My mother called to say that she had heard there was a treatment for PD
involving an implant in the chest. She asked if I would look into it on my
computer and by that she means this list. She wanted me to know that she
was not asking about "that brain implant" that she does not want to do. She
is willing to have an implant placed elsewhere but as she has not heard any
accounts about it from those who know what it is she is confused. If anyone
knows what she is talking about I'd appreciate some information on it.

gc

There are 28 messages totalling 937 lines in this issue.
>
>Topics in this special issue:
>
>  1. Attitudes/Shelley/Thurber/
>  2. Oxymorons and Copyrights
>  3. Loss of smell - zinc (2)
>  4. Aviva Bat Baruch ve Rivka, z"l (3)
>  5. Conductive Education (2)
>  6. DIABETES SURVEY /25replies needed
>  7. FW: Collagen injections: the Deed is DONE!
>  8. Walter (4)
>  9. FW: Walter
> 10. PD E-Mail priorities (3)
> 11. Dale Severance comments on listserv resources (2)
> 12. Sv: Newcomer
> 13. storeies (2)
> 14. Hornet's nest
> 15. Dale Severance comments on listserv resources -Reply
> 16. Shoe Fitting?
> 17. Funny (about stress)
>
>----------------------------------------------------------------------
>
>Date:    Mon, 19 May 1997 00:13:33 -0400
>From:    Bob & Joy Graham <[log in to unmask]>
>Subject: Re: Attitudes/Shelley/Thurber/
>
>Hi Dennis, I was interested in your little "piece"
>Can I store it away for future use in the newsletter.
>Gotta check on copyright these days... oh, do you have a direct line to
>Shelley and Thurber by any chance?
>Joy
>
>Ps. Did we tell you that last week when bob went to the GP she said his
>middle ear was full of fluid... She reckons that coulda been the problem
>all along.  So we don't know who to believe...We'd like to believe her.
>Curious that no one else picked it up though or that it was a week later in
>manifesting itself--maybe not related at all.
>The registration brochures are being printed today-- finally.
>Catch you later
>Love from
>Joy & Bob
>
>------------------------------
>
>Date:    Mon, 19 May 1997 00:13:30 -0400
>From:    Bob & Joy Graham <[log in to unmask]>
>Subject: Re: Oxymorons and Copyrights
>
>Well said Marjorie!
>Joy Graham
>
>------------------------------
>
>Date:    Mon, 19 May 1997 00:37:14 -0400
>From:    Deanne Charlton <[log in to unmask]>
>Subject: Re: Loss of smell - zinc
>
>In a message dated 97-05-16 05:27:19 EDT, Linda Forrest's mom writes:
>
><< Reduce intake of foods that
> >slow
> >the digestive system, wheat and dairy. Power house your body with
> >amino acids(for 5 to 7 days). >>
>
>Studies have repeatedly shown that dietary fats slow the digestive system.
> Wheat and dairy cause overproduction of mucous and are prohibited from the
>diets of patients with celiac sprue.
>
>The specific amino acids are important.  Are you suggesting 5 to 7 specific
>ones for their specific effects, on an empty stomach so they won't have to
>compete for absorption (thus utilization)?  If not, are you simply saying to
>take an amino acid pill?  That is, actually, the most expensive way to eat
>protein, since protein is made of amino acids.
>
>I can appreciate your encouragement that people look to their diets as a
>major component in their health or illness, but this post seemed
>irresponsible, even though you were careful to say the diet you refer to
>won't work for everyone.  There seemed to be more unproved, regurgitation of
>vitamin sales rep hype or something somebody shopping in a health food store
>(one of my favorite kinds of stores!) happened to say than sound
>biochemistry.
>
>Keep on doing what works.
>
>Deanne Charlton
>[log in to unmask]
>
>------------------------------
>
>Date:    Mon, 19 May 1997 03:50:02 -0400
>From:    "David S. Devor" <[log in to unmask]>
>Subject: Aviva Bat Baruch ve Rivka, z"l
>
>B'S"D
>
>Dear Friends,
>
>I deeply regret to have to announce that my dear Aviva died on
>Wednesday, May 7, at 56, in her 12th year with Parkinsons.
>
>It was sudden and unexpected. Aviva had picked up a flu bug that
>weakened her. Also, she hadn't eaten for a couple of days which
>further weakened her and she was vomiting quite a bit. It appears
>that, while vomiting, perhaps while sleeping, she choked to death
>and was just too weak to shake it off.
>
>I am giving you the details as a warning. Since she was always
>pushing herself, working, experimenting and taking chances and falling
>(often 5-10 times a day), we always assumed that, while in bed, she
>was completely safe and we could relax. And so, as it happened, no one
>was around to help her when she was choking.
