Reply to message from [log in to unmask] of Wed, 02 Jul
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Hi
It is terrible to loose your parents. I lost both of mine when I was 31 years
old, and watched them suffer from the age of 16 yrs.  However, I say this
not to get pity but to reassure that the child does grow up as a stronger and
caring human being.  I too was diagnosed with a neurological disease somewhat
like PD, called Multiple System Atrophy. I was diagnosed at age 33.  So
I guess what I am trying to tell you is not to give up.  It is extremely
difficult at times I know, but you just can not give up hope. Besides
there is too much to do out there in the world:)))) By the way my son
also watch his grandparents slowly deteriate and now see me with my disease
What does he want to be ? A doctor. He already informed on his 8 th grade
graduation day that he has 15-18 more years of school. How is that for strength?

Hang in there :))

Nancy M.
 >
>Marling -
>
>I agree totally about you say about losing a parent, and I can honestly =
>say I know how you feel.  I also am glad that
>my father is not here to see me suffer with this disease.  in some ways =
>I think he knew that I masy have had it before=20
>he died and he didn't want me to see what PD could do, as I was showing =
>signs of the illness for about 11/2 years before=20
>he ended his.
>
>But one thing we have to remember is that we can't let it beat us, If we =
>fight the disease every way possible and wells every thing=20
>we can honestly say we still have our dignity - that is one thing it can =
>not and will not take from us because that comes from inside us.  So =
>when things really at there worse visualize it in your mind and then =
>give it one swift kick in the a-- (butt).  And as my pal Winnie-the =
>-Pooh would say "oh Bother!!!"
>
>Hope this did not ramble on because something I really feel.  And =
>believe me I have visualized it many times and given it more than one =
>swift kick.   AN das for our kids that have to grow with parents that =
>suffer from this, it really makes them much stronger and less cruel =
>toward people with handicaps.
>
>Susan A.  [log in to unmask]
>
>-----Original Message-----
>From:   Marling McReynolds [SMTP:[log in to unmask]]
>Sent:   Tuesday, July 01, 1997 9:36 PM
>To:     Multiple recipients of list PARKINSN
>Subject:        Re: diagnosed young
>
>Losing a parent is terrible, no matter whether slow or fast.
>
>My mother and I went bowling one Wednesday morning.  She was 66. Early =
>the next
>morning she had indigestion.  I took her to the hospital because she was
>throwing up.  They sent her to a special hospital immediately for =
>surgery as she
>had an aneurysm in her stomach and died on the operating table.  It was =
>so quick
>we were all in shock for quite a while.
>
>When my dad was 82 my sister (56) died of breast cancer.  I watched him =
>die
>slowly for a year.  A month after his 83rd birthday he was in the =
>hospital (for
>2 weeks), weak, but not having any particular problems.  We arranged for =
>him to
>leave there and go to a home on a Friday for physical therapy.  He died =
>at
>midnight, Thursday, in his sleep.  I was not glad that he was dead, but =
>I was
>glad his year of misery was over.
>
>I miss my parents very much, but I am glad they are not here to see me =
>suffer
>with PD.  I had symptoms for some time before going to the doctor.  My =
>children
>are trying to watch out for me and help me as much as they can.  I love =
>them
>very much.
>
>don't forget how to laugh
>Marling
>[log in to unmask]   (work)    or    [log in to unmask]
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