I found the address for NORD for those looking for help with
medication costs:
 
National Organization for Rare Disorders
NORD
PO Box 8923
New Fairfield, CT 06812-8923
 
1-800-447-NORD (6673)
in CT 203-746-6518
 
Also a change in the internet address
 
http://www.w2.com/nordmail.html
 
Good luck
 
Dar