>
>In spite of the advanced stage of her condition, Aviva, an architect
>and designer of considerable accomplishment and reputation, was
>learning a new, sophisticated, software package for drafting in 3
>dimensions. She had a reputation for thinking always of others.
>Her smile, for all who encountered her, was her trademark.
>
>Some of you will recall the page one, Wall Street Journal article
>connected with Aviva's bilateral pallidotomy and the national ABC,
>"Prime Time Live," TV broadcast where Aviva appeared briefly the
>day she underwent the procedure. To the end, her pallidotomy rid
>her of almost all freezing and much dyskinesia. Her drug holiday
>of some 3 months ago was also holding nicely.
>
>I trust you will understand if, soon, I take my leave from the
>list.
>
>Broken hearted,
>David
>
>David S. Devor <[log in to unmask]>           <[log in to unmask]>
>Project Mind Foundation   -  -     Keren Mivtsa Mochin
>http://www.webscope.com/project_mind/project_mind.html
>
>Spiritual discipline is little more than "inner hygiene" and exists to
>sanctify life, not replace it. We have yet to discover that science is
>the ultimate spiritual endeavor in which the whole body must become an
>instrument of creative vision serving holistic, restriction-eliminating
>abundance-generating, spirit-liberating, physical, world transformation.
>+----------------------------------------------------------------------+
>   Join our MOCHIN mind/matter list discussing World Transformation!
>     Send: subscribe mochin yourfullname, to: [log in to unmask]
>       View archives at: http://shamash.org/listarchives/mochin
> For sample chapters of T.Kun's, PROJECT MIND, contact: [log in to unmask]
>
>------------------------------
>
>Date:    Mon, 19 May 1997 01:22:47 -0400
>From:    John Lochore <[log in to unmask]>
>Subject: Re: Conductive Education
>
>Some years ago, on a visit to UK, John and I picked up
>a document about the Birmingham Institute for Conductive
>Education. We were told that the Birmingham Institute
>started work with adults who have Parkinson's Disease
>in September 1990.
>
>Does anyone on the list know how this work is going
>and whether PWP who have attended have gained
>lasting benefit from the conductive education?
>
>If it has been a success, has anyone tried to start up
>anything similar outside Europe?
>
>I would very much like to know if anyone has info.
>
>Thanks
>
>Robyn, 48/ 6.5 (Perth, WA, Australia.)
>
>----------
>From:   Emma Bennion[SMTP:[log in to unmask]]
>Sent:   18 May, 1997 20:27
>To:     Multiple recipients of list PARKINSN
>Subject:        The parkinson Village
>
>I am so glad that the Parkinson village in Middle England survived the
>severe storms that attacked it last Autumn and that the wind of change is in
>the air!  Good thing they can't smell Bernhard Matthews turkey houses as
>they are far from 'bootiful'.. However if Stan can shovel plenty of  turkey
>**** on his roses, he should get a fine bunch for Millie, and  lessen the
>risk to the ozone layer by her over zealous use of  Haze Spray!
>
>regards from North Norfolk where the breeze is sweeter!
>
>Emma
>
>------------------------------
>
>Date:    Mon, 19 May 1997 02:19:30 -0400
>From:    Mary Sheehan <[log in to unmask]>
>Subject: Re: DIABETES SURVEY /25replies needed
>
>Ivan,
>
>Sorry to be late with my reply.  We were away for a few days.  58 /DX 1 yr.
>
>Mary Sheehan
>
>------------------------------
>
>Date:    Mon, 19 May 1997 02:35:20 -0400
>From:    Barbara Mallut <[log in to unmask]>
>Subject: FW: Collagen injections: the Deed is DONE!
>
>Errrrrrrr.... Camilla, I don't know if that's possible with the thumbs tied
>behind the back, but I'm SURE Ken Becker would have that information
>available.  He seems to have an inordinate fascination with talking thumbs!
><giggle>
>
>Barb Mallut
>[log in to unmask]
>
>-----Original Message-----
>From:   Parkinson's Information Exchange  On Behalf Of Camilla Flintermann
>Sent:   Saturday, May 17, 1997 8:19 AM
>To:     Multiple recipients of list PARKINSN
>Subject:        Re: Collagen injections: the Deed is DONE!
>
>Barb M--Golly--if the thumba re tied behind the back, can they still talk?
>Congratulations on the swift and happy procedure...
>
>Camilla Flintermann, CG for Peter, 78/7, Oxford,Ohio
>[log in to unmask]
>*   *   *   *   *   *   *   *   *   *   *   *   *   *
>"Ask me about the CARE list for PD caregivers!"
