>There are 15 messages totalling 1035 lines in this issue.
>
>Topics of the day:
>
>1. Post Pallid. Op Effects
>2. Udall Letter Writing
>3. vocal`cords
>4. Estrogen Replacement Therapy and PD (5)
>5. Shingles
>6. Tax Help
>7. a little humor
>8. New Member (2)
>9. <No subject given>
>10. prozac again
>
>----------------------------------------------------------------------
>
>Date:    Sun, 14 Apr 1996 00:18:09 -0400
>From:    [log in to unmask]
>Subject: Re: Post Pallid. Op Effects
>
>A young man (30's) in our group (no E-mail) had Pallid at Emory and post
op
>his vocal cords collapsed. It took just a few days to return with no
serious
>damage. He has much improved, that is his posture is near normal and
barely
>any visible dyskenesia. Good luck
>
>------------------------------
>
>Date:    Sat, 13 Apr 1996 20:53:11 -0400
>From:    [log in to unmask]
>Subject: Udall Letter Writing
>
>Someone wrote me offering too write truckloads of letters.  While
>composing my reply my computer ate his address.  Here's the reply.
>Please E-Mail me again.
>
>Great to hear that kind of enthusiasm.  If we could just get a few
>more like you say in Florida or Chicago or North Carolina.
>
>At the top of your list to write should be your two Senators.     Next on
>your list should be your Congressman. Writing letters   is good.   A lot
>of letters is great, but, I believe  that the most effective   method of
>influencing legislators is a personal visit. If we could have one
>person with Parkinson's meet with every Senator and Representative we
>will easily pass this bill.  We have a compelling case and when
>presented  personally the overwhelming majority of legislators
>contacted have agreed to cosponsor.
>
>Next on the list is Senator Nancy Kassebaum of Kansas and those on
>her Labor and  Human Resources committee who are not currently
>cosponsors   (Ashcroft-MO, Jeffords-VT, DeWine-OH, Gorton-WA,
>Coats-IN,  Gregg-NH, Abraham-MI, Harkin-IA).  Despite 29 Senators
>cosponsoring   this legislation, it remain stalled in this committee.
>
>The same is true in the House Commerce Subcommittee on Health and
>the Environment, chaired by Congressman Mike Bilirakis of Florida,
>where this bill languishes despite 109 cosponsors.
>
>Should this bill get out of the Subcommittee it requires approval of the
>full Commerce Committee chaired by Congressman Bliley of Virginia.
>
>Finally, the Republican leadership (Senator Bob Dole and Speaker
>Newt Gingerich) who will ultimately have great influence on whether
>this bill is ever considered  or passes.
>
>Keep your message simple try to limit our pitch to 3   items:  1)
>PARKINSON'S IS A DEVASTATING ILLNESS -   Although
>treatment with medication is often effective in the early   stages, these
>medications lose their effectiveness resulting in  incapacitating
>stiffiness and loss of the ability to iniatiate movement.
>
>2) A CURE  IS WITHIN OUR GRASP - Researchers describe
>Parkinson's a   the most easily cured neurological disorder - if
>adequate research   support is provided. Several major research
>advances (neural cell  transplantation, neural growth factors, and
>genetic engineering of cells)  leave Parkinson's poised on the brink of
>a major breakthrough.
>
>3) THIS LEGISLATION IS COST EFFECTIVE -   Congressional
>testimony  estimated the cost of Parkinson's Disease to exceed  $26
>million per year.  Even the most conservative estimate is a staggering
>$6 billion per year.  Expenditures of $100 million per year for five
>years to save $26 billion  per year is an investment any company in the
>private sector would make  without hesitation.
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 05:53:45 -0400
>From:    John Morey <[log in to unmask]>
>Subject: vocal`cords
>
>I am now on Sinemet, 25/100, half a pill, 3 x day, and Eldipril, 3 x wk.
One
>of the annoying side effects is my voice.  Every afternoon I sound like
I've
>got the worst cold, bordering on laryingitis(sp?).  Any suggestions?
>Peace,
>John
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 08:25:19 -0400
>From:    [log in to unmask]
>Subject: Re: Estrogen Replacement Therapy and PD
>
>Hello,
>
>I heard on the news yesterday that women who had taken estrogen had a 40%
>less incidence of Alzheimers.  This might relate to PD as some patients do

