READ THIS MESSAGE AND THEN TAP ON YOUR COMPUTER IN THE SPOT  THAT WILL 
SAY-----------"REPLY"--------- THEN, -A BLANK SPACE OVER THE MESSAGE  YOU WANT 
TO REPLY TOO WILL COME UP------------AND THEN-------------WRITE YOUR  MESSAGE 
AND TAP ON-----------------"SEND NOW"-----------------.   
 
THAT IS ALL YOU HAVE TO DO TO WRITE A RESPONSE TO ANY MESSAGE  SENT TO  YOU.
 
MARGARET
 
 
In a message dated 3/13/2014 12:59:06 A.M. Pacific Daylight Time,  
[log in to unmask] writes:

The blog  below is fantastic!i sure enjoyed reading the two entries. I 
tried to post a  comment but don't think it saved it, not really sure how to do 
it?  Any  suggestions would be wonderful. Please keep it up,  thank you,  

Fondly sent to you from: Patti 

On Mar 10, 2014, at 2:19 PM,  [log in to unmask] wrote:

> MY HUSBAND AT 92 SUFFERING FROM ALL THE  SAME THINGS----BUT---  THERE IS 
> LOTS OF  HELP THRU THE  PARKINSON ASSOCIATION AND NOW TELEHEALTH  
PROGRAMS.  
> LOOK  FOR ALL THE INFORMATION REGARDING  PARKINSON ON  BOTH THE VETERAN  
> ADMINSTRATION AND MEDICARE WEB  SITES.   IT'S  THERE---SO DO NOT GIVE UP 
UNTIL YOU 
> FIND IT AND  ENROLL.
>  
> MARGARET (HIS WIFE)
> 
> 
> 
> 
> In a  message dated 3/10/2014 2:28:20 A.M. Pacific Daylight Time,  
>  [log in to unmask] writes:
> 
> Unable  to  communicate ?
> From  the woman who (along with the others in  the  list) saved my sanity 
> (possibly stopped me suiciding) when  first  diagnosed.
> Amanda
>> Date: Sun, 9 Mar 2014  19:41:13 -0700
>> From: [log in to unmask]
>> Subject: Re:  Blog
>> To:  [log in to unmask]
>>  
>> Sharon
>> 
>> Your  family will never  understand because it is impossible to describe
> it.
>>  
>> my first 5 years were great and even after  DBS in  2003  I  could do
> things. 
>> Now going on year 18  I'm in real trouble.  I  never knew talking,
> writing,  
>> doing anything  could be so  painful.   Communication is so hard, it
> affects 
>> my whole   body.   I mean everybody can talk, right?  I once said  that  
PD
>> is like rigor  mortis without benefit of death,  and I stand by  that.
>> 
>> But I look good, people  say, so what could be  wrong?  At 78 I'm in 
good 
>> shape  for the shape I'm in.
>> 
>> -----Original Message-----  
>> From: Sharon
>> Sent:  Saturday, March 08, 2014  11:00 AM
>> To:  [log in to unmask]
>>  Subject: Re: Blog
>> 
>> I'm  glad to join in. Have had  PD for a while although I'm still
> reasonably  
>> we'll.  however, I need somewhere to air my feeling as my family  doesn't
>  seem 
>> to understand how I look at my possible future. I   deserve this because
> my 
>> Father lived with PD for 20+  years and I  never really understood what 
he
> was 
>>  experiencing. I thought it was  just aging and resented him because  he
> never 
>> tried to do anything to  help himself.  Didn't know about abulia (the 
lack
> of 
>> motivation  that  was part of his longstanding depression). As you surely
>  know 
>> its  impossible to foresee the future and some of us  will stay
> relavitively  
>> well, others will go on a  never ending downhill journey that is not  
> pretty. 
>>  I think they want me to stay positive but I am being  realistic in  my
> fears, 
>> I believe. Thet don't seem to want to   understand when I am 
experiencing 
>> something that I know is part  of  the disease and they think I am 
>> overreacting. They scoff  at my double  vision, crazy dreams, soft 
hoarse 
>> voice,  shaky  illegible  handwriting, etc.
>> 
>> Sent  from my iPad
>> 
>>> On  Mar 7, 2014, at 6:44 PM, A  Phillips <[log in to unmask]> 
 
>>>  wrote:
>>> 
>>> I've started a blog; if anyone   is interested it's at 
>>>  http://phillips-writes.blogspot.co.uk/
>>> Not much on it yet but  am  working on it.
>>> The blog will probably just be about  whatever I  happen to feel like 
>>> writing  about.
>>> 
>>> Amanda Phillips
>>>  
>>>  ----------------------------------------------------------------------
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>> 
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>> 
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> 
>  ----------------------------------------------------------------------
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> 
>  ----------------------------------------------------------------------
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In the body of the message put:  signoff parkinsn


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