>*   *   *   *   *   *   *   *   *   *   *   *   *   *
>
>------------------------------
>
>Date:    Mon, 19 May 1997 03:59:16 -0400
>From:    Marjorie Moorefield <[log in to unmask]>
>Subject: Walter
>
>I had two feeling while reading your post.  Thankful that you are not
>the ListServe Owner, and puzzled as to why you think a goodly portion
>of this list should be interested in the Udall Bill.
>I happen to have some very good friends who live in foreign countries
>who have dropped this list because of all the Udall posts on it.
>This list is Multinational---one man's politics is another man's poison
>so to speak.
>
>Since there are a couple who have complained recently about what is being
>discussed on this list, maybe you can interest them in joining you and
>starting
>yourselves a new ListServe.
>Also there is a Mensa ListServe where you might be happier.
>
>The rest of us, who BTW, have been on here a long time, are happy with things
>just the way they are.
>
>As Ever,
>Marjorie Moorefield,
>just another librarian, with PD
>64/9
>
>------------------------------
>
>Date:    Mon, 19 May 1997 03:42:20 -0400
>From:    Forrests Mom <[log in to unmask]>
>Subject: Re: Loss of smell - zinc
>
>  Deanne, I do not have all the answers... I wish I did. I did come-on
>alot stronger than I had intended to. How much have you read in the
>last 6 months on antioxidants, something that was almost unheard of
>several years ago as a treatment for parkinson, the NADH is a coenzyme.
>  Studies on Pheylalanine, Methionine and Trypotophan revealed significant
>improvement(caution trypotaphan does not mix with l-dopa medicine).
>  With all this attention to reduced glutathione, bromelain, lipoic acid,
>Vitamin C, Vitamin E, Vitamin A, NADph, and others, seems like we should
>be taking a closer look at the digestive system.
>  And I saw my father getting better, the frozen face is gone, his doctor
>noticed it the second he walked into his office. My fathers symptoms only
>began to appear last year, so perhaps he realized the benefits of these
>supplements early.
>
>>The specific amino acids are important.  Are you suggesting 5 to 7 specific
>>ones for their specific effects, on an empty stomach so they won't have to
>>compete for absorption (thus utilization)?  If not, are you simply saying to
>>take an amino acid pill?  That is, actually, the most expensive way to eat
>>protein, since protein is made of amino acids.
>
>  I really like this book I found called Prescription for Nutritional
>Healing, he makes a convincing argument for additional supplements when
>you have an illness. I bought my father the amino acid drink from
>GNC it costs one dollar, I had him delute it down to last five days,
>then I told him not to use this again for a month, He told me it made
>him feel stronger and less weak.  This is what I meant about powerhousing
>amino acids, I did not notice any difference when I tried it, so perhaps
>my father needed these amino acids in this form. And this was just an
>experiment to see what happened, I do not recommend anyone taking this
>for any length of time, too much can be just a bad as too little.
>
>>I can appreciate your encouragement that people look to their diets as a
>>major component in their health or illness, but this post seemed
>>irresponsible, even though you were careful to say the diet you refer to
>>won't work for everyone.  There seemed to be more unproved, regurgitation of
>>vitamin sales rep hype or something somebody shopping in a health food store
>>(one of my favorite kinds of stores!) happened to say than sound
>>biochemistry.
>
>  Perhaps I am trying to sell produce too<grin> No, I am not trying to sell
>vitamins, but the medical reports that I uncovered are mentioning the benefits
>of antioxidants, enzymes and vitamin supplements as a effective treatment.
>  What I am wondering about is if parkinsons patients have problems with
>malabsorption, not just slowed digestive systems, in any case the problem
>would get better with improvements in diet. We know what happens in
>hyperthyroidism, still this condition can be confused with Parkinsons.
> If you look into hyperthyroidism and parkinsons you will see that there
>has to be a connection somewhere. In hyperthyroidism the digestive system
>is speeded up and malabsorbation occurs, could not the same thing happen
>if the digestive system was slowed down.
>  I am out here learning with the rest and trying to put my ideas together,
>I am not a biochemist or a medical doctor, but I do have access to this
>medical information, so please do not let me influence your decisions,
>but I would like to see what happens with parkinsons if improvements were
>made in the diet.
>  Autism probably has several causes, I just lucked up on what was effecting
>my child, the same is true with parkinson, it probably has several causes,
>finding out the specific problem is will have to be done on an individual
>basis.
> I am sorry that I came across irresponsibly, I laughted at the person
>that told me several years ago that a gluten free diet would help my son,
>now thousands of autistic children are gluten-free and getting better.
