Marysa

The way I read John's mail, the 'List' will continue, only the PIEN Webpage
will go.

Am  I right John?

Nic 62/20

On 18 November 2014 14:05, Maryse Schild <[log in to unmask]> wrote:

> > Hello Friends and fellow travelers, for PIENO (Parkinsn Website) we have
> > reached a fork in the road.
>
>
> John, I am very sorry to read the end of this list is nigh. I shall never
> be able to thank you and Barbara enough for making this list available to
> us, many years ago. It was a time when even in the most advanced textbooks
> on neurology, ´Parkinson´ had no more than about 10 lines, saying it was
> the only ´treatable´ neurological disease. I think I joined around 1997,
> wanting to help my partner John, a PWP who was also a neurologist but so
> little was known then about the disease. It is lists like this one that
> made us discover symptoms that were never described before being part of
> PD. This list has been invaluable to me certainly but to so many in
> discovering, step by step, what is now known ´officially´.
> This brings back sad memories but also funny passages about pink flamingos
> and pig cells. So many people who became friends. Some have gone, some are
> still with us.
> This list has been for me the lighthouse in the dark so again: THANK YOU
> both.
>
> On a more practical side: could you post the link to the archives please?
> And for Caregivers who want to keep on  learning and finding support, I
> remind you there is a list, CARE, started many years ago by Camilla
> Flintermann and now run by Teresa Marty.
> I know there is an easier way to join it but if you write to :Teresa Marcy
> <
> [log in to unmask]>
> she will sign you on.
>
> We can still be together until the end of the year. So long
>
> maryse ( ex cg for John)
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:
> [log in to unmask]
> In the body of the message put: signoff parkinsn
>

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