becoming losing politics as
> well."
>
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> ------------------------------
>
> Date:    Tue, 28 Nov 2006 16:48:06 -0700
> From:    rayilynlee <[log in to unmask]>
> Subject: StemCells Top Senate Agenda
>
> From the Associated Press on Tuesday afternoon.
> Tony Mazzaschi
> AAMC
> Reid: Ethics, stem cells atop Senate agenda
> WASHINGTON (AP) -- Ethics reform, a higher minimum wage and more money
> for stem cell research are the top items on the Senate agenda next year,
> incoming Senate Majority Leader Harry Reid said Tuesday in an interview
> with The Associated Press.
> Reid said he will tackle those priorities after cleaning up the
> "financial mess" that the outgoing Republican leadership has left.
> He was referring to nine long overdue appropriations bills covering 13
> Cabinet departments for the budget year that began October 1. (Watch
> what Democrats have in store for Iraq and financial matters at home)
> "They're just leaving town, it appears," Reid said from his office in
> the Capitol. "We hope that's not the case, but it appears that's what
> they are going to do. And so we're going to have to find a way to fund
> the government for the next year."
> The must-pass legislation totals more than $460 billion and promises to
> divert time and energy from other items on the Democratic agenda.
> Reid also said he's doing away with the "do-nothing Congress" that
> Democrats campaigned against this year as they ousted the Republican
> majority in both chambers of Congress.
> The Nevada Democrat, who is wrapping up his final days as Senate
> minority leader, will take control of the Senate agenda when the new
> Congress takes the oath of office in January.
> "We're going to put in some hours here that haven't been put in in a
> long time," Reid said. That means "being here more days in the week and
> we start off this year with seven weeks without a break. That hasn't
> been done in many, many years here."
> Reid said he hopes that President Bush is willing to work with the
> Democratic congressional leadership, but the early signs have not been
> encouraging. He said the White House has not reached out to him since
> his meeting with Bush in the Oval Office on November 10.
> "Sorry to say," Reid said.
>
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> ------------------------------
>
> Date:    Tue, 28 Nov 2006 05:17:47 -0800
> From:    Carole Hercun <[log in to unmask]>
> Subject: Re: DBS SURGERY
>
> I am yet another Carole in a    similar situation. Slight=
>
> Hi Holly,=0A=0A=0AI am yet another Carole in a    similar situation.
> Slight=
> ly older, slightly more advanced, but definitely starting to go downhill.
> W=
> ould be etenally grateful if you keep us postetd, aa I know there are many
> =
> others in a quandry re: DBS.=0A=0ACarole Hercun=0A=0A----- Original
> Message=
> ----=0AFrom: William Angus <[log in to unmask]>=0ATo:
> PARKINSN@LISTS=
> ERV.UTORONTO.CA=0ASent: Monday, November 27, 2006 1:23:38 PM=0ASubject:
> Re:=
> DBS SURGERY=0A=0A=0AHi, Carol --=0A=0AI read your e-mail with special
> inte=
> rest because it sounds as though=0Awe are in similar situations. I am 52
> ye=
> ars old and have been dx'd=0Afor about 9 years. Same symptoms as yours,
> exc=
> ept that my balance=0Ahasn't been affecfed to the degree that your has
> (fro=
> m the sounds of=0Ayour letter). My surgery is scheduled for Jan. 30 so if
> y=
> ou'd like to=0Akeep in touch, I can try to keep you posted as I go through
> =
> it.=0A=0APeople say to me, "Why are you doing this? You don't look that
> bad=
> ,"=0Aand I questioned whether I was jumping the gun or perhaps
> being=0Agree=
> dy by wanting to improve my "quality of life" when what I have is=0Apretty
> =
> good, but my neurologist put my mind at ease and I'm=0Aproceeding with
> conf=
> idence once again. He suggested DBS when I=0Adeveloped fairly severe
> dyskin=
> esias that can't be controlled by=0Amedication (I can't take Amantadine)
> an=
> d my on/off periods started=0Abecoming unpredictable. He believes that
> pati=
> ents who are not=0Atremendously advanced do better with the surgery,
> recove=
> r faster, and=0Aenjoy greater benefits that patients who resort to DBS
> only=
> as a last=0Aditch effort. (He said, in regards to your question
> about=0Aha=
> ndwriting, that usually the surgery doesn't restore that. Nuts.)=0A=0AMy
> ne=
> urologist is very, very involved with the surgery -- he will be=0Athere
> dur=
> ing the entire procedure (along with a bunch of other=0Apeople) and there
> i=
> s much comfort in that.=0A=0AGood luck finding the info you need -- I'll
> he=
> lp if I can.=0A=0AHolly=0A=0A=0A=0A=0A=0AOn Nov 24, 2006, at 11:43 AM,
> Caro=
> l Kerr wrote:=0A=0AI am considering having DBS surgery and am interested
> in=
> hearing from=0Aanyone=0Awho has had it done.  I am 54 uears old and have
> b=
> een dx for almost 5=0Auears.=0AI have virtually no tremor, but have
> extreme=
> stiffness, bradykinesia,=0Aand=0Abalance problems.  I am falling about
> eve=
> ry other day.  i take=0Asinemet every four=0Ahrsl. (up from every 5 hrs
> six=
> months ago  ) .   I feel it wearing=0Aoff after=0Aabout 3 1/2 hours now.