> I have sent medline reports to this list, and many have had problems
>understanding them, so what I did was give the list a clue that their
>illness could be from digestive problems, if it only helps one person,
>then it was not done in error.
>  We have to understand why the body no longer makes its own dopamine,
>could this just be from a break in the chain of enzymes?
> Like you have many unanswered questions. Best Wishes Linda Forrest's Mom
>
>------------------------------
>
>Date:    Mon, 19 May 1997 04:54:55 -0400
>From:    Barbara Mallut <[log in to unmask]>
>Subject: FW: Walter
>
>I must admit to a touch of exasperation when confronted with yet ANOTHER
>complaint from the gentleman in question concerning the fact that over 1500
>individuals from 30-plus nations don't post on the List with a 100 per cent
>same fervor and viewpoint vis a vis List content as his.
>
>I LIKE the diverse opinions, the fact that we have more in common than this
>steeeeenkin' disease.  The unique mix of personalities of our fellow travelers
>just adds to our respective and collective lives, I believe, just like a good
>mix of seasonings does to a bubbling pot of stew as it cooks.
>
>I vote we keep on adding more "spices"  to our well-seasoned stew, but let's
>not change it completely to some other "dish" (hmmm... tho I wouldn't mind a
>pizza right now) <smile>.
>
>Barb Mallut
>[log in to unmask]
>
>-----Original Message-----
>From:   Parkinson's Information Exchange  On Behalf Of Marjorie Moorefield
>Sent:   Monday, May 19, 1997 12:59 AM
>To:     Multiple recipients of list PARKINSN
>Subject:        Walter
>
>I had two feeling while reading your post.  Thankful that you are not
>the ListServe Owner, and puzzled as to why you think a goodly portion
>of this list should be interested in the Udall Bill.
>I happen to have some very good friends who live in foreign countries
>who have dropped this list because of all the Udall posts on it.
>This list is Multinational---one man's politics is another man's poison
>so to speak.
>
>Since there are a couple who have complained recently about what is being
>discussed on this list, maybe you can interest them in joining you and
>starting
>yourselves a new ListServe.
>Also there is a Mensa ListServe where you might be happier.
>
>The rest of us, who BTW, have been on here a long time, are happy with things
>just the way they are.
>
>As Ever,
>Marjorie Moorefield,
>just another librarian, with PD
>64/9
>
>------------------------------
>
>Date:    Mon, 19 May 1997 05:33:45 -0400
>From:    Brian Collins <[log in to unmask]>
>Subject: Re: PD E-Mail priorities
>
>On Sun 18 May, Walter O. Huegel wrote:
>> My #1 priority in participating in this list service is to advance the
>> cause for a PD cure.
>
>I agree with with Walt Huegel that the over-riding objective which dominates
>my life is to bring about the conquest of Parkinson's Disease. However, as I
>read the rest of his note, I find that we are talking about Political
>Activism; the implication being that all that is needed to bring about the
>end of PD is the right actions from the Government - which I presume
>translates into more money for PD Research, since at the end of the day that
>is about the only power that a government can wield against something like
>PD.
>   What concerns me is that I believe that there is a lot more to achieving
>a cure for PD than simply generating lots of money, and please, all you
>wonderful people who are breaking your backs to get the Udall Bill passed,
>don't take that as the slightest criticism of your motives or efforts. The
>passage of the Udall bill will be one of the most significant milestones
>ever in the battle against PD, but there does still exist the little matter
>of finding the cure ( or let's say 'A' cure- there may be more than one way
>to achieve a cure).  The reason that money is so important at this time is
>that, as we are rounding the bend and coming into the home straight, the
>Researchers are starting to generate a growing volume of good ideas, all of
>which need money to either prove or disprove the value of the idea.
>
> What is he getting at (I hear you saying).  Well, just this:  I have a
>strong suspicion that, if we tried to follow every idea to the point of
>being able to say that it is right or wrong, the Udall Bill would begin to
>look like small change. This means that there will be, just as there has
>always been, a need for some sort of overall plan or strategy to exist, and
>there will be a need for a group of people to exist whose job is to make
>that difficult decision of where the funds should go. Now that team in my
>view should not be made up exclusively of those who hold the purse-strings,
>nor should it be made up of all Researchers. I believe that there should be
>representation from many walks of life; for instance, without giving it much
>thought, I could suggest :-  Researchers, money men, Sufferers,
>Representatives from the Drug industry, etc.
>
>It was considerations such as those which I have mentioned above which led
>Phillip and Christine Young in the UK to form a group known as SPRING
>(Special Parkinsons Research INterest Group), of which I am proud to be a
>founder member.  This group, which is properly constituted within the

George Coates
George Coates Performance Works