great!!!!
Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
[log in to unmask]

--------------------------------------------------
From: "shan" <[log in to unmask]>
Sent: Thursday, May 14, 2009 6:18 AM
To: <[log in to unmask]>
Subject: Re: ESCR under attack -   CONTACT NIH TODAY!!!

> ________________
> Done that for my friends in Singapore too..
>
>
>
>
> ________________________________
> From: JOHN YOCHIM <[log in to unmask]>
> To: [log in to unmask]
> Sent: Thursday, May 14, 2009 4:55:36 PM
> Subject: Re: ESCR under attack - CONTACT NIH TODAY!!!
>
> Thank you Ray. I told them.
>
> --- On Thu, 5/14/09, rayilynlee <[log in to unmask]> wrote:
>
> From: rayilynlee <[log in to unmask]>
> Subject: ESCR under attack - CONTACT NIH TODAY!!!
> To: [log in to unmask]
> Date: Thursday, May 14, 2009, 1:16 AM
>
> CONTACT THE N.I.H. TODAY! A personal request from Don C. Reed
> Action asked: Click on the following to contact National Institutes of 
> Health:
>
> http://nihoerextra.nih.gov/stem_cells/add.htm.
>
> Dear Stem Cell Research Advocate:
>
> The next 14 days are crucial in the stem cell research struggle.
>
> Here's why.
>
> Remember when President Obama signed that document removing the Bush stem 
> cell restrictions? That same day he called upon the National Institutes of 
> Health to draft a new set of guidelines for scientists wanting federal 
> funding.
>
> Those guidelines have just been issued. 
> (http://stemcells.nih.gov/policy/2009draft.htm)
>
> The next 14 days are the comment period for the new guidelines for stem 
> cell research, which American scientists will have to live with if they 
> want federal funding. This is the public's only chance to shape those 
> guidelines: which can be improved-or made worse.
> Unfortunately, there are problems!
>
> Not only are the guidelines far more conservative than we had hoped, but 
> opponents of the research are systematically flooding the comment process.
>
> Led by the Catholic Church and other conservative religious bodies, a 
> national campaign has begun: to attack early stem cell research by mass 
> emails to the NIH.
>
> *"The United States Conference of Catholic Bishops (USCCB) launched a new 
> "Oppose Destructive Stem Cell Research" campaign today, equipping citizens 
> to contact Congress and the National Institutes of Health (NIH) to oppose 
> embryonic stem cell research ." -- WASHINGTON, May 6 
> /PRNewswire-USNewswire/ www.usccb.org/stemcellcampaign
>
> Is their anti-research campaign having an effect?
>
> Dr. Wise Young of Rutgers University , ". of the 6000 plus comments that 
> NIH has received concerning the draft guidelines, 99% were from people who 
> opposed embryonic stem cell research."-Carecure Forum 
> http://sci.rutgers.edu/forum/showpost.php?p=1039001&postcount=12
> Imagine what the enemies of research will do with a statistic like that! 
> Think of the State Senators and Representatives who have to fight for stem 
> cell funding-they will be hammered-no politician ever wants to stand 
> alone.
>
> Supporters of stem cell research must be heard.
>
> To prevail, we need to do three things: inform ourselves, act 
> individually, and reach out to our networks.
> First, read this message all the way through; it contains background 
> information from the Coalition for the Advancement of Medical Research 
> (CAMR), and other sources.
>
> Second, send your message to the government. Click on the comment box you 
> will find at the following url:
> http://nihoerextra.nih.gov/stem_cells/add.htm
>
> Third, SHARE THIS LETTER-or write your own-- email all your contacts.
>
> Any statement of support has impact. One sentence can make a difference.
>
> Something like: "I support embryonic stem cell research, and am glad some 
> of the restrictions are being loosened." That matters.
>
> Anyone who clicks on the comment box, and writes in a sentence-that 
> message will be tallied as one citizen in support. Of course, you may say 
> more if you want. If you are a long-term research supporter, your letter 
> will be put in the expert witness category.
>
> (If you want to get more involved in shaping the guidelines, that would be 
> helpful. The guidelines are politically very timid, and must be 
> strengthened. Problems:
>
> a "grandfather clause" is needed to insure that every stem cell line 
> already approved under the previous stringent guidelines will be eligible; 
> that alternate sources of stem cell lines such as SCNT and parthenogenesis 
> will not be excluded from funding, and more. (see CAMR comments below.)