> =
> I alaso take a cr at night.=0A=0ASome things I am intersted iin knowing=0A
> =
>    if any of your symptoms were similar to mine what difference did=0Ait
> m=
> ake?=0A   (also with relation to speech , nandwriting=0A       how
> involved=
> has  your neurologist been=0A      are there any other specialists on
> your=
> "team" or that you wish=0Ayou had=0Ainvolved=0A      anything you wish
> you=
> had asked about before hand=0A     has anybody done it frameless=0AThanks
> =
> for any
> input=0Acarol=0A=0A------------------------------------------------=
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> insn=0A=0A-----------------------------------------------------------------=
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> ------------------------------
>
> Date:    Tue, 28 Nov 2006 16:55:32 -0700
> From:    rayilynlee <[log in to unmask]>
> Subject: Sweden in First Place in SCR
>
> Stem Cells": Israel 8th in stem cell research
> Israel is second in the number of groups publishing research papers on =
> human embryonic stem cell lines.
> Gali Weinreb 28 Nov 06   14:41
> "Stem Cells" reports in its October edition that Israel is eighth in the =
> world in human embryonic stem cell research with ongoing research on =
> eight stem cell lines. The study, conducted by Anke Guhr, Andreas Kurtz, =
> Kelley Friedgen and Peter Loser, reported that Sweden was in first =
> place. The US is in second place, despite federal restriction on =
> embryonic stem cell research.=20
> Israel is second in publishing research papers on stem cell lines, with =
> 42 articles in peer-reviewed journals. Israel is behind the US, and =
> ahead of the UK, South Korea, China, and Singapore.=20
>
> "Stem Cells" also ranked the 24 most influential articles in the field =
> (i.e. the most quoted). Six of these articles originated in Israel. The =
> most cited article from Israel was a study conducted at the Rappaport =
> Family Institute for Research in the Medical Sciences at Technion - =
> Israel Institute of Technology, in third place.=20
>
>
>
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> ------------------------------
>
> Date:    Tue, 28 Nov 2006 11:16:49 -0700
> From:    rayilynlee <[log in to unmask]>
> Subject: Stem Cell Debate in Florida
>
> Stem Cell Debate Hits Florida
> The stem cell debate has gotten more interesting. Floridians for Stem Cell
> Research & Cures have launched a petition drive to put stem cell research
> funding on the Florida 2008 ballot. They failed to do so in 2006. Citizens
> for Science and Ethics have launched a counter drive for a 2008 ballot
> measure to ban Florida from stem cell research funding. If both grassroots
> group get 600,000 certified signatures they will still need 60 percent of
> the voters to vote yes.
> The one thing that may doom the Christian Right is that stem cell research
> supporters have made their presence felt with campaign donations.
> Proponents of Missouri constitutional amendment to protect embryonic stem
> cell research have broken every record on political spending for statewide
> races, with one billionaire couple bankrolling nearly all of the $28.7
> million campaign.
> That total price tag is staggering when compared to even the most
> expensive
> campaigns in Missouri history. The stem cell campaign is already more than
> twice as costly as any campaign for a Missouri ballot measure.
