Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
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From: "Nic Marais" <[log in to unmask]>
Sent: Sunday, December 06, 2009 4:46 AM
To: <[log in to unmask]>
Subject: Re: this is reaally helping me feel better!

> On Sun, Dec 6, 2009 at 3:22 AM, Scott Burnett 
> <[log in to unmask]>wrote:
>
>>        I've been a member of this forum for a long time, although
>> discussions as of late I've mostly sat back and watched/read the
>> discussions.  I've been watching for a new treatment that doesn't require 
>> me
>> to take more pills (more than 70,000 since diagnosed!) or to have 
>> somebody
>> bore a hole in my head to stick some metal electrodes into my brains. 
>> Well,
>> here's the story.
>>        I was diagnosed with severe sleep apnea earlier this year and 
>> after
>> my examination the doctor prescribed a C-PAP machine. Apparently the 
>> machine
>> forces air into the respiratory system and increases the oxygen in the
>> brain. I don't really know all the ins and outs of how the C-PAP works 
>> but
>> there has been a marked lessening in the severity of my symptoms since I
>> started using it.
>>        I don't want to jump on this too fast and say "This is it!"  I did
>> begin two new medications during the last year: Prestiq for depression 
>> and
>> Azilect for it's nuero protective properties. There was a substantial 
>> amount
>> of time between when I began taking the two new drugs and when I started
>> using the C-PAP.  This is the first time that one of the treatments for 
>> the
>> disease is actually making me feel better; not just maintaining me.
>>        If you would please help me with this survey I'd really appreciate
>> it. I did a lot of research in my Masters program (Special Ed,) and I'd 
>> like
>> to do a little "PD Trials" of my own.  Who knows what we might find out?
>>
>> SLEEP DISORDERS AND PARKINSONS DISEASE  IS THERE A CONNECTION
>>
>> GENDER: Female
>>
>> AGE: 74
>>
>> YEARS SINCE DIAGNOSED WITH PARKINSONS DISEASE: 14
>>
>> DO YOU HAVE TROUBLE SLEEPING?  HOW  MANY DAYS A WEEK? Yes, 6
>>
>>
>> HAVE YOU BEEN DIAGNOSED WITH SLEEP APNEA?  No HOW LONG AGO?
>>
>>
>> WHAT LEVEL OF SLEEP APNEA DO YOU HAVE?  Don't know
>>
>> HOW DO YOU FEEL AT THE END OF A DOSING CYCLE?
>> USE A SCALE OF 1 TO 5, 5 BEING GREAT  AND 1 BEING ROTTEN: 1
>>
>>I don't take any PD meds, I'm always "off".  DBS stopped tremors.
>>
>> HOW DO YOU FEEL 1 HOUR INTO A DOSING CYCLE?
>> USE A SCALE OF 1 TO 5, 5 BEING GREAT  AND 1 BEING ROTTEN: 1
>>Not applicable
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