The Dulcimur works quite well for a musical instrument.

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From: Parkinson's Information Exchange Network
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Subject: PARKINSN Digest - 21 Feb 2014 to 22 Feb 2014 (#2014-44)

There are 2 messages totalling 280 lines in this issue.

Topics of the day:

  1. The Peripatetic Pursuit of Parkinson's Disease
  2. Musical Instrument For PWP

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Date:    Fri, 21 Feb 2014 14:42:06 +0000
From:    A Phillips <[log in to unmask]>
Subject: Re: The Peripatetic Pursuit of Parkinson's Disease

I'll try=2C but he has so many patients he  probably hasn't the time. =20
=20
> Date: Thu=2C 20 Feb 2014 10:05:11 -0500
> From: [log in to unmask]
> Subject: Re: The Peripatetic Pursuit of Parkinson's Disease
> To: [log in to unmask]
>=20
> Amanda=2C
> that is exactly what we hope will happen -- that medical personnel  who
> work with PWP will read the book and gain   some insight of their.patient=
s'
> lives. Give a copy to your doctor=2C nujrse=2C physical 
> therapists=2Cetc.=
 Or ask
> them to order a copy ( see
> http://parkinsonscreativecollective.org/shop.html
>=20
> linda
>=20
>=20
> On Wed=2C Feb 19=2C 2014 at 11:40 AM=2C A Phillips
> <[log in to unmask]>wrote:
>=20
> > My copy just arrived and you're right=2C it is a masterpiece.
> > My neurologist thinks he understands PD because his mother had it=2C 
> > bu=
t he
> > doesn't
> > really (no offence meant if you're reading this email=2C doc.  How 
> > coul=
d you
> > know?).
> >
> > The local specialist Parkinsons nurse is new in post after the old 
> > one retired and I sometimes feel like shouting "stop typing 
> > everything I say into your report and LISTEN !"  Wonder if I could 
> > get her to read this book ?
> >
> > Especially page 70.
> > Amanda
> >
> >
> > > Date: Thu=2C 30 Jan 2014 11:16:42 -0700
> > > From: [log in to unmask]
> > > Subject: Re: The Peripatetic Pursuit of Parkinson's Disease
> > > To: [log in to unmask]
> > >
> > > this book is all Linda says it is and more.  it's a masterpiece!!!!!
> > >
> > > -----Original Message-----
> > > From: linda herman
> > > Sent: Wednesday=2C January 29=2C 2014 4:30 PM
> > > To: [log in to unmask]
> > > Subject: Re: The Peripatetic Pursuit of Parkinson's Disease
> > >
> > > The new book=2C The Peripatetic Pursuit of Parkinson Disease is 
> > > avail=
able
> > on
> > > the Parkinson Creative Collective web site at 
> > > http://parkinsonscreativecollective.org/book.html
> > >
> > > It is also available on Amazon=2C but they are often out of stock.  
> > > S=
upport
> > > groups can request a free copy to be available for borrowing by 
> > > all o=
f
> > its
> > > members. (also see  PCC web site for contact info
> > >
> > > I had the honor  of working with the remarkable members of the PCC 
> > > fo=
r
> > the
> > > last  3 years=2C I know how hard they all worked. but it was a 
> > > labor =
of
> > love
> > > for all  the authors.
> > >
> > > The goal was to Inform the global  PD community=2Cand others on  
> > > ever=
ything
> > > PD   -- all from the point of view of PWP=2C Over 100 writers from al=
l over
> > > the world contributed  articles=2C essays=2C poetry=2C web 
> > > postings a=
nd other
> > > formats. It also includes up to date and accurate medical and 
> > > scienti=
fic
> > > information on the disease - how to treat it=2C how to cure it and 
> > > ho=
w to
> > > live with it
> > >
> > > The book was designed to reach the readers' hearts=2C as well as 
> > > thei=
r
> > > brains=2C and based on the reviews and comments we are 
> > > receiving.=2C =
it
> > appears
> > > the book has done just that=2C
> > > linda
> > > p.s. If you read The Peripatetic Pursuit... and find it helpful. 
> > > plea=
se
> > > consider helping us spread the word by writing a book review for 
> > > your
> > local
> > > PD newsletter. posting comments on Amazon or other online 
> > > discussion groups=2C forums=2C etc
> > >
> > >
> > > On Tue=2C Jan 28=2C 2014 at 1:24 PM=2C A Phillips
> > > <[log in to unmask]>wrote:
> > >
> > > > you're chasing Parkinson's Disease ?   Let the sod get away !!
> > > > Amanda
> > > >
> > > > > Date: Mon=2C 27 Jan 2014 18:59:11 -0700
> > > > > From: [log in to unmask]
> > > > > Subject: The  Peripatetic  Pursuit of Parkinson's  Disease
> > > > > To: [log in to unmask]
> > > > >
> > > > > arrived today.  It is  a gorgeous=2C beautiful book that 
> > > > > covers
> > > >  EVERYTHING about PD.  Every PWP should  have it.  Prem and 
> > > > Moneesh=
a
> > are
> > > > in
> > > > it with an article about them.  Thank you=2C thank you=2C 
> > > > Katherine=
.  I am
> > > > overwhelmed!!
> > > > >
> > > > > It will take me some time to read it all.
> > > > >
> > > > >
> > > > > Ray
> > > > > Rayilyn Brown
> > > > > Past Director AZNPF
> > > > > Arizona Chapter National Parkinson Foundation
> > > > >
> > > > >
> > --------------------------------------------------------------------
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>=20
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------------------------------