>suffer dementia too and it is a neurological disease.  However, isn't it
true
>there is a higher incidence in men of PD?  Could estrogen have something
to
>do with protecting women against PD?
>
>Spring is here!  I saw two robins looking for a place to build a nest
>yesterday.
>
>Pam ([log in to unmask])
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 08:56:00 -0400
>From:    MS D J KIPP <[log in to unmask]>
>Subject: Re: Estrogen Replacement Therapy and PD
>
>-- [ From: Donna Kipp * EMC.Ver #2.10P ] --
>
>Pam,After seeing this article and observing generally younger women do
>better then younger men  with PD. I spoke with my neuro and asked him
>if estrogen may be a factor and he agreed with the observation and
>thought it was possible. I am planning on going on ERT in the next
>month or so. I went on it a couple years ago and noticed it made my PD
>symptoms worse. As usual this is an ambiguous situation....... Donna
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 11:48:32 -0400
>From:    "Zippo Bilbrok 3.0e8" <[log in to unmask]>
>Subject: Re: Shingles
>
>Shingles (or Herpes Zoster) is a viral disease that travels along
>specific nerve lines, which is why the lesions frequently occur over
>isolated sections of the body.  The most common site for such infection
>is usually directly under the rib cage, but facial lesions (over, and
>sometimes involving, the eye) are also prevalent.
>
>The bottom line for all to remember is that this is an *infectious*
>disease, and exposure to high viral loads (to those with open lesions)
>can bring about infections in those who ordinarily wouldn't have gotten
>sick.  It is true that chicken pox virus (Herpes) remains in the body
>after infection throughout life, and stress can exacerbate immergence
>of the virus in the form of Shingles.
>
>The reason I am belaboring this point is because Herpes infections
>(specifically Chicken Pox and Shingles) can be *deadly* to those who are
>immune suppressed, specifically those on cancer chemotherapy (children
>with Leukemias are at particularly high risk) and AIDS.
>
>Discussions about Shingles being caused by stress (stress = immune
>suppression, which is true), often ignore the infectious nature of this
>disease.
>-------
>Blessings
>Mary Ann
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 10:59:30 -0400
>From:    [log in to unmask]
>Subject: Re: Estrogen Replacement Therapy and PD
>
>Its funny that this subject comes up again after more than a year.
>
>Chuck realized that my PD symptoms were greatly exagerated and exasperated

>during the five days before my period and again for two days during
>mid-cycle.   We filmed this over a period of five months to make sure and
>then submitted this to Dr. Stanley Fahn.
>During our talk with him, he mentioned that he had a much older patient
list
>and noone else ever mentioned it to him.  He did hear of this from
>researchers in the U>K>  He was not inclined to add any hormones to my
meds.
>
>He reviewed the films with his staff and a few weeks later we got some
phone
>calls from another PD researcher in Chicago who told us she had seen the
tape
>and confirmed that there were pre-menapausel with the same indications in
her
>area.
>
>Thats the last we heard of it until seeing this thread but noone has
brought
>this matter up for discussion since.
>
>SHOW OF HANDS.    DO ANY OF YOU PRE-MENAPAUSEL GALS SUFFER THE SAME
MONTHLY
>SYMPTOMS??
>
>joyce
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 08:16:19 -0400
>From:    [log in to unmask]
>Subject: Tax Help
>
>I need some tax advice.   In my last minute attempt to file I find I
>may be subject to an underpayment penality.  This is due to changes
>in my witholding as a result of going on disability in Mar of 94.
>The IRS states that this penality may be waived if it is the result
>of going on disability and the following two conditions were met:
>1)Reasonable cause for not making payment and 2) it was not willful.
>I must submit a written request addressing these items and wondered
>what wording should be used?  Anyone on disability out there who has
>faced this issue sucessfully?
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 15:57:53 -0400
>From:    [log in to unmask]
>Subject: a little humor
>
>About a week ago I heard on a radio newscast the
>following description of a cow that is suffering from the
>so-called "mad cow disease" which has been plaguing
>Great Britain lately.
>
>"When standing still, the cow trembles all over and sways
>back and forth. When it attmpts to walk the cow staggers.
>The animal also drools excessively"
>
>I told my wife that it sounded like the cow has Parkinson's.
>(on second thought, maybe I've had mad cow disease these last 9 or 10
years)
>
>Ben   [log in to unmask]
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 18:45:52 -0400
>From:    Kathie Tollifson <[log in to unmask]>
>Subject: Re: Estrogen Replacement Therapy and PD
>
>>SHOW OF HANDS.    DO ANY OF YOU PRE-MENAPAUSEL GALS SUFFER THE SAME
MONTHLY
>>SYMPTOMS??
>>
>>joyce>
>
>Every month I swear that I've experienced a dreadful progression, I'll
never
>be the same again. Meds just don't work like they're supposed to or not at

