Ray and all,

an article on MJ Fox. If this was already posted pardon the repeat. Have
been away from email.

Kathleen


http://www.newsmaxhealth.com/health_stories/Michael_J_Fox_new_show/2012/08/16/469155.html

On 17 August 2012 02:38, Rayilyn Brown <[log in to unmask]> wrote:

> John
>
> I've been reading the details on these 'adverse" reactions and it seems
> they are  more prevalent among later stage PWPs than early  ones.   This is
> my 16th year, dxed 1996....
>
> I'm worried about the building up of the drug as it was a month and a half
> on Amantadine when I got hallucinations.  I have had so  many medical
> problems in my life I am tired of experimenting.    Was allergic to chemo
> after 8 months.
>
> MJFox's new regime seems to have really helped whatever it is.
>
> Thanks. and good luck
>
> -----Original Message----- From: John
> Sent: Thursday, August 16, 2012 11:21 PM
> To: [log in to unmask]
> Subject: Re: Neupro Patches
>
>
> Interesting. We just got samples from Dr, for 7 days, and a prescription
> for
> another 30 days. Weaned off of Requip (ropinerole) over one week and put on
> the first patch yesterday, second one today. No adverse reactions yet, and
> not sure about the effectiveness - Sue is also on some new blood pressure
> meds (to raise BP) and it seems to cause some major problems that act like
> 'off time' for PD.
>
> We're concerned cause the info with Neupro suggested starting an advanced
> Parkinson's patient at 4mg per 24 hours, while what we got is 1mg! A call
> to
> Dr got usual, "I always start my patients on very low dose to make sure no
> side effects . . ." . So we're a little worried that the Neupro may not
> even
> do whatever the Requip was providing, which wasn't a whole lot.
>
> We'll see.
>
> John, for Sue diagnosed in 2003.
>
>
> ----- Original Message ----- From: "Rayilyn Brown" <[log in to unmask]>
> To: <[log in to unmask]**>
> Sent: Thursday, August 16, 2012 10:14 PM
> Subject: Neupro Patches
>
>
>  I finally got the Neupro Patch samples but  decided not to try them due
>> to too many possible adverse reactions.   I know they have to be listed ,
>> but I don’t have  much luck with  meds.    Amantadine gave   me horrible
>> hallucinations.
>>
>> Hallucinations,  bad experience with Amantadine
>> Psychotic behaviors,  I value my sanity, about all I have left.
>> Weight gain, have been unable to lose for last 30 years
>> blood pressure elevation, I take  BP med
>> daytime sleepiness, I have trouble sleeping at night
>>
>> are a few possible side effects.
>>
>> Does anyone on the List use Neupro patches?    I’d be interested in your
>> experiences and  if/how it has helped you.
>> Ray
>> Rayilyn Brown
>> Past Director AZNPF
>> Arizona Chapter National Parkinson Foundation
>>
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