Date:    Fri, 21 Feb 2014 14:43:56 +0000
From:    A Phillips <[log in to unmask]>
Subject: Re: Musical Instrument For PWP

I sang in the shower and got a note saying please don't .......
of course  it was 1 am.
Amanda
=20
> Date: Thu=2C 20 Feb 2014 11:49:14 -0500
> From: [log in to unmask]
> Subject: Re: Musical Instrument For PWP
> To: [log in to unmask]
>=20
> And let us not forget what  is arguably the most important musical=20  
>instrument of all=2C found in every context=2C used by composers of 
>every=
 age=2C=20
> and which may be "played" solo or in symphonies of thousands: our 
> voice.=
=20
> Quite seriously=2C though=2C I have been singing regularly in a church 
> ch=
oir for=20
> many years (almost two thirds predating my PD diagnosis) and even 
> though =
I=20
> have a tendency to speak softer=2C I am still able to muster my 
> "teacher=
=20
> voice" or belt out Handel's "Alleluias" thanks to the regular exercise 
> of=
=20
> diaphragm and respiratory apparatus from singing.
>=20
> I guess I should add a disclaimer:  when selecting a venue for 
>singing=2C=
 it=20
> would be wise to check the sound insulation between your and the 
> neighbor=
s'=20
> abodes=2C and/or to keep the window of your car rolled up so that you 
> wil=
l=20
> only look ridiculous.
>=20
> Roger
>=20
>=20
> -----Original Message-----=20
> From: A Phillips
> Sent: Tuesday=2C February 18=2C 2014 12:54 PM
> To: [log in to unmask]
> Subject: Re: Musical Instrument For PWP
>=20
> Good for you - but please=2C don't try the bagpipes !
> I've so far  tried electronic  keyboard=2C clarinet=2C recorder=2C 
>chalam=
eau=2C=20
> penny whistle=2C lap-harp=2C low whistle=2C concertina=2C melodeon=2C 
> lyr=
e=2C zither=2C=20
> mouth organ=2C melodica=2C a small organ=2C panpipes and electronic 
> drumk=
it.   In=20
> most cases=2C still trying =2C plenty of enthusiasm but not much 
> potentia=
l.
> The neighbours are patient but the drum kit was discouraged.
>=20
> Amanda
>=20
> > Date: Mon=2C 17 Feb 2014 15:34:49 +0200
> > From: [log in to unmask]
> > Subject: Musical Instrument For PWP
> > To: [log in to unmask]
> >
> > This past weekend I discovered that I have musical potential.
> >
> > I stumbled onto an instrument that seems to be custom made for us 
> > Parki=
es.
> > All I had to do to play it was to pick it up and Viola!! To stop 
> > playin=
g
> > it=2C I just put it down!
> >
> > I really had fun this past weekend playing the Tambourine =3B-))
> >
> >
> > Nic 61/19
> >
> > --------------------------------------------------------------------
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End of PARKINSN Digest - 21 Feb 2014 to 22 Feb 2014 (#2014-44)
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