Hi Sara
I am a wife of a PDP who was diagnosed in Dec of 2007. He was a heavy equipment operator so it was a stress fillled job. After they started him on his meds, trying to figure out the correct doses, he was very foggy and was having problems just getting on the machines. The issues at that time were his r hand shook and his muscles ached and felt like he had the flu. Since he retired in Aug of 2008 (had to) do to the meds he was on his symptoms have gotten a lot less. I think stress creates a lot of issues with PD. That is my personal opinion, not medical.
However he is doing an hour a day on treadmill plus other excercise and that does seem to help him plus they have gotten his meds leveled out. He goes to the Booth Gardiner Parkinson center in Seattle.
My mother sees a DR at KU for her heart. She lives in the KC area.
I think the hardest part is knowing when to offer help to a spouse, learning patience (which I have very little ) and that makes me frustrated, and knowing when and what to say to someone who has always been a very strong mans man. If you know what I mean?
I just hope I can be a strong person for him when he needs me to be. I wish they had some kind of support system for PD patients that were in the early stages. The support that I have attended are for mostly wheelchair, walker and older patients. That is depressing to witness, even though u know it will happen I dont really want to see it at this point and I know it bothers my husband....the inevitable.
Ok well I am done crying on your shoulder. Thanks for reading, and if you can help me or I can help you please dont hesitate to do so.

Deb
www.oysterments.com



 
> Date: Sat, 16 Oct 2010 11:32:09 -0500
> From: [log in to unmask]
> Subject: Introduction
> To: [log in to unmask]
> 
> Hello,
> I am a Occupational Therapy Student and The University of Kansas Medical Center. I joined this listserv to learn and understand more about having Parkinson's Disease or being a caregiver for someone who has it. My grandmother passed away from it when I was only 6 months old, so I never really was able to get to know her and spend time with her. Any information would be greatly appreciated. Also, just hearing your stories would bring some insight as well.
> Thanks a bunch,
> Sara Debes
> 
> 
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