>all. You'd think I'd remember from month to month, but this short term
>memory loss kicks in and I have to go through it all over again, like that

>movie Groundhog Day but not funny.
>
>To John Morey re: his voice. Sing! That is the one thing every one marvels

>at about me, my voice is very strong. Our local APDA has a Friday morning
>sing group that is fun and run by a voice therapist, I sing in church for
a
>couple of hours a week and exercise those voice muscles. Use it- don't
lose
>it!
>
>Kathie Tollifson
>[log in to unmask]
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 18:46:10 -0400
>From:    "Kurt Deuschle (COM-M)" <[log in to unmask]>
>Subject: New Member
>
>Hi! my name is Jeanne Deuschle and I am writing for my husband Kurt,
who=20
>is 73yr. and has had PD for 12 yrs..  Although Kurt has many of the
most=20
>common PD symptoms, tremor etc. they are relatively mild when compared to=

>=20
>the significant problems he has with autonomic nervous system dysfunction=

>=20
>(manifest by orthostatic hypotension and a neurogenic bladder) and=20
>cognitive changes (attributable primarily to years of sinemet and
eldepryl)=
>..
>Kurt is on 650mg. daily of sinemet and has been off eldrpryl for the past=

>=20
>two years, He has been on a "heavy duty" neuroleptic(closapine) for the=20

>past year.  This drug has significantly helped the cognitive problems but=

>=20
>
>has its own side effects(great drowsiness,lowers BP ,severe=20
>constipation). The drug also requires a weekly blood count.
>We would love to hear from anyone who has experienced similar problems
>
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>AT&FE1L1V1&C1&D2S0=3D0S7=3D90 m mmAT&FE1L1V1&C1&D2S0=3D0S7=3D90 =FBs=DDd=
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>and learn how others have coped=20
>.  We are very optimistic and hope and pray for a "cure" before too long!
>
>It is a good feeling to know that there are others who are simpatico to=20

>our PD trials and tribulations
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>Hi! My name is Jeanne Deuschle, and I am writing for my husband Kurt
>who is 73yr. and has had Parkinson's for 12 yrs.  He is on 650mg. of=20
>Sinemet daily ..off deprenyl now. Although Kurt has some of the common
>PD symptoms of tremor,etc. they are mild when compared to his more=20
>difficult problems... autonomic nervous system dysfunction (manifest by=20

>orthostatic hypotension and a neurogenic bladder) and cognitive changes.
>His cognitive problems have developed over the past two years or so. Kurt=

>=20
>is now on Closapine, a "heavy duty" neuroleptic drug. The drug has helped=

>=20
>greatly...but has many side  effects to deal with such as lowering=20
>BP,terrific drowsiness,and severe constipation.  The cognitive problems=20

>are drug related..years of sinemet and eldepryl! We continue to "hang
in=20
>there" and are hoping and praying for a cure. We would love to hear
from=20
>anyone who has had experience with these kinds of problems and learn
how=20
>they are coping.
>
>It is wonderful to have a "simpatico" group of people to reach out to.
>
>Jeanne ([log in to unmask])
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 21:00:12 -0400
>From:    shalelou <[log in to unmask]>
>Subject: <No subject given>
>
>this is a test
>Evelyn Bails
>
>------------------------------
>
>Date:    Sun, 14 Apr 1996 21:54:05 -0400
>From:    "J.R. Bruman" <[log in to unmask]>
>Subject: Re: Estrogen Replacement Therapy and PD
>
>Joyce, I don't know if you saw my post on menstrual-related fluctuations
>a few months ago. There was one report that Diamox dramatically reduced
>the effect; maybe you could ask your neuro to look it up in the local
>medical library, and see what he thinks:
>Factor S; Movement Disorders 1993:8:240-241
>Cheers, Joe
>
>
>J. R. Bruman (818) 789-3694
>3527 Cody Road
>Sherman Oaks CA 91403
>
>
>On Sun, 14 Apr 1996 [log in to unmask] wrote:
>
>> Its funny that this subject comes up again after more than a year.
>>
>> Chuck realized that my PD symptoms were greatly exagerated and
exasperated
>> during the five days before my
>
>*** Press F5 to see the rest of this article ***