yes, I know, although they cannot tell exactly there is a formula they can 
use.  I'm confident my new neuro can handle  it, unlike my old one.

my "bike" just has motorized pedals.   I pull up to it in my wheelchair and 
watch TV while it helps  me pedal.

--------------------------------------------------
From: "Marti Coleman" <[log in to unmask]>
Sent: Sunday, October 17, 2010 4:44 PM
To: <[log in to unmask]>
Subject: Re: New member

> Your neurologist/DBS person should be able to see how much battery you 
> have left
> at any given time so that you are not put in a position where the battery 
> dies
> and you are without stimulation.  The battery gets used up depending upon 
> how
> high your voltage is, and they can measure that.
>
>
> By the way, I assume when you say "forced cycling" that you mean 
> stationary
> biking?
>
>
>
>
>
> ________________________________
> From: Rayilyn Brown <[log in to unmask]>
> To: [log in to unmask]
> Sent: Sat, October 16, 2010 8:09:48 AM
> Subject: Re: New member
>
> It is the batteries that die; the neurostimulators are in my brain; sorry, 
> I
> have to get new batteries every 3  years now.  This whole treatment is so 
> hard
> to explain to people I've gotten mixed up on what I call stuff.
>
> I do forced cycling for 2 hours a day and after a year and a half have 
> lost
> about 12 lbs.
>
> --------------------------------------------------
> From: "Marti Coleman" <[log in to unmask]>
> Sent: Friday, October 15, 2010 6:46 AM
> To: <[log in to unmask]>
> Subject: Re: New member
>
>> I take the regular C/L now, although I've tried all of them at one time 
>> or
>> another.  I get nauseous, too, but I don't see any alternative.  Thanks 
>> for
> the
>> tip about ginger ale--I've tried that before, but maybe I'll try it 
>> again. I'm
>> sorry you have had trouble with your DBS-what makes the stimulators stop
>> working?  I thought the battery rook care of that.  You are not alone--we 
>> have
>>a
>> small support group in Bloomington, IN, and there is one other person 
>> besides
>> myself who has had DBS, and he is not doing well at all.  I hope the
>> reprogramming helps you.  It just goes to show how very individualized 
>> this
>> disease is.  I wish my meds would help ME lose weight!!
>>
>>
>>
>>
>> ________________________________
>> From: Rayilyn Brown <[log in to unmask]>
>> To: [log in to unmask]
>> Sent: Thu, October 14, 2010 9:52:07 PM
>> Subject: Re: New member
>>
>> Hi  Marti
>>
>> I  had 2 DBS in 2003 (one was redo of one side) at age 67. I've had the
>> stimulators replaced twice now.  I never took PD  meds much as they 
>> didn't
> seem
>> to help, but when I "crashed" when  my stimulators died in August
>> carbidopa/levadopa enabled me to move a little.  My new neuro gave me CR
>> carbi/leva but I 'm waiting to try it again after I stabilize after some
>> reprogramming.  Do you take the regular  C/L or do you have the 
>> controlled
>> release kind?  it gives me slight nausea but  helps me lose weight.  my 
>> neuro
>> said to drink ginger ale.
>>
>> Although I can barely speak, at least I can move and don't tremor.  I'm a 
>> big
>> DBS booster but I guess some PWPs have not had good results.
>>
>> --------------------------------------------------
>> From: "Marti Coleman" <[log in to unmask]>
>> Sent: Wednesday, October 13, 2010 4:35 PM
>> To: <[log in to unmask]>
>> Subject: New member
>>
>>> Hi all!!  I was a member of this group several years ago but let my
> membership
>>> lapse because I didn't have time to read all the input.  Now I'm 
>>> semi-retired
>>> and think maybe I can keep up with it.
>>>
>>>
>>> I am a 61 year old female, and this is my 24th year with Parkinson's. 
>>> Two and
>>> a
>>> half years ago, I had the deep brain stimulation operation on both sides 
>>> of
> my
>>> brain.  I still take carbidopa/levadopa 10 /100 and Amantadine, but I 
>>> quit
>>> everything else cold turkey because the meds were making me feel sick 
>>> all the
>>> time.  I've tried just about everything in the arsenal of meds during my 
>>> 24
>>> years with PD, but for now this combination seems to be adequate.  I 
>>> would
>>> encourage anyone who is interested to look into DBS seriously, as it has
>>> definitely proven helpful to me.
>>>
>>>
>>> I would welcome any questions about the operation, or anything else for 
>>> that
>>> matter.
>>>
>>> Thanks for listening.
>>>
>>> Marti Coleman
>>> Bloomington, Indiana
>>>
>>> ----------------------------------------------------------------------
>>> To sign-off Parkinsn send a message to: 
>>> mailto:[log in to unmask]
>>> In the body of the message put: signoff parkinsn
>>
>> ----------------------------------------------------------------------
>> To sign-off Parkinsn send a message to: 
>> mailto:[log in to unmask]
>> In the body of the message put: signoff parkinsn
>>
>>
>> ----------------------------------------------------------------------
>> To sign-off Parkinsn send a message to: 
>> mailto:[log in to unmask]
>> In the body of the message put: signoff parkinsn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: 
> mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: 
> mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn 

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn