I admire your determination and courage to do what you are doing you are an
inspiration to all parkinsons Iam a parkinson for the last ten years I have
gait problems and a lower back pain ,of late iam movable in the house but i
require assistance to go outdoors and I use a walking stick I am 69 years
old and I lked reading your email I wish you all the Joy Peace and good
health

Ronald Rodrigues




>From: "Nina P. Brown" <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Question from a "lurker"
>Date: Tue, 30 Jan 2007 00:43:43 -0600
>
>When I was diagnosed twenty one years ago my neurologist said with  all the
>research being done and the new drugs, that if I had to have  a
>neurological disease, Parkinson’s was the one to have.  Am I lucky  or
>what?  I’ve bought raffle tickets, played bingo, entered all kinds  of
>contests and have never won anything; but for some unknown reason  my
>ticket to join the Parkinson Parade was picked.  And it changed my  life!
>For some reason, when I am asked “How Parkinson’s has affected my  life, I
>seem to have a problem coming up with a quick answer.  I  tried to figure
>out why that should be such a hard question for  someone who has lived with
>Parkinson’s and worked for the Parkinson’s  community for 21 years.
>Over the years my symptoms have multiplied and worsened.  Because  there is
>not a day that goes by that allows me to forget I have  Parkinson’s, I
>often reflect on a story that makes me smile and  reminds me of the
>difference in being a pessimist or an optimist.
>A young boy, placed in a room filled full with toys, sat in the  middle of
>the room without touching one of them.  There were so many  he couldn’t
>decide which to play with.  A second little boy was  placed in a room full
>of horse manure.  He dove in and tossed it one  way, then another.  After
>about an hour, as he was dragged from the  room, he was heard crying,
>“Wait…with all that horse manure, there  must be a pony in there
>somewhere!”  My way of living with a body  that reminds me every three
>hours to take medications is to keep  looking for the pony.
>Because Parkinson’s is usually described as “progressive,”  “debilitating”
>and “incurable” I know the problems I face today will  seem inconsequential
>tomorrow, but I refuse to feel “debilitated.”  I  prefer not to dwell upon
>the negatives that make my life difficult,  but rather upon the positives
>that make my life full.
>   ·    While taking medication every two hours may force me to live  by
>the clock, I’m grateful I live in a time when there are  medications
>available.  Without the chemical camouflage from the  cocktail of
>medications I take, I wouldn’t be able to walk at all.
>·    Although my symptoms first forced me to give up tennis and  skiing and
>then later, give up my walker for a scooter when the  medications don’t
>work, I am, nonetheless grateful to have the mobility.
>·    Although I hate seeing a photo or video of myself with my body
>contorted or moving abnormally, at least it opens an opportunity to
>educate someone about Parkinson’s.
>·    Although I’m afraid I’ll lose my balance and fall when I lean  over
>for a hug, I love that someone wants to give me a hug.
>  I could go on, but you get the idea.  I guess you could say that
>Parkinson’s has brought facets to my life that I never could have
>foreseen– while it has done a lot to me, it’s done a lot for me.   There is
>no doubt that Parkinson’s has changed my life.  It would be  foolish of me
>to say I’m lucky that I have an incurable, progressive,  degenerative
>disease, but…
>·Without Parkinson’s, I wouldn’t write HAPS monthly newsletter for  2300,
>which has given me a personal way to reach out and touch  thousands and in
>return, so many have reached back and touched me.
>Without Parkinson’s, I would have missed the opportunity of meeting  some
>of the most courageous, inspiring, amazing people I know.
>Without Parkinson’s, I would never have had the PASSION or  opportunity to
>fight for and represent the Parkinson community with  legislators in Austin
>and Washington, or help co-found two  organizations involved with medical
>research that give the hope of  removing the word “incurable” from the
>description of Parkinson’s.
>And with Parkinson’s, the love and devotion that Joe, my husband of
>forty-four years, and I have shared has become even greater because  of our
>commitment to fight the fight and work toward that common goal.
>Life is similar to a game of cards.  We have no control over the hand
>dealt us.  However, we do have control over the way we play the  hand.
>There's no point in blaming the dealer for a bad hand.  The  trick is to
>play it out with all the skill and determination we  possess.  I’m not
>smart enough to find a cure for this disease, but I  am determined to do my
>best to make it possible for some researcher  somewhere to find a cure.
>In short, I decided that if I have to ride in the Parade, I’d prefer  to do
>it on a pony!
>
>
>
>On Jan 8, 2007, at 10:26 AM, Dick Beaumont wrote:
>
>>You said "Parkinson's Disease Is a Curse and a Blessing by Kate  Kelsall"
>>in your message that was posted on January 06, 2007 and presented on
>>this list by rayilynlee (sorry, I don't know your last name) on Sat
>>06/01/2007.
>>
>>I mentioned that I am a "lurker" since I do not normally respond to  any
>>messages, I just read them. My knowledge of this disease has been
>>attained by internet research and this list. I was diagnosed as having
>>PD in February of 2005, just about two years ago. Fortunately, my  PD is
>>slowly progressing and my depression seems to be corrected. I live in
>>Keswick Ontario and work as a technical writer in Richmond Hill. At 67
>>years young, married to a wonderful woman (Helene) and employed doing
>>the work I love, I did not know what my sentence meant to me and my
>>future (and still not sure).
>>
>>Question - What is the URL (address) of your Blog. I was moved by your
>>observations and wish to read more.
>>
>>Dick Beaumont
>>
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