> The amount spent by proponents of the stem cell measure is greater that
> the
> total spent by all candidates combined in any race to date for statewide
> office, including governor or U.S. senator.
>
> Newly elected politicans, from both parties, have heard the money jingle
> and
> are tripping over each to see who can promise to spend the most. Poll
> after
> poll shows the majority of Americans support stem cell research. The
> Christian Right will drive a wedge into the Republican Party on this
> issue.
> Democrats can use stem cell research to fundraise and get-out-the-vote.
> Posted by Michael Hussey on Monday, November 27, 2006 at 10:17 PM |
> Permalink
> Damn good point. And, they need to push it over and over and over again
> until even the Republicans are sick to death of the subject and give up
> their nonsense.
> Posted by Sine.Qua.Non | November 27, 2006 11:09 PM
>
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> ------------------------------
>
> Date:    Tue, 28 Nov 2006 11:43:57 -0700
> From:    rayilynlee <[log in to unmask]>
> Subject: No fetal cells need apply
>
> Dear Editor:
>
> There are no fetal cells involved in embryonic stem cell research.  We =
> are talking about 8 microscopic undifferentiated cells in a 4-5 day old =
> blastocyst in a petri dish that could produce stem cell lines.  Alive, =
> like bacteria and viruses are alive, but not like living persons.
>
> Cells, not fetuses, babies, or people are at the source of this big =
> debate.  But opponents of ESCR want to make it an abortion issue.  It is =
> not.
>
> As an ovarian cancer survivor and 11 year Parkinson's disease prisoner, =
> I am sick and tired of being held hostage to the  Bronze Age religious =
> beliefs that fuel this controversy.  This research will take place, =
> albeit outside the US and too late to help me thanks to the flat earth=20
> thinkers in power.
>
> Rayilyn Brown
> Surprise AZ
>
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> ------------------------------
>
> Date:    Tue, 28 Nov 2006 10:00:05 -0700
> From:    rayilynlee <[log in to unmask]>
> Subject: adult stem cells
>
> Coleus or whoever you are -
>
> I want to give you some personal, first hand info re ASCs.  There are =
> no ASC cures or treatments for Parkinson's disease.  How do I know?  I =
> have Parkinson's and on 4-24-06 I talked to Dennis Turner, the one =
> person in the world whose PD was treated with his own brain cells. His =
> PD has returned with a vengeance because the etiology of the disease is =
> unknown.  I also called Dr. Levesque's (his neurosurgeon) office at =
> Cedars Sinai in LA CA in 2003 before I had DBS brain surgery which I was =
> encouraged to have by his office.  As far as I know his Phase II is =
> stalled.  As for the other 2 PD "cures/treatments", I know a person who =
> participated in the aborted Amgen GDNF infusion therapy trials which did =
> not involve any kind of stem cells. =20
>
> Would PD patients have any reason to reject ASC treatments or cures if =
> they were successful or existed?   Use some common sense.  There is =
> plenty wrong with your 70 ASC "cures" list - why do all patient advocacy =
> groups support ESCR?
>
> You need to keep your Bronze Age based thinking to yourself, refuse any =
> future treatments that may be derived from ESCR, and GET OUT OF THE =
> WAY!!!  I see no reason why I must suffer and be held hostage to your =
> faith-based socially acceptable superstitions.
>
> ALSO  PLEASE STOP LYING ABOUT HOW GREAT ASCs ARE.
>
> Rayilyn Brown
> Surprise AZ
> [log in to unmask]
>
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> ------------------------------
>
> Date:    Wed, 29 Nov 2006 02:56:44 -0600
> From:    "John K. Mier Jr" <[log in to unmask]>
> Subject: Re: DBS SURGERY
>
> i underwent dbs at universit of chicago after dx and progression since
> 1989.. was practicaly bedridden..that was done inmarch 2005. it set the
> symptoms bak about 3-5 years, imho its a great improvement.. thnx to
> dr penn the neurosurgeon dr dalvy at the university as my neurologist,
>
> they have worked with over 100 cases and undertand  our dilemma...
> best wishes to all
> john
> --
> John K Mier,Jr [log in to unmask]
>
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> ------------------------------
>
> End of PARKINSN Digest - 28 Nov 2006 to 29 Nov 2006 (#2006-379)
> ***************************************************************

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