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Dear Marvin,=20

I know that you're not really asking the question of have you done =
enough but I'm answering anyway.  You're a brave and tough guy and a =
hero to yourself, I hope, and certainly to us.

Thank you for so effectively communicating to us your struggle and =
thereby inspiring us, PWPs and caregivers alike, to carry on.  Bless you =
and your wife.

Sincerely,
Judith Guion
[log in to unmask] (mother PWP, 83, 5 yrs)

-----Original Message-----
From:   Marvin Giles [SMTP:[log in to unmask]]
Sent:   Sunday, September 14, 1997 10:54 PM
To:     Multiple recipients of list PARKINSN
Subject:        Have I done enough?

Have I done enough?
Some 36 years ago a child asked this question as, holding onto the wall,
he fought his way to breakfast. On arriving at the table he heard his
mother
say, "the chair is in your room, use it".
That day the choice was made for him and no answer was offered or given.
Today an adult faces the question again.
Tomorrow I go to be measured for a powered chair. Without knowing it,
some friends brought this question to mind. My wife, Kristen, sat =
through
a flood of tears as a frightened adult asked a small boy's questions.
Have I done everything I can to prevent needing this chair?
Have I tried every trick,  used every solution? Has every room been
explored,
every weapon tested? Have I fought long enough, tried hard enough?
The frightened child wants an answer but the adult knows the answer can
only be found within himself. The truth is I may only get that answer =
when
God totals the score. Until then, this will do. I have done and I am
currently
doing everything I know to do to continue to do as much as I can for
as long as I can. Sounds like a declaration of war, even to me. Well, it
is.
It is a battle for independence begun by a child of ten and continued by =
an
adult of forty six.  The difference between the child and the adult are
many.
But one I  hold  to are friends. The child was basically alone, I won't =
go
into
that. But I have friends. At home and work they offer love, support, and
encouragement. I have other friends as well, friends in Australia, =
Denmark,
Sweden, The United States, and, well everywhere!
I want to thank these friends from #Parkinsons, some of you got the edge
 of a problem that's building for a while. But one of you caught Sunday
what was left after Kristen handled the worst of the tears. I thought I =
had
handle on it but the words just tumbled out. Thank you ever so much for
listening.

I'll let you know the model and color as soon as I know them.

Marvin Giles \ WerPuppy

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