Dear Freinds,
 
We are all a bunch of gullible people or shall I say as we are inflicted with Dopomine Deficiency Syndrome,(PD) anything that looks good or exciting we tend to believe.
People  who have good news to spread must do so after having verified the hard core facts of the discoveries.
 
Best Wishes and may the good Lord inspire those professors who are into research for cures for PD and such other dreaded diseases.
Allelua 
 
Nihal. 

--- On Fri, 17/10/08, PARKINSN automatic digest system <[log in to unmask]> wrote:

From: PARKINSN automatic digest system <[log in to unmask]>
Subject: PARKINSN Digest - 15 Oct 2008 to 16 Oct 2008 (#2008-238)
To: [log in to unmask]
Date: Friday, 17 October, 2008, 9:30 AM

There is 1 message totalling 108 lines in this issue.

Topics of the day:

  1. Joan's  Schuller letter re PD cure

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Date:    Wed, 15 Oct 2008 09:56:55 -0700
From:    rayilynlee <[log in to unmask]>
Subject: Re: Joan's  Schuller letter re PD cure

Susan

Would you have an address for Schuller so we can write to him?

Thanks, Ray
Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
[log in to unmask]
----- Original Message ----- 
From: "Susan Kline" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, October 14, 2008 7:36 AM
Subject: Re: Joan's Schuller letter re PD cure


Dear Listserv Members,  Starting this past Sunday while I was out all day at 
an event for Parkinson's, I began getting calls of excitement about Dr. 
Schuller's announcement.  I got the calls from people not prone to getting 
overly convinced at first announcements of the many claims that can be out 
there.  So first thing yesterday, after more calls coming my way, I called 
the Crystal Cathedral and identified myself. The person answering the phone 
apparently had been getting calls...well, you can imagine!  She said Dr. 
Schuller issued a statement that there was no more information yet.  I 
jumped on the word "yet"...and then she said that the program was a 
rebroadcast of a previously pre-recorded program.  She could not give me the 
date of the original broadcast...but this is somehow ringing a bell with me 
that this was not very recent.   To have to report this cruel, cruel follow 
up news to those I care about...and especially to have to cradle in my arms 
my disappointed PWP loved one who heard the Dr. Schuller cliff hanging 
statement on television....has prompted me to also write a letter to the 
senior Dr. Schuller.  He was completely out of line in the first place to 
make such a reckless statement without considering the consequences and 
impact this would have on a most brave group of people suffering from PD and 
who cling to any bit of realistic hope.  But then, to not have anyone 
monitor and edit previous broadcasts is completely unacceptable.  Leaders 
who have won the confidence of those listening to them have the moral 
obligation to consider the hearts and hope of those people who trust them. 
Reckless carrot dangling without any disclaimer was quite damaging, 
regardless of best intentions,  and, therefore,  I support Joan's comments.

I urge others to contact Dr. Schuller as I will.  The Parkinson's Community

deserves an explanation and a most humble apology. Still believing in 
verifiable research and realistic hope for victory,Susan KlineExecutive 
DirectorThe Hazel Hutchman Memorial Neuroscience CenterReseda, California

> Date: Tue, 14 Oct 2008 09:35:51 +0100> From: [log in to unmask]>

> Subject: Re: Joan's Schuller letter re PD cure> To: 
> [log in to unmask]> > My response - if genuine - come in 
> through the front door with proof, don't > sneak around like a
cheap 
> confidence trickster.> > Quoting rayilynlee
<[log in to unmask]>:> > > 
> Joan would like to hear your response> > > > Rayilyn Brown>
> Director 
> AZNPF> > Arizona Chapter National Parkinson Foundation> > 
> [log in to unmask]> > ----- Original Message ----- > > From:
Joan 
> Blessington Snyder> > To: rayilynlee> > Sent: Sunday, October
12, 2008 
> 8:07 PM> > Subject: about rev. schullers cure> > > >
> > i wanted to know 
> what the listserv thinks about it.> > > > Dear Sir:> > I
think you do an 
> tremendous disservice to your parishioners and also to the> > >
> entire 
> Parkinson's community by announcing from your pulpit that there is a
> > 
> "cure" for Parkinson's Disease.> > > > I think
that the way you pronounced 
> this news was steeped in innuendos and > > secrecy: not naming the 
> researcher, not saying which national PD foundation > > was sent his

> "triple checked" paper and then not even being clear about
when> > > > he 
> would appear on your show.> > > > Perhaps you do not
understand just what 
> is at stake here for a desperate > > group of people who live with
this 
> damn disease daily-for you to actually > > drop this type of verbal 
> bombshell and then to not explain yourself is > > unconscionable. It
makes 
> my life just that much harder as an advocate for > > awareness and 
> fundraiser for PD research.> > > > Now that people have heard
it from you, 
> they will assume that this another > > thing they can cross off
their list 
> of worrisome things to think about and > > assume that all is well
in that 
> little corner of their world. If this man > > really has made a 
> breakthrough in his research, it will take many years for > > his 
> treatment to trickle down to the ranks of the patients like myself
(dxed> 
>  > > > for 18 yrs) . And people will still be getting this
dreadful 
> diagnosis > > daily.> > > > I don't know what you
can do to repair the 
> damage that your reckless > > comments have already done...but I
hope that 
> you can resolve this situation > > quickly.> >
Respectfully,> > > > Joan 
> Blessington Snyder > > > 
>  >
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