Pat

I had mine done at Scripps Clinic in La Jolla CA in 2003.  My neurosurgeon 
was Dr. Thomas Waltz.   Sadly, he died a couple  of years ago.
Scripps has a great  program, I think.  I actually had two DBSs.  One side 
was redone as he wasn't happy with placement of electrodes.

I haven't gotten my life back, but these procedures have allowed me to 
exist.  And boy was I reminded about a month ago what I'm like without it.

Ray

--------------------------------------------------
From: "Nursepyn2" <[log in to unmask]>
Sent: Sunday, September 12, 2010 8:43 AM
To: <[log in to unmask]>
Subject: Re: Intoduction and Deep Brain stimulation

> Thanks Rayilyn, for responding to "DBS Surgery", any information we can 
> obtain will be helpful. Where did you have yours done and who was your 
> neurosurgeon?
> Thank you so much for all you do for the Pd community.
> Pat P.
>
> -----Original Message-----
> From: Rayilyn Brown <[log in to unmask]>
> To: PARKINSN <[log in to unmask]>
> Sent: Sun, Sep 12, 2010 2:00 am
> Subject: Re: Intoduction and Deep Brain stimulation
>
> Tony
>
> I had 2 bilateral DBSs in 2003 and last month got a taste and reminder of
> what  life is like for me without it when my stimulators died.  I never 
> got
> relief from medication, so it was a lifesaver for me; however, if meds had
> worked I doubt I would have had it done.  People get different results so
> you need to decide for yourself.
>
> I want a cure in the form of a vaccine.
>
> Good luck.
>
> --------------------------------------------------
> From: <[log in to unmask]>
> Sent: Friday, September 10, 2010 8:11 AM
> To: <[log in to unmask]>
> Subject: Re: Intoduction and Deep Brain stimulation
>
>>
>>
>> Hi Tony.  There is a group on yahoo dedicated solely to DBS  surgery.
> It
>> is [log in to unmask] (mailto:[log in to unmask]) .
>> I'm
>> nowhere near having DBS but I like to keep up to date with what is
> going
>> on
>> in the field.  Let us know how you make out.
>>
>> Roberta Innarella
>>
>>
>>
>> Father  God, Today I am afraid. I look around me at this world that is
>> changing so  fast and I feel lost like a small boat in the midst of a
>> storm. I
>> am not  built to weather the battering waves or the howling wind. So
> I
>> wait
>> now in  your presence. You spoke the oceans and the four winds into
> being.
>> You  threw the stars in the sky and separated the sea from dry land.
> You
>> took
>> the hand of Peter who was sinking into the depths of the water and
> walked
>> him to safety. I choose now to fix my eyes on you and not on the
> storm. I
>> settle my heart on your love and not on the current that threatens to
> pull
>> me under. Thank you that you are my firm anchor even through the
> darkest
>> night, Amen
>>
>>
>> In a message dated 9/10/2010 2:10:09 A.M. Eastern Daylight Time,
>> [log in to unmask] writes:
>>
>> Hi  my name is Tony Duarte I have had PD for 21 years.  We found your
>> support group via a few google searches and thought it would be a
> great
>> idea to
>> chat to other people with PD.
>>
>> I am particularly  interested in the Deep Brain stimulation surgery.
> Has
>> anyone done  this procedure?  If so what were the results of the
> surgery
>> and
>> would you recommend it.
>>
>> Kind regards
>> Tony
>>
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> 

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