>
> But every patient advocate in America must at least click on the comment 
> box, and make a statement in support of early stem cell research.
>
> This affects everyone in America, and the world. MORE THAN ONE PERSON IN A 
> FAMILY MAY COMMENT. Every adult friend or family member should click and 
> make a comment-- as well as every scientist, medical student, every 
> teacher, every parent-everyone who has a reason to want stem cell 
> therapies and cures.
>
> Here it is, one more time: http://nihoerextra.nih.gov/stem_cells/add.htm.
>
> Or, send a letter (ideally on letterhead) to: NIH Stem Cell Guidelines, 
> MSC 7997, 9000 Rockville Pike, Bethesda , Maryland , 20892-7997
>
> But whatever you are going to do, do it now. There is very little time 
> before the May 26th deadline.
>
> We have worked hard, many years. We are so close. We must not falter now.
>
> Click on the button, send your comments in-do it today, please.
>
> And thanks. You make the difference: you are one of the overworked few who 
> change the world.
>
> P.S. Here is a letter from Amy Comstock-Rick, President of the Coalition 
> for the Advancement of Medical Research (CAMR); I copied it from CAMR's 
> website, where much more information can be found: www.camradvocacy.org.
> Help Ensure Strong Federal Support for Embryonic Stem Cell Research -
> Submit Comments to the NIH on its Draft Guidelines
> As you know, President Obama recently issued an Executive Order 
> instructing the National Institutes of Health (NIH) to develop guidelines 
> to establish a framework for federal funding of embryonic stem cell 
> research. NIH has released its draft guidelines, and the public has the 
> opportunity to comment on the draft over the next few weeks. NIH will 
> analyze the content, as well as volume, of the comments as it finalizes 
> the guidelines.
> It will be critical for NIH to hear from the public during the comment 
> period. Please follow the instructions below to submit your comments to 
> ensure that the final guidelines are crafted in a way that ensures that 
> this science advances as quickly as possible. And, please share the link 
> to this page with your friends, family, and anyone you know who supports 
> embryonic stem cell research.
> How to submit your comments:
> Click http://nihoerextra..nih.gov/stem_cells/add.htm to be connected to 
> the NIH comment form;
> Provide your name, and select `self' for Affiliation; and
> Copy and paste the text below into the comment box, provide the security 
> check ID on the form, and click `submit comments.'
> Suggested comment text (copy and paste into Comment section of NIH comment 
> form and edit as appropriate for you):
> Embryonic stem cell research holds great promise for millions of Americans 
> suffering from many diseases and disorders. I am not a scientist, but I 
> have been following progress in this field with great interest. 
> Significant strides have been made over the past decade, and the final 
> guidelines issued by NIH must build on this progress so that cures and new 
> therapies can get to patients as quickly as possible. The final guidelines 
> should not create new bureaucratic hurdles that will slow the pace of 
> progress.
> I am pleased that these draft guidelines -- in Section II B -- would 
> appear to permit federal funding of stem cell lines previously not 
> eligible for federal funding and for new lines created in the future from 
> surplus embryos at fertility clinics. However, as drafted, Section II B 
> does not ensure that any current stem cell line will meet the criteria 
> outlined and thus be eligible for federal funding. It will be important 
> for the final guidelines to allow federal funds for research using all 
> stem cell lines created by following ethical practices at the time they 
> were derived. This will ensure that the final guidelines build on progress 
> that has already been made.
> I also believe that the final guidelines should permit federal funding for 
> stem cell lines derived from sources other than excess IVF embryos, such 
> as somatic cell nuclear transfer (SCNT). Sections II B and IV of the draft 
> guidelines do not permit such federal funding and I recommend that the 
> final guidelines provide federal funding using stem cell lines derived in 
> other ways. If not, it is essential that the NIH continue to monitor 
> developments in this exciting research area and to update these guidelines 
> as the research progresses.
> Thank you!
> Sincerely,
> Amy Comstock Rick, president
> Coalition for the Advancement of Medical Research
>
> Rayilyn Brown
> Director AZNPF
> Arizona Chapter National Parkinson Foundation
> [log in to unmask]
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