Well, it depends. The usual PD caveat about the variations. Carline, the 
PWP really does not respond to Sinemet and the Agonists etc. I largely 
give the meds to her on faith, maybe, just maybe she is a little less 
stiff. Sometimes I forget, it does not seem to make a difference.
K. F. cg Carline

Maureen Potts wrote:
> Do not ever, and I mean ever, go off your medications without telling 
> your doctor.  You can develop what they call Neuroleptic Malignant 
> Syndrome, where your blood pressure goes sky high, you pass out, and 
> worse.  Some die. Drugs for Parkinsons are pretty strong stuff.  You 
> are taking your life in your  hands by not being more disciplied about 
> your medications.  You are tempted to phase out the drugs because you 
> feel better.  But it is the drugs that are making you feel better.  
> Trust me, the day will come when you will be infinitely grateful for 
> those drugs.
>
> My brother bought me one of those big plastic pill boxes with 
> compartments for every day of the week and for a daily schedule.  It 
> helped me remember and to take my drugs on time.  You have  to commit 
> to counting and sorting for an hour or so a week.  It is well worth it.
>
> Please dont stop your meds without medical advice.  Just remember, 
> Neuroleptic Malignant Syndrome.  Sounds awful, and it is.
>
> Maureen Thompson (I have been around, just quiet)
>
>
>
> ----- Original Message ----- From: "Murray Kastner" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Saturday, January 10, 2009 10:24 AM
> Subject: Re: question re dosage
>
>
>> I am afraid I am the laggard of the group and the spacing of my  
>> dosages has been all over the clock. I have been prescribed 25/100  
>> Sinemet three times a day along with 75 mg Mirapex and 5 mg  
>> Selegilene. I also take Flomax CR (1x Day)and Novo oxybutnin (1x 
>> day).  1 mg  Folic Acid, calcium 2x daily. i am very erratic in 
>> taking the  meds, and try to keep to three times a day but no fixed 
>> times. And I  usually forget them altogether one to three times a week.
>>
>> I am sorely tempted to give up the meds completely, or to phase them  
>> out. I think I have read that there are cases where the meds  
>> contribute to the symptoms rather than alleviate them. I also have  
>> osteoporosis for which I have just completed an 18-month program 
>> with  Eli Lilly's new drug, Forteo wherein I injected myself every 
>> morning.  This past week I took a bone-density scan and Wednesday I 
>> am hoping to  get the results, expecting 20-25% increase in density. 
>> This may allow  for spinal surgery. which I am not too crazy about.
>>
>> My worst symptoms are camptocormia which means I cannot straighten  
>> myself when standing or walking. I can lay down perfectly straight 
>> and semis-straight when sitting. But the camptocormia has brought on 
>> shortness of breath, especially if I walk without a walker. It has  
>> been suggested that my bent-over posture has been crushing my lungs  
>> and so I also now have a 'puffer' 3x a day.
>>
>> I am growing weary and am tempted to give up all the meds and see 
>> what happens. Before I do that I will enquire as to the consequences. 
>> Fr'instance: can the PD and accompanying symptoms get worse with no 
>> returning to the meds to regain the balance I have now?
>>
>> I will discuss this with my neuro at my next visit -- scheduled 
>> every  4-5 months. since 1998 the only deterioration I have 
>> experienced is  the damned camptocormia, apparently a rare condition 
>> which my neuro  (one of two movement disorder specialists in 
>> Montreal) has seen only  in 3-4 others. He feels it may have been 
>> triggered by a fall I took a  couple of years ago which crushed 1-2 
>> vertebrae when I landed on my  coccyx.
>>
>> Phew! Thank you for bearing with this. I have probably left out even  
>> more meds, like the anti-depression pills (150 mg) bupropion SR.
>>
>> Every once in a while I wonder whether I really have PD or whether 
>> it  is something with similar symptoms.
>>
>> Anyway I think I have rambled on enough and will appreciate input 
>> from anyone in a similar situation.
>>
>> Murray
>>
>> Ray,  I received the pins and they are already being displayed all  
>> over Montreal. Thanks!
>>
>>
>>
>> On 6-Jan-09, at 6:33 PM, rayilynlee wrote:
>>
>>> I recently got some carbo/levo from my neuro to try once more.  
>>> When  I first tried it it helped but never again even tho I took it 
>>> for a  year. He gave me 25/100 3 times a day and I've forgotten how 
>>> you  space the dosages.  Do you take it at night or just daytime?  
>>> I've  forgotten.   in 2003 I had DBS and tried  Comtan and Stalevo  
>>> afterwards but it didn't help.
>>>
>>>
>>> Ray
>>
>> ----------------------------------------------------------------------
>> To sign-off Parkinsn send a message to: 
>> mailto:[log in to unmask]
>> In the body of the message put: signoff parkinsn
>>
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: 
> mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
>

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn