right heel to left toe, left heel to right toe, right knee into coffee table....I got talked into buying an expensive heavy-duty muscle-massager (£79 & they said that was half-price) - rather to my surpise, it does help with the "off" periods by unjamming the frozen muscles in  my left leg. Not quite snake oil, that massager - worth the outlay to knock 30-40% off my "frozen leg" periods.  worth the money even if the salesman did exaggerate the benefits a bit - it can also temporarily stop my arm shaking long enough to type a letter / serve up a meal etc.
 > Date: Sat, 25 Aug 2012 23:11:14 -0700
> From: [log in to unmask]
> Subject: Fw: balance/Hilary
> To: [log in to unmask]
> 
> -----Original Message----- 
> From: Rayilyn Brown
> Sent: Saturday, August 25, 2012 9:41 AM
> To: hilary blue
> Subject: Re: balance/Hilary
> 
> I did a search and found an interesting exercise - right heel to   left toe,
> left heel to right toe, like  a tightrope walker.  I have to  use   walker,
> but I think it may be  helping.  Tightwire artists have great  balance,
> there may be something to it.
> 
> 40 years with pd and   I thought 16 was bad!!
> 
> -----Original Message----- 
> From: hilary blue
> Sent: Thursday, August 23, 2012 1:59 PM
> To: [log in to unmask]
> Subject: Re: balance/Amanda
> 
> try exercise that is spe cifically designed to improve balance. ask your
> doctor to prescribe a course of physiotherapy. they have exercises for
> everything nowadays - including urinary  incontinence a d constipation
> it cant hurt and any exercise is good so give it a try. it worked for me.i
> had the usual dbs that makes balance worse - after a couple of bad falls i
> tried pt and it is working!
> best wishes and good luck ,
> from hilary (40 years with pd and still going strong)
> 
> ________________________________
> From: Nigel Harland <[log in to unmask]>
> To: [log in to unmask]
> Sent: Wednesday, August 22, 2012 8:20 AM
> Subject: Re: balance/Amanda
> 
> Hi,
>     Re balance...I underwent an experimental DBS, specifically targetting
> the area of the brain which deals with balance issues(PPN) back in 2009.The
> initial results were fantastic, the day after the op' I could walk with no
> balance problems, I could talk
> and my sense of smell returned, and there were no more tremors or
> dyskenesias, It was a shame that all of these good points slowly went away
> after one week, never to reappear,despite numerous visits to the hospital to
> fine tune the stimulators.
> I had a standard DBS (STN)
> a year later which has helped but it certainly hasn't been the " Fix All "
> that I had been hoping for.
> I am still falling over approx' 3 times a day, would be more if I didn't use
> my walker.
> 1/ I think that high dosage of Madopar ( sinemet eqv) contributes towards
> falling
> 2/  I think that Neupro patches contribute to obsessive behaviour problems,
> I am now on ropinerole which is not a lot better to be honest
> 3/ If anyone has any ideas about solving the balance problems please can you
> let us know !!
> 
> Regards,
> Nigel Harland age 57, dx 1989
> 
> ----- Original Message ----- From: "A Phillips"
> <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, August 21, 2012 3:51 PM
> Subject: Re: balance/Amanda
> 
> 
> > Not really, in fact I think the Sinemet may be making it worse. Confidence 
> > seems to be a majorfactor. I use a 4-wheel rollator and a knee-scooter in 
> > the corridor / for short trips outside  (my flat is shaped like a railway 
> > carriage,with a long corridor).Have you had an eye-test in the last year ? 
> > Being able to see clearly helps.  Only pain I get on moving is banging 
> > into things.In off periods I often crawl as its' easier.
> > > Date: Mon, 20 Aug 2012 09:50:10 -0700
> >> From: [log in to unmask]
> >> Subject: balance/Amanda
> >> To: [log in to unmask]
> >>
> >> Amanda
> >>
> >> does anything you take help with balance?  So far I can stand the pain
> >> associated with  moving, but really fear falling again.   Black eyes and
> >> hematomas may not be all I get if I fall again (fell 3 times this 
> >> winter).
> >>
> >> -----Original Message----- From: A Phillips
> >> Sent: Sunday, August 19, 2012 6:56 PM
> >> To: [log in to unmask]
> >> Subject: Re: Neupro Patches
> >>
> >> I use Neupro patches.  A few rather feeble hallucinations (come on, is 
> >> that
> >> the best my subconscious can do ?) & insomnia but am also on pramipexole,
> >> entacaponeand sinemet.
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