I think it is very generous of you both to even offer private consultation
or individual support as you do.  If the pallidotomy was available thru
medicare I would have my mother inl aw get it in a heart beat.
Unfortunately neither she nor I can afford it.
Laurie
>George...... I think folks are just plain ol LAZY.  I've responded in kind
>(tho I didn't have MGM or Warner Bros. do a video of my pallidotomy!) <grin>
>that I'd be happy to share my own experience - which was a very positive one.
>In fact, I sent email offering either emailed information or would go voice
>via phone if that was what was preferred.   Addmittedly, a few people did
>wanna talk on the phone about the surgery and we did.  It's a SUCH a good
>feeling to then read here that they've had their respective surgeries, and for
>the most part experienced great relief from PD symptoms (my heart goes out to
>those who've had only mild or minimal relief)
>
>But I feel, basically, if someone here asks for information about a
>pallidotomy FROM those who've had 'em, and IF we don't respond DIRECTLY to the
>list with our idividual stories (and the LAST thing I wanna do is to bore
>everyone here by constantly repeating the history of my surgery!), that our
>offers for privately conveyed information is simply ignored for the most part.
> Dunno why, really.  Maybe they don't read any messages that dont 'have THEIR
>name at the top?  I just haven't a clue....
>
>Barb Mallut
>[log in to unmask]
>
>----------
>From:   PARKINSN: Parkinson's Disease - Information Exchange Network on behalf
>of George Lussier
>Sent:   Wednesday, October 09, 1996 8:58 PM
>To:     Multiple recipients of list PARKINSN
>Subject:        AN OFFER YOU CAN REFUSE?
>
>        Dear reader,
>   A thought has passed my petty mind of late and it concerns several
>people who have requested assistance with geathering information
>re:Pallidotomy surgery. I have offered to share my recent surgery with you
>all via e- mail,the phone,black and whites or color stills or a video but
>no one has be in touch regarding this project. I had not considered
>charging for the loan arrangement except for postage. Although since I have
>been spending mucho time in my local library looking for funding to cover
>for this project and an expanded version I've begun to think of charging on
>a sliding-scale but that in the future.
>   None of the film is bloody. One might even say that it was done in good
>taste.I'm taking it on the road soon...the local Pd support group. So what
>is it? Do I come across as a jerk or some such thing.
>Frank answers accepted.
>   thanks for listening to my late night moaning but you know I couldn't
>have stayed up this late and been able to use my computer as little as two
>weeks ago so all is well in Acton, Mass this fine late night.
>
>My Very Best
>  George Lussier[[log in to unmask]
>
>[log in to unmask]
>
>