Peter

sometimes age bcomes a criteria for DBS.  I was 67 when I had mine.  I think 
it depends on other factors like general health as well.  I'm 72 now.  I 
decided not to wait until I got any older.  Good luck.

Ray
Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
[log in to unmask]
----- Original Message ----- 
From: "Swinburn, Peter" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, October 02, 2008 11:03 PM
Subject: Re: DBS/Peter's Dad


> Ray
>
> Dad is 71 this year.
>
> Peter
>
> -----Original Message-----
> From: Parkinson's Information Exchange Network
> [mailto:[log in to unmask]] On Behalf Of rayilynlee
> Sent: Friday, 3 October 2008 2:54 PM
> To: [log in to unmask]
> Subject: Re: DBS/Peter's Dad
>
> Absolutely, Peter.  No tremors for the past 5 years.  However, as you
> know, we are all different.  How old is Dad?
> Ray
> Rayilyn Brown
> Director AZNPF
> Arizona Chapter National Parkinson Foundation [log in to unmask]
> ----- Original Message -----
> From: "Swinburn, Peter" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Wednesday, October 01, 2008 11:03 PM
> Subject: Re: Newbies/Exercise
>
>
>> Ray,
>>
>> Thanks again for this information. Do you think DBS is worth the
> effort?
>> I would like to explore it for my father.
>>
>> Regards
>>
>> Peter
>>
>> -----Original Message-----
>> From: Parkinson's Information Exchange Network
>> [mailto:[log in to unmask]] On Behalf Of rayilynlee
>> Sent: Thursday, 2 October 2008 5:57 AM
>> To: [log in to unmask]
>> Subject: Newbies/Exercise
>>
>> I am passing on my response to Nihal's email because it  contains a
>> call for early and sustained exercise:
>> Ray
>>
>> Dear Nihal
>>
>> Thank you for emailing me and  putting such confidence in me.  I must
>> tell you I did not write the exercise article, although I agree with
> it.
>> I labeled it "Source unknown" because I got it from a blog with no
>> author.
>>
>> I have had PD 12 years now, was diagnosed at age 60.  In those first
>> early years I did well, treadmilling an hour a day.  I liked to
>> listen to Dixieland Jazz music when I walked, it helped pass the time.
>> Although I tried Sinemet (which worked only once) and other PD meds,
>> they didn't help so I don't take any PD meds.
>>
>> In 1997 I went to Australia-New Zealand without a cane and walked from
>
>> the hotel to the  Sydney Opera House.  In 1999 my niece and I went to
>> Egypt.
>> Although I had a cane I zipped around the tombs and pyramids.  I am a
>> retired history teacher who always loved to travel.  If I could
>> improve to my 1999 status I would go see all the great people I have
> met online.
>> I cannot travel now.
>>
>> In summer of 2003 I had two DBS brain surgeries which control my
>> tremors.
>> In April 2008  I fell on my tailbone and cannot treadmill or walk in
>> my swimming pool as it makes my back worse.  I can't even stand for a
>> few minutes to use the 2 putting greens in my backyard.
>>
>> MY ADVICE TO ALL NEWLY DIAGNOSED PWP:  IF YOU CAN,  KEEP UP THAT
>> INITIAL EXERCISE PROGRAM AND BY ALL MEANS DON'T FALL - YOU CAN REALLY
>> HURT YOURSELF.
>>
>> Sometime around 2001 I got an electric "Jazzy" wheelchair because my
>> doc was afraid I would fall.  This may have been a mistake as I can
>> barely walk now.
>>
>> Nihal, one of the many nasty things about PD  is the "unknowns" we
> face.
>>
>> Every one of us is different with respect to reaction to meds and
>> progress of the disease.  Although that is a negative, it may also be
>> a positive.
>> For example, just because I am losing my voice, it doesn't  mean you
>> will.
>> I do think we have a window of opportunity at the beginning to use
>> exercise as much as we can.  I wish I had maintained it no matter
> what.
>> So be good to yourself.  Select what you "like" best and what you
>> think you can stick to.  It is good you have family support.
>>
>> I just ask myself, what can I still do?  One thing is posting  PD info
>
>> with Diane Wyshak's help.  This was not the retirement I had planned
>> on, but I do have enough to do.
>>
>> You are not alone and I'm sure you will make many online friends.  I
>> will still hold onto the hope I will meet you someday in Sri Lanka.
>> Thank you for your kind invitation.  In the meantime, don't hesitate
>> to contact me and keep the List up to date on how you are doing.
>>
>> Ray
>>
>> Rayilyn Brown
>> Director AZNPF
>> Arizona Chapter National Parkinson Foundation [log in to unmask]
>>
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