I wanted to add my thanks to John and Barbara for all their work and effort
over the years in Creating and maintaining the Parkinsn list. *Back in
1993, * It can be considered  the  first  social media for PWP.. There are
many otheeri

On Sat, Nov 22, 2014 at 6:00 AM, Bob Allison <[log in to unmask]>
wrote:

> thanks to all who made this possible...a lot of help passed thru these
> posts!
> Bless all of you!
> Linda Herman  Would you mind giving me your email?  I found you to be
> knowledgeable, balanced and well spoken.
> Thanks, Bob
> ---- Kathleen Cochran <[log in to unmask]> wrote:
> > Dear John,
> >
> > I'm so grateful to you, Barbara, and all who made the effort over the
> years
> > to keep the website and the listserv going. You can't overestimate how
> > important this group has been in the lives of so many. Even at times when
> > the posts have been few and the content reduced, it's always
> > been meaningful and reassuring to me to see familiar Parkinsn names pop
> up
> > in my email box, or meet someone new to the list.
> >
> > Yes, there are other forums. But they can't replace this one.
> >
> > Heartfelt thanks,
> >
> > Kathleen
> >
> >
> > On Tuesday, November 18, 2014, John Cottingham <[log in to unmask]
> >
> > wrote:
> >
> > > Hello Friends and fellow travelers, for PIENO (Parkinsn Website) we
> have
> > > reached a fork in the road.
> > >
> > > With a heavy heart, the website will cease to exist December 31st. The
> > > email list will live on but after consulting with Barbara Patterson and
> > > some other dear friends we decided to make this decision since the
> > > landscape has changed dramatically in technology and others have the
> > > resources to provide advanced and current information.
> > >
> > > My time doing the technical stuff to keep it running smooth was taking
> > > away from my other endeavors. Since the beginning about 14 years ago we
> > > have had no sponsors, just dedicated folks like you to post
> interesting and
> > > current information.
> > >
> > > The copyright lawyers looked at our archives and went over them with a
> > > fine toothed comb to find violations. For those perceived violations
> they
> > > threatened to take my Social Security for something, someone else
> posted.
> > >
> > > As a result, Parkinsn the past several years has just been links posted
> > > about everything and no participation saying in your opinion how the
> link
> > > was relevant to us. Barbara and I truly believed in giving and
> nurturing
> > > those who needed help and those generous souls who have contributed
> that
> > > heartfelt help. Posting links and Me To replies somehow doesn't meet
> the
> > > helping others hurting with our common conditions. Parkinsn is a
> discussion
> > > list....even if you disagree.
> > >
> > > Please get acquainted to the links in the headers of your Parkinsn
> email
> > > for ways to interact with the listserv. The archives will be on the
> > > listserv where they have always been but will just not exist on the
> PIENO
> > > website after December 31st.
> > >
> > > We have been thrilled with the breakthroughs in research, marching and
> > > writing and calling and decades have passed and we still have the same
> > > degenerative condition. We have become weary in well doing.
> > >
> > > In the New Year where ever you go to get neurological information,
> support
> > > them and participate.
> > >
> > > Thank You All
> > >
> > > John Cottingham
> > > co-owner Parkinsn
> > > ----------------------------------------------------------------------
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> > >
> >
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