Reply to message from [log in to unmask] of Thu, 24 Jul
Dear wp
Hi,
It will be Ok.wee u oc chat tomorrow.

NancyM. ds401
>
>I've never really hated any thing, until now.
>If you like spending every moment by the clock
>I suppose you could say my days are acceptable.
>No snacks because I cannot afford the off time.
>No milk products for the same reason.
>The time I spend at home with my wife is off time
>because I have to be on at work.
>But the nights are becoming  a living nightmare.
>When I sleep the dreams are vivid. Not scary, but
>very real. More and more, however, I don't sleep.
>Sometimes sleep doesn't come because I'm not sleepy.
>But usually I don't because I cannot get comfortable.
>I can no longer roll over by myself unless the sinemet is working.
>I guess I need to up the amount I'm taking at night because
>the main reason I can't sleep is the tremor. If I get in just the=20
>right position I can relax enough to stop the shaking and fall asleep.
>But getting into that position without help is impossible.
>Have you ever tried  to describe to someone the position you
>need to be in to fall asleep? Remember, you cannot get there yourself,
>you need help. I can manage to roll over once during the night because
>the meds are usually working. People have suggested a muscle
>relaxant. The problem is that I also have Spinal Muscular Atrophy.
>My lungs are already week and I don't want to think what a relaxant might=
>=20
>do to them.
>OK, so I'm complaining. I've got to have some way to ease the stress whil=
>e
>I wait for the extra meds to work. I can tell when it's time for bed when
>I no longer have to work to remain upright while I type.
>Well, it's time to try again=85=85=85.
>
>
>Marvin